Celicac and headaches?

[emilyallsz]

i agree- this site is really great. some forums for health issues tend to just go on adn on about problems but this one is really great in that people are really good at sharing info. i was reading the ireland celiac forum and wish there wsa a way to link, they were asking about headaches adn Al you have so much info. these links are really fabulous here. anyway! i have a headache now but even the one i started getting yesterday was not nearly as bad as usual , i had popcorn tonight at the movies, no butter when this came on and it seems like movie popcorn is safe even with the butter> i have been trying hard to stay off gluten as much as i know how right now.

[gamom]

This is definitely a learning process. There will be days that you just miss something and go, duh! but you will quickly catch on to what you are looking for. We even have the child asking about how food is prepared at fast food places! My daughter has found that the longer she is off the gluten, the more sensitive she has become to things with it. The whole process does get easier.

My most recent finding for anyone who might be interested - Powerade is a disaster, and most flavors of Gatorade (has ester gum - seems to be a problem but can't swear to it. Taylor doesn't tolerate these anymore- this is also a solvent in paint, ick!) but the new Gatorade Rain flavors are ok, green and purple. (With Taylor being a soccer player, we HAD to find something! lol)

[aklap]

[aklap]

[aklap]

[emilyallsz]

gamom wrote [ longer she is off the gluten, the more sensitive she has become to things with it. The whole process does get easier.... this is also a solvent in paint, ick!)]


thanks yeah, a learning experience
from what i have read it seems like the popcorn should have been safe but the severity and immediacy with which it came on leads me to think that must have been it...? i have been really good at being GF for several days (i'm just starting out) and feeling real good. so maybe i was extra sensitive, i know i haven't had a headache every time i ever had movie theatre popcorn ( something I LOVE)

interesting about the paint too- it's without fail that i get a headache with housepaint but i always figured its the fumes (vague) -- you are talking about house paints??[/quote]

[gamom]

When I went to find out about the ester gum, I was just assuming it was another vegetable gum used in foods, but I found out it is made from wood and is actually listed as an industrial solvent. I originally did not check much further than that, but I did just do another search about the housepaint thing. This time I found out there are actually TWO types of ester gums made, from two different tpes of pine trees, which apparently determines whether they are the food-grade variety or if they are solvent-variety. My guess is the fumes are what is getting you with the paint, because I finally found the listing I was looking for about whether ester gum is safe - apparently it is GF, according to celiac.com (doesn't explain why my child suddenly did not tolerate it, but I'll figure out that mystery)

[rinne]

Wow, I had migraines until I was about 40, not often, usually once a year but I didn't even know they were migraines. I thought they were food poisoning or flu because of the violent throwing up and D. When I was 35 they were diagnosed as migraines. I was 40 when I started to make a real effort to avoid wheat and since then I have had only one and it was in a situation where I wasn't eating wheat but still getting gluten from other sources.

This is so helpful to know, thank you.

[aklap]

bump for NW
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

[gamom]

For all the time and investigating we have done with the child's "mystery migraine disease" - and thanks to all here we finally discovered the Glutened Truth for her - I missed a very important part of the puzzle. Me. I have had bad fatigue and migraines for years - chalked it up to hormones and suffered through it. Stomach problems started a couple a years ago, thought it was stress related. Always had intestinal trouble (since I was little). I did go have the GI series done over the summer - biopsy was neg for celiac, but my blood tests just came back---- the gliadins came back high (not exceptionally, but a little) - enough for me to question gluten-sensitivity, just like my child.

I started my diet this morning. Now it's the 10 yr-old coaching mom through! Who knew... I can't wait to remember what good feels like!!!

[aklap]

HI GA,

Good luck on your GF Journey!! I am glad we were able to help y'all out

We keep telling parents with kids that have gluten problems, they themselves need to be checked too. Glad you are starting to get things figured out!
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

[keefdawn]

Hi
I just wanted to thank Al for all that information about migranines and celiacs I printed it all and I am going to show it to my doctor I have had migraines for about 16 years and last year my daughter was diagnosed for celiac disease. My blood tests were below the limits for celiac but I decided to go on a GF diet anyway. I made it 8 months without a headache and when I did get one I think I might have gotten gluten from eating out plus I was under stress. Anyway thanks so much for all the info Dawn

[aklap]

bump
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

[girlygirl]

Hi! I'm new to this site.

This is an old thread and I don't know if Emily is still around but I was just reading her symptoms and I'm curious to know the results. I also have vulvodynia (VVS), raynauds, and a mother with thyroid (graves) and her siblings with hashimotos. Some definite similarities. Did you go off gluten? Did it improve your Vulvodynia?

My stomach problems are life long so I never really thought too much about them...I'm just used to living with them. I've been doubled over in pain at some point every day since I was about 5...it's just me. I'm 30, 5 feet tall, and 80 pounds. I'm usually about 85 but have dropped a bit recently. I have never had a massive weight loss, but have never been able to gain weight, no matter what. My sister and dad are also very skinny (but they also have stomach issues and indigestion).

I am going for an endoscopy and colonoscopy, not because of the "normal" stomach pains but because about half a year ago I had a week of black tarry stool which they think must have been blood from my upper GI tract. I don't know what they expect to find six months later, since I have had no problems with blood since, but that is just how long it takes for the referral and appointment. Any ulcer would likely have healed but I don't want this to be a waste so I'd like him to test for celiac when he is in there, even though those aren't the symptoms I saw him about. I haven't complained about my other symptoms or mentioned them, really, because they are life long and normal to me. I don't see the doctor again before the day of my scope. When I see him it will likely be in the surgery room. Does anyone have any idea how I can spring this on him at the last minute without sounding like a hypo "oh, by the way, can you biopsy for celiac even if everything looks normal...I just have a hunch...even though it doesn't match the symptoms I told you about". I'll only get a few words if I even get to see him before drugs so I need to make them effective. Any ideas?