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Just got diagnosed...

 
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Yasmine



Joined: 23 Oct 2005
Posts: 52
Location: Seattle WA

PostPosted: Sun Aug 20, 2006 12:03 pm    Post subject: Just got diagnosed... Reply with quote

Well, it's been awhile since I posted, but I finally got an extensive allergy testing done for me. I knew I had some food allergies, but wasn't quite prepared for what I ended up being diagnosed with. None are life-threatening and there are a lot of low-grade allergies, but there are some that are fairly strong.

I have pretty hefty allergies to all forms of yeast, sugar cane, to every aspect of milk protein there is including goat's milk, peanuts, sesame, oysters, oranges, asparagus, eggs, ginger, nutmeg, black and cayenne pepper, vanilla. And I'm also running low grade allergies to a number of other shellfish, coffee beans, oats, sunflower seeds, honey, celery, radishes, mushrooms, cranberries, grapefruit, papaya, lamb, and soy. I'm also allergic to a LOT of herbs--including licorice, chamomile, astragalus (which I was using in soups), black cohash, dandelions, ginseng, goldenseal, milk thistle, psyillium, valerian, wild yam.

My wheat allergy that I was diagnosed with as a kid (and have had problems with ever since) didn't show up but my naturopath said that could be because I haven't had any in years, so she told me don't just start eating it again because it could throw my system into overload.

I'm on day four of no caffeine (tea makes me queasy so I can't drink it--I suspect an allergy but that, oddly enough, wasn't on the list they tested for), no sugar, and that alone is a shock. I was used to doing a GF and for the most party, dairy free lifestyle, but now I have to rethink a number of things, including baking (adding in no eggs, no sugar unless I can verify it's not cane sugar, is going to be interesting).

Ugh. Don't think I have questions per se, just slightly overwhelmed and my body is starting to go through that clearing process that can be hell on earth. As it is, my immune system has probably been just overloaded since I was eating a lot of orange juice, sugar, coffee, peanut butter, and other stuff.

Reading labels is going to take on a whole new meaning with that list. I have to avoid every speck of dairy, cane sugar, yeast, oranges, nutmeg and ginger, since those were the strongest.

Yasmine
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Can’t have: gluten, dairy, all yeasts, citrus, grapefruit, mushroom, radish, garlic, cranberry, papaya, asparagus, celery, egg, soy, lamb, lobster, oyster, shrimp, peanut, orange, cane sugar, allspice, thyme, ginger, nutmeg, black and red pepper, sesame


Last edited by Yasmine on Mon Sep 11, 2006 5:51 pm; edited 1 time in total
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gola



Joined: 04 Aug 2006
Posts: 83
Location: Pakistan

PostPosted: Sun Aug 20, 2006 12:27 pm    Post subject: Reply with quote

well i truly sympathize with u for the long list....having to stay away from wheat is soo problmatic...but the secret to surviving like this is to be strong and not think too muck about it....the best thing to do is to think bout all the gud things u can eat Very Happy ....that helps alot....tc...and let us know ur progress...
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lorka



Joined: 15 Aug 2006
Posts: 221

PostPosted: Sun Aug 20, 2006 2:33 pm    Post subject: Reply with quote

Hi there! It might seem overwhelming right now, but I found that as my celiac improved, some of my allergies cleared up.

Like you, I could not have milk and all of it's protein (including from other animals), everything from the onion family (garlic, asparagus, leeks, onion, chives), eggs, citrus, radishes, and many herbs and spices, sulphites, also, rice and it's family, buckwheat and it's family, and then also, celiac (so no gluten-grains).

For the first seven months of diagnosis, I ate about seven things... In addition, I'm a vegetarian.

The most difficult was learning that I could never again eat any sort of premade product because they all pretty much had onion or garlic powder. Now, I can tolerate some of those things, but am still a vegetarian, and cannot have any onions, rice (and family) and buckwheat (and family).

I just want to let you know it really isn't that difficult once you're used to it, and good luck! Smile
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aklap



Joined: 02 Oct 2004
Posts: 8140
Location: WI, USA

PostPosted: Sun Aug 20, 2006 4:31 pm    Post subject: Reply with quote

Hi Yasmine,

Welcome back!! Sorry to hear about the multiple food issues. That can't be easy Sad.

Thanks for the update. Keep plugging away...one day at time.
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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
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Yasmine



Joined: 23 Oct 2005
Posts: 52
Location: Seattle WA

PostPosted: Sun Aug 20, 2006 9:54 pm    Post subject: Reply with quote

lorka wrote:
The most difficult was learning that I could never again eat any sort of premade product because they all pretty much had onion or garlic powder. Now, I can tolerate some of those things, but am still a vegetarian, and cannot have any onions, rice (and family) and buckwheat (and family).

