 |
|
| View previous topic :: View next topic |
| Author |
Message |
beffie53
Joined: 12 Jan 2007
Posts: 11
|
 Posted: Mon Mar 05, 2007 10:45 am Post subject: Southern Ca & Palm Springs area |
 |
|
I've been on vacation for a week.. traveling and being careful... and as yet, I've NOT been Glutened! I brought some of my own "safe" buns and have even eaten at Subway, having had them use my bread to make me a sandwich.. I did ask for clean gloves and a clean knife... I've had the biggest surprise though, at DENNY's!!  Without calling ahead, I've been served breakfast several times with no trouble. Mind you, I'm only eating scrambled eggs and bacon, but still, any meal that doesn't make me sick is a good one.... The waitstaff has been careful and considerate and I've been very happpy. We're on the road, on the way home, so I'll have more info/details later, but I wanted to let you know... I did eat at PF Changs...YUMMY and safe! and I knew they had a gluten free menu from this group.
Guess the biggest thing I wanted to do is let y'all know there is hope!!!
After all, you are the guys who gave me back Dr. Pepper!!!!
b |
|
| Back to top |
|
 |
The Edifying Conscience
Joined: 29 Aug 2005
Posts: 2438
|
| Posted: Mon Mar 05, 2007 11:43 am Post subject: |
|
|
| Unfortunately, B, your experience is not the norm. Simply because you claim to have eaten out without any ill effects it's doesn't mean that it is true or easy to do. While you might not be having any outward physical reactions from gluten, your body may very well have a gluten reaction. If you have been glutened and you have CD your body is having an autoimmune response. |
|
| Back to top |
|
|
maryjk
Joined: 28 Nov 2006
Posts: 71
Location: Auburn Alabama
|
| Posted: Mon Mar 05, 2007 1:32 pm Post subject: |
|
|
| The Edifying Conscience wrote: | | Unfortunately, B, your experience is not the norm. Simply because you claim to have eaten out without any ill effects it's doesn't mean that it is true or easy to do. While you might not be having any outward physical reactions from gluten, your body may very well have a gluten reaction. If you have been glutened and you have CD your body is having an autoimmune response. |
I understand that you do not eat out, ever. But the norm seems to be that Celiacs do eat out. Eating out is the norm. And many Celiacs do it without incident.
The GIG 2007 Annual Education Conference has a seminar called, "How to dine in restaurants as a confident GF patron." They are also having a "Friday Dining Out." If in general Celiacs did not eat out, why would they have this?
If I had to look at the rest of my life, eating only in my own house, never going out, I don't know that I could keep to this diet. I feel that the diet is restrictive enough. And most doctors and celiac specialists feel the same way I do.
To beffie53:
I am glad that you have found somewhere to eat that you feel safe. |
|
| Back to top |
|
|
cruelshoes
Joined: 23 Sep 2005
Posts: 2545
Location: Washington State
|
| Posted: Mon Mar 05, 2007 1:58 pm Post subject: |
|
|
While TEC's response may seem a little harsh (ducking in case TEC throws something at me), we do need to carefully consider where and when we eat out. The last time I ate out was a month ago at Outback steakhouse (which has a GF menu) and they tried to serve my son a gluten bun. The more we restrict our dining out, the safer we will be. No, I did not say we should never eat out, but we should be cautious. My family eats out less than once a month, and that feels like a safe level to me.
I should add that it took me a long time to get to this opinion. I used to think that one could eat out regularly and be safe (we have discussed this many times here). But the more I consider it, the more risky it seems. Do I really want to trust my health to someone in the kitchen that has no vested interest whatsoever in keeping me healthy? More often than not the answer to this question is no.
_________________
-Colleen
Dx 8/05 via bloodwork/biopsy
10-YO son Dx 11/05 via bloodwork/biopsy
Daughters (12 and 2) have neg. bloodwork
A woman is like a tea bag-you never know how strong she is until she gets in hot water. - Eleanor Roosevelt |
|
| Back to top |
|
|
maryjk
Joined: 28 Nov 2006
Posts: 71
Location: Auburn Alabama
|
| Posted: Mon Mar 05, 2007 2:09 pm Post subject: |
|
|
| cruelshoes wrote: | | While TEC's response may seem a little harsh (ducking in case TEC throws something at me), we do need to carefully consider where and when we eat out. The last time I ate out was a month ago at Outback steakhouse (which has a GF menu) and they tried to serve my son a gluten bun. The more we restrict out dining out, the safer we will be. No, I did not say we should never eat out, but we should be cautious. |
Yes, we should be cautious. But the more we restrict dining out, the less people will be aware of our issues. The less Gluten free menus there will be.
Yes, we will be safer. But we would also be safer to only eat food that we have grown and processed ourselves. There has to be a middle ground.
