liver diease and celiac

melinda · Joined: 03 May 2005 Posts: 3 Location: dallas tx

Has anyone had or have liver problems that has this condition?

My husband was told that he had celiac 2 years ago. He just underwent a liver transplant and they say that he possibly could not have celiac any longer ? Any one had this experiance ??????

aklap · Joined: 02 Oct 2004 Posts: 8607 Location: WI, USA

Hi Melinda,

Yes CD can affect the liver. I found a few pieces of info for you.

http://www.celiac.com/st_prod.html?p_prodid=157&p_catid=98&sid=91hH9H1Ew7UWBU@-47105256715.02
http://www.celiac.com/st_prod.html?p_prodid=100&p_catid=98&sid=91hH9H1Ew7UWBU@-47105256715.02
http://www.ikp.unibe.ch/lab2/sprue.html
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=11910339&dopt=Abstract
http://www.mercola.com/fcgi/pf/2002/may/8/gluten.htm
http://liverdisease.com/gluten_hepatitis.html

I have not heard of swapping out a body part to cure you from CD. CD is genetic and is not a function of 1 part of the body (ie Liver). After seeing these reports - I would make sure he's very strict about his GF diet. Did the Doctors say HOW replacing his liver would cure the CD?

Do they feel CD damaged his liver or was it from other causes?

I hope hubby does well with his new liver. I wish him a speedy recovery!
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

melinda · Joined: 03 May 2005 Posts: 3 Location: dallas tx

He has never really responded to a gf diet, he did for about 3 wks but I really feel most of his problems are due to his liver diease and meds that he had been taking. Since Dec 04 his has had a very strict gf diet - no response. We will have to wait and see.

melinda · Joined: 03 May 2005 Posts: 3 Location: dallas tx

I forgot to tell you he had cirrhosis - they are not sure where it came from - he did not drink nor did he have hep c or anything.

aklap · Joined: 02 Oct 2004 Posts: 8607 Location: WI, USA

Hi,

It can take some people up to 1 or 2 years to really be fully healed. It's not uncommon for it to take several months for people to start to see changes from their diet. Everybody is different - it just takes longer in some. Take a look in the Diagnostic forum. There's a report that shows the #1 reason people to don't feel better is gluten ingestion. (Please, I'm not saying that he is not following his diet). It's getting in hidden forms. EVERYTHING must be checked for gluten. It took me a good 6 months before it removed all the hidden stuff from my diet.
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

Jeannine · Joined: 02 Apr 2005 Posts: 160

Shanon · Guest

Hi!

I was diagnosed with Autoimmune Hepatitis w/cirrhosis and Ulcerative Colitis when I was in my teens. Last year (at age 32) the diagnosis for my liver changed to Primary Schlerosing Colangitis (PSC). An EGD was done last month to check for complications from the liver disease, when they found Celiac. I have not had a transplant but, would like to know more information when you find out!

Good Luck!