I just want to let you know it really isn't that difficult once you're used to it, and good luck! Smile


I'm already used to a restrictive diet, but man, having to readjust what's 'safe' and what's not is a mind bender. And premade foods, about all I could buy were gluten-free cookies but now, with no sugar that I can't identify as beet sugar or date sugar, there are few options left.

I'm mainly looking forward to the next few months when I start to feel better because, now that I'm off the caffeine and sugar, I am starting to feel how much these allergies have torn up my body. Confused

Yasmine Smile
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Can’t have: gluten, dairy, all yeasts, citrus, grapefruit, mushroom, radish, garlic, cranberry, papaya, asparagus, celery, egg, soy, lamb, lobster, oyster, shrimp, peanut, orange, cane sugar, allspice, thyme, ginger, nutmeg, black and red pepper, sesame
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Long2Play



Joined: 20 Aug 2005
Posts: 170
Location: Colorado

PostPosted: Tue Aug 22, 2006 1:18 am    Post subject: Reply with quote

Yasmine,

Sorry to hear about your food issues. If you do not mind me asking, Who is the Naturopath you are seeing? I am in the Seattle area too. I've been to one but not sure it really helped. Thanks for your time. Best Regards.

Long2Play
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Eeyorific



Joined: 13 Mar 2005
Posts: 806

PostPosted: Tue Aug 22, 2006 6:16 am    Post subject: Reply with quote

Yasmine,

My heart really goes out to you! I wish I could say it does get easier, but it hasn't been our experience as of yet!

Prayers and hugs to you!
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Kristie M.

"The truth of God's love is not that he allows bad things to happen....
it's his promise that he will be there with us when they do!"
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Yasmine



Joined: 23 Oct 2005
Posts: 52
Location: Seattle WA

PostPosted: Tue Sep 05, 2006 6:16 pm    Post subject: Reply with quote

Long2Play wrote:
Yasmine,

Sorry to hear about your food issues. If you do not mind me asking, Who is the Naturopath you are seeing? I am in the Seattle area too. I've been to one but not sure it really helped. Thanks for your time. Best Regards.

Long2Play


Leah McNeill, she has both a Bellevue and a Redmond office. She's been more helpful to me than any health-care provider of any sort in the past seven years, though I do like my PCP, too.

http://www.drleahmcneill.com/

Yasmine
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Can’t have: gluten, dairy, all yeasts, citrus, grapefruit, mushroom, radish, garlic, cranberry, papaya, asparagus, celery, egg, soy, lamb, lobster, oyster, shrimp, peanut, orange, cane sugar, allspice, thyme, ginger, nutmeg, black and red pepper, sesame
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Yasmine



Joined: 23 Oct 2005
Posts: 52
Location: Seattle WA

PostPosted: Tue Sep 05, 2006 6:17 pm    Post subject: Reply with quote

Eeyorific wrote:
Yasmine,

My heart really goes out to you! I wish I could say it does get easier, but it hasn't been our experience as of yet!

Prayers and hugs to you!


I MISS my mocha...so bad. Everything else I can handle, but I MISS my mochas.

Sigh. Hate dealing with the rotation part too....still getting that one down.

Yasmine
_________________
Can’t have: gluten, dairy, all yeasts, citrus, grapefruit, mushroom, radish, garlic, cranberry, papaya, asparagus, celery, egg, soy, lamb, lobster, oyster, shrimp, peanut, orange, cane sugar, allspice, thyme, ginger, nutmeg, black and red pepper, sesame
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Yasmine



Joined: 23 Oct 2005
Posts: 52
Location: Seattle WA

PostPosted: Tue Sep 05, 2006 6:20 pm    Post subject: Reply with quote

lorka wrote:
Hi there! It might seem overwhelming right now, but I found that as my celiac improved, some of my allergies cleared up.

Like you, I could not have milk and all of it's protein (including from other animals), everything from the onion family (garlic, asparagus, leeks, onion, chives), eggs, citrus, radishes, and many herbs and spices, sulphites, also, rice and it's family, buckwheat and it's family, and then also, celiac (so no gluten-grains).

For the first seven months of diagnosis, I ate about seven things... In addition, I'm a vegetarian.

The most difficult was learning that I could never again eat any sort of premade product because they all pretty much had onion or garlic powder. Now, I can tolerate some of those things, but am still a vegetarian, and cannot have any onions, rice (and family) and buckwheat (and family).

I just want to let you know it really isn't that difficult once you're used to it, and good luck! Smile


We seem to have similar lists (oh, and all forms of yeast for me). I'm not a vegetarian because my body just can't handle it, so at least I have a bit more variety. I didn't test positive for the wheat and gluten, but did try a wheat test and ended up with blisters on my inner lip and joint pains again the next day, so that's obviously a case where I've been off wheat so long that I don't test out for it.

