I think i may have CEliac can anyone help me?

[tkstar]

HI everyone,I am a new memeber. I am 34 years old and I don't now if I have Celiac Disease, but am exploring the possibilities. I have such a long history of complications:

8 years ago I cantracted Genital Herpes which i need to add have been so frequent that no doctor has ever seen anyone with as many outbreaks as i have had. we are talking 3 weeks out of every four for 8 years! I was always sure something underlying the Herpes was causing this problem, especially since the outbreaks seemed totally unresponsive to any anti viral thereapy i tried.
1 year after that, I developed very bad lower back pains, and then deep leg pains, which became so chronic I could not sleep at night. I got to the point where my entire body ached every day and all nght, and on a few rarer occasions, i woke up feeling like my body had been poisoned, you could not touch any part of my skin, my entire body felt badly bruised!
Then the latest development was that I developed pain in the soles of both of my feet, it felt like I did not have any more padding in the soles, and I was standing on bone! (i only weighed 130lbs and am 5'7")i also at this time i became extremely bloated for at least a year, bloated and constipated, and gained 20lbs.(
I went to the cleveland clinic, and they ran all sorts of tests, mris, nerve conduction and a multitude of auto imune tests, those came back with nothing, however they found small nerve fibre neuropathy in one of my feet, but could not find anything causing it.
After not getting any help,and feeling like my life was over. (at this point I could not stand up for more than 5 minutes at a time, without being in tremendous pain, my body was sore, my insides felt out of wach, my moods were awful and my herpes outbreaks were out of control.
I decided to go to see a nutritionist, who ran some special lab tests, one checked the costisol, the other checked the instenal flora, and the other was an amino acid spot test.
all turned up with problems, my cortisol was way out of whack, the intestines showed much higher levels of the bad bacteria and very low levels of the good bacteria, and the amino acid charts showed most of my aminos were in the dangerous red (lacking). I would also like to note that my protein test always showed elevated levels of globulin (or albumin) not sure which one,
so he put me on a multitude of supplememnts,and immediately changed my diet to a whole foods, eliminating all grains, and dairy.
in a few weeks My bloating went away, my bowels worked well, my feet felt more manageble, and even the outbreaks calmed down. However after 3 months I would cheat a little here and there, eating some dairy and the occasional pice of bread. and all the symptoms came right back.

I became depressed and worried all over again,and so I went on an std forum to find out if Herpes could cause all of these sysptoms, and the answer was defiantely not! the MD on the site told me that more than likely something else was causing the outbreaks and he even challenges the idea that the vaginal sores were even herpes for two reasons

1) i get them on my buttocks as well and he said that if i get herpes on the buttocks, then i would not also be getting them on the vagina. usually herpes chooses one location. I know that the characteristics of the rash on the buttocks is defiantely herpes, but I don't know if the vagina sores are characteristis, they are totally different to the description of herpes. I haven't heard that you could get this rash on the vagina from Celiac. But they also say Celiac could be triggered by a virus infection. i could have gotten Celiac after contracting herpes.

2) the other reason is because no antiviral medicine worked, in fact it made the outbreaks worse! if it were herpes why woud they not respnd?

another member of the site suggested Celiac, so I looked at the symptoms and one of the things I read was the foot padding being diminished and this really caught my interest, since no one has been able to understand that description of how my feet feel. they only hurt when I stand on them.
please if you have any advice I would be so greatful.

tkstar. :

[Kathie]

Undiagnosed I had neuropathy in my feet as well, and they thought I had lupus, all went away once I was diagnosed. As for the herpes, when I am stressed I get outbreaks and a few months back when I was being unknowingly glutened over a number of weeks I was having outbreaks every month, although for me the meds helped, however I had only short term damage from the CD not undiagnosed damage. If you do have CD it is very possible that your body would not be able to absorb the medication and that is why it is not working properly. 18 years ago there was a great gastro Doctor at the Cleveland Clinic who knew all about CD, sorry I don't remember his name.

Did they run test for CD at the Clinic?
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CD by Biopsy 3/25/88