And yes, TEC's response was harsh, and if she feels the need to throw something, there is a problem. I hope you were kidding. |
|
| Back to top |
|
|
aklap
Joined: 02 Oct 2004
Posts: 8605
Location: WI, USA
|
| Posted: Mon Mar 05, 2007 2:26 pm Post subject: |
|
|
Sure, there's a middle ground. It's all about risk management. Everything we do has risks and benefits. Getting out of bed has risks, getting in our car has risks, etc. In the case of eating out, basically we are gambling with our health [for some, it's their lives]. It's up to us to decide if the benefits outweigh the risks.
In TEC's defense - I see it more a "matter of fact-ness" than harshness. I won't disagree with TEC stance. She is 100% correct. For me personally, I'm in the middle somewhere. I will say this, I like Colleen, over the years have evolved in to "less is better [and safer]" point of view.
Take yesterday...Peg's family went to our Firemen's Chicken BBQ...I opted not to go. I could've went just for the fellowship but I've been pretty grumpy about stuff lately  . I also could've check with the firemen about gluten - but again I was grumpy...and I didn't feel like beating my head against the wall. Instead I had a really great left over meatloaf sandwich at home. 
_________________
Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa
Last edited by aklap on Mon Mar 05, 2007 2:58 pm; edited 2 times in total |
|
| Back to top |
|
|
ostrich
Joined: 30 Mar 2006
Posts: 4162
Location: Nebraska
|
| Posted: Mon Mar 05, 2007 2:46 pm Post subject: |
|
|
I also think this is a location issue. Where you were able to eat at Denny's in SoCal just fine, I've been having problems getting burgers with no buns here.
Not to turn this into another dining out thread, but I'm somewhere in the middle as well. I don't think I'd have much of a social life if I couldn't go out to eat (and my social life is small enough already).
TEC is right though. If you don't have any reactions, how can you tell you're getting a safe meal?
_________________
Ostrich :>--O==={
I lie below, you float above
In the pretty white ships that I am dreaming of |
|
| Back to top |
|
|
aklap
Joined: 02 Oct 2004
Posts: 8605
Location: WI, USA
|
| Posted: Mon Mar 05, 2007 2:50 pm Post subject: |
|
|
| Quote: | | If you don't have any reactions, how can you tell you're getting a safe meal? |
I guess the numbers might tell as story at the annual followup. You are getting annual followup blood work done, right Beffie?
Of course...then you have to determine if the damage is slight enough to escape blood work detection - which can happen quite easily.
_________________
Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
|
| Back to top |
|
|
The Edifying Conscience
Joined: 29 Aug 2005
Posts: 2438
|
| Posted: Mon Mar 05, 2007 2:55 pm Post subject: |
|
|
| maryjk wrote: | | The Edifying Conscience wrote: | | Unfortunately, B, your experience is not the norm. Simply because you claim to have eaten out without any ill effects it's doesn't mean that it is true or easy to do. While you might not be having any outward physical reactions from gluten, your body may very well have a gluten reaction. If you have been glutened and you have CD your body is having an autoimmune response. |
I understand that you do not eat out, ever. But the norm seems to be that Celiacs do eat out. Eating out is the norm. And many Celiacs do it without incident.
The GIG 2007 Annual Education Conference has a seminar called, "How to dine in restaurants as a confident GF patron." They are also having a "Friday Dining Out." If in general Celiacs did not eat out, why would they have this?
If I had to look at the rest of my life, eating only in my own house, never going out, I don't know that I could keep to this diet. I feel that the diet is restrictive enough. And most doctors and celiac specialists feel the same way I do.
To beffie53:
I am glad that you have found somewhere to eat that you feel safe. |
First, I would say that the first post wasn't intended to be harsh. However the same is not true for this post.
Next, regarding Cruelshoes there is pretty much nothing that she can do that would make me throw anything at her. I respect her and her positions.
Clearly I wasn't talking about me or my stance on dining at restaurants. I was addressing the OP post who claimed that it was possible to eat out for 7 days at crappy chain restaurants without ever getting glutened. In addition the original poster claimed that it was easy to do. Perhaps you who attended the GIG 2007 Annual Education Conference learned some magical phrase that makes it easy for celiacs to safely dine out. If so, please share. I find it hard to believe that "most doctors and celiac specialists" would suggest that a celiac might safely be able to eat at Subway or Denny's as the OP used as examples. Perhaps in Auburn, all restaurant workers are familiar with CD and the intricacies of the gluten-free diet, but that is not the case in most cities. The norm for you, other celiacs, and I'll add many other ill informed celiacs is to eat out. But, it occurs to me that even you who enjoys eating out doesn't do so every meal during the course of a week. If that is your norm, I hope you'll enjoy all of the 'sides' that come with the meal equally as well. |
|
| Back to top |
|
|
The Edifying Conscience
Joined: 29 Aug 2005
Posts: 2438
|
| Posted: Mon Mar 05, 2007 3:03 pm Post subject: |
|
|
| aklap wrote: | | In TEC's defense - I see it more a "matter of fact-ness" than harshness. |
People always want sprinkles and sugar coating!  |
|
| Back to top |
|
|
aklap
Joined: 02 Oct 2004
Posts: 8605
Location: WI, USA
|
| Posted: Mon Mar 05, 2007 3:04 pm Post subject: |
|
|
I did want to comment... However, I don't want this to turn into a watering macthing
| Quote: | | Eating out is the norm. |
What is normal? If we follow the norm, we'd all have gads of credit card debt. From what I'm seeing and the people that I know...they all have a boat load of CC debt [some up to 50k worth]. If that's the norm...I don't want any part of it. 