Yasmine
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Can’t have: gluten, dairy, all yeasts, citrus, grapefruit, mushroom, radish, garlic, cranberry, papaya, asparagus, celery, egg, soy, lamb, lobster, oyster, shrimp, peanut, orange, cane sugar, allspice, thyme, ginger, nutmeg, black and red pepper, sesame
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aloneinidaho?



Joined: 11 Jan 2006
Posts: 199
Location: Idaho

PostPosted: Fri Sep 08, 2006 11:19 am    Post subject: Reply with quote

yasmine, can you give me an idea of what you eat for different meals, espessally breakfast? thanks carey
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Yasmine



Joined: 23 Oct 2005
Posts: 52
Location: Seattle WA

PostPosted: Sun Sep 10, 2006 2:33 am    Post subject: Reply with quote

aloneinidaho? wrote:
yasmine, can you give me an idea of what you eat for different meals, espessally breakfast? thanks carey


I have to be careful about how much starch of any kind I eat, so I tend to avoid too starchy of meals most of the day. Sometimes I'll have corn flakes (found one sweetened with fruit juice) or rice cereal (hot rice with rice milk, raisins, and maple sugar), but usually I'll have fruit and some sort of meat--leftover chicken or tuna or something like that.

I also make rice protein powder shakes--used to use orange juice and vanilla rice protein powder, but that's out now. So I use chocolate rice protein powder and rice or nut milk. Or a fruit smoothie--fruit, rice protein powder, and some sort of juice.

On weekends my husband and I have brunch. Bacon, GF waffles, maple syrup, apple or berry juice. He'll have eggs if he wants.

I usually have a very light protein snack (hazelnut or almond butter on a rice cake, or a slice of turkey, or something) with a little juice midmorning and midafternoon to keep my blood sugar even.

Lunch is often soup (tomato is one of my favorites). Or I'll have some sort of meat or fish, fresh tomatoes or maybe some beets.

Dinner is something like steak or fish or roast chicken or cornish game hens or pork chops (I bread them with instant potato flakes after dredging in olive oil--then bake, very yummy). Add steamed veggies (broccoli, cauliflower, carrots, squash), maybe mashed potatoes (mash with chicken broth or rice milk), gravy (made with rice flour and broth). Or a casserole using rice noodles (Tinkyada is my favorite brand) and tuna. Or spaghetti squash with spaghetti sauce. I found a vegan cheese topping (like parmesan) that is totally dairy free--no milk protein whatsoever--and it's not bad.

I found that making wheat free goodies with maple syrup or fruit sweetener is just as good as sugar, though more expensive. I made GF chocolate hazelnut-butter muffins the other day with maple syrup and they were great. Very Happy

Yasmine
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Can’t have: gluten, dairy, all yeasts, citrus, grapefruit, mushroom, radish, garlic, cranberry, papaya, asparagus, celery, egg, soy, lamb, lobster, oyster, shrimp, peanut, orange, cane sugar, allspice, thyme, ginger, nutmeg, black and red pepper, sesame
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aloneinidaho?



Joined: 11 Jan 2006
Posts: 199
Location: Idaho

PostPosted: Sun Sep 10, 2006 8:09 pm    Post subject: Reply with quote

yasmin, you said the cleaning out process is hell. what do you mean by that? because this last two days not eating those (bad) foods I feal worse than usual. Is that normal? carey
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Yasmine



Joined: 23 Oct 2005
Posts: 52
Location: Seattle WA

PostPosted: Mon Sep 11, 2006 10:01 am    Post subject: Reply with quote

aloneinidaho? wrote:
yasmin, you said the cleaning out process is hell. what do you mean by that? because this last two days not eating those (bad) foods I feal worse than usual. Is that normal? carey


Yeah, I think that's pretty normal. It took me about two weeks before I started feeling better--almost like detoxing. I had so much inflammation built up in my body and that was primarily from the allergens that I'd been eating--I'm still not 100% but I'm so much better than I was before. I've noticed my joints and muscles don't ache nearly as much, I have a lot less fluid retention....just overall much better and I can hardly wait for a few months to see how I feel then.

But the first couple weeks were just really hard. Hang in there!

Yasmine
_________________
Can’t have: gluten, dairy, all yeasts, citrus, grapefruit, mushroom, radish, garlic, cranberry, papaya, asparagus, celery, egg, soy, lamb, lobster, oyster, shrimp, peanut, orange, cane sugar, allspice, thyme, ginger, nutmeg, black and red pepper, sesame
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gluten-free-mike



Joined: 07 Sep 2006
Posts: 349
Location: Cleveland, OH

PostPosted: Mon Sep 11, 2006 12:01 pm    Post subject: Reply with quote

One thing I always need to keep in mind is that no matter how bad it is having Celiac, I must remember that others have it worse. Sorry to hear you have so many additional allergies to other foods. I hope that when you get the CD under control some other things will improve as well. Best wishes.
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Mike
GF Since 2003
Severe weakness for Desserts
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