Do Celiacs eat out...sure. Do they eat out as much as the non celiacs do? I would venture to guess not. Atl least most of the ones that I know don't. I know our dining out budget fell drastically!! I can't remember my totals from 2006 - but I want to say it was 200-300.00 for the year.
~~
I feel the responsibility of this board [and anyone else] is make sure people get correct information. I think it would irresponsible of us [the board] not to bring up the caveats of dining out. Everyday, there are "newbies" reading here. To leave them with the impression that eating out is a piece of cake [hopefully GF] and with out risk, is just wrong.
As I said before, how much risk we take is up to us. If we [the board] have given all sides to the story, then readers can make an intelligent decision.
_________________
Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
|
| Back to top |
|
|
maryjk
Joined: 28 Nov 2006
Posts: 71
Location: Auburn Alabama
|
| Posted: Mon Mar 05, 2007 3:39 pm Post subject: |
|
|
| Quote: | | Unfortunately, B, your experience is not the norm. |
| Quote: | | I feel the responsibility of this board [and anyone else] is make sure people get correct information. I think it would irresponsible of us [the board] not to bring up the caveats of dining out. Everyday, there are "newbies" reading here. To leave them with the impression that eating out is a piece of cake [hopefully GF] and with out risk, is just wrong. |
When I said that eating out was the norm, it was in response to the comment that eating out safely is not the norm.
There are books published, classes held and gluten free/celiac groups that go out to eat. To say that having a gluten free dining experience is not the norm is irresponsible. The statement is designed to frighten new people. It is the opinion of one or two on this board, not the opinion of GIG, Celiac Disease Foundation or the Celiac Sprue Association. As I also stated, GIG is holding a seminar about eating out.
Yes, we should leave new people with the impression that it takes time and effort to eat out safely. But if every time someone states that they have eaten out safely, and the response is, "no, you did not, you just don't know it, your body is having a reaction right now" or something like that, we are not bringing up the caveats of dining out. We are making statements designed to frighten. |
|
| Back to top |
|
|
maryjk
Joined: 28 Nov 2006
Posts: 71
Location: Auburn Alabama
|
| Posted: Mon Mar 05, 2007 3:57 pm Post subject: |
|
|
| The Edifying Conscience wrote: | First, I would say that the first post wasn't intended to be harsh. However the same is not true for this post.
Clearly I wasn't talking about me or my stance on dining at restaurants. I was addressing the OP post who claimed that it was possible to eat out for 7 days at crappy chain restaurants without ever getting glutened. In addition the original poster claimed that it was easy to do. Perhaps you who attended the GIG 2007 Annual Education Conference learned some magical phrase that makes it easy for celiacs to safely dine out. If so, please share. I find it hard to believe that "most doctors and celiac specialists" would suggest that a celiac might safely be able to eat at Subway or Denny's as the OP used as examples. Perhaps in Auburn, all restaurant workers are familiar with CD and the intricacies of the gluten-free diet, but that is not the case in most cities. The norm for you, other celiacs, and I'll add many other ill informed celiacs is to eat out. But, it occurs to me that even you who enjoys eating out doesn't do so every meal during the course of a week. If that is your norm, I hope you'll enjoy all of the 'sides' that come with the meal equally as well. |
First, I guess that is what is meant by TEC throwing something, you weren't kidding. Gee, at little ole me. (And intentionally being harsh should be a problem. But don't worry, I can take it. And dish it out)
Now, the op, expressed surprise at being able to eat at Denny's for breakfast, not that they had every meal there for a week. The OP also stated that they had eaten at PF Changs, I am not sure if you would call them a "crappy chain restaurant." And I understand that this is a vacation, not that they eat out every meal, every day. If they did that and didn't have any problems, everyone would be surprised.
The GIG conference is in June, and I will post what I learn from the seminar. But, yes, it seems that most Celiac specialists do suggest that patients eat out. If they recommend Denny's I don't know. But based on books and web sites of various Celiac doctors, all recommend eating out at some point.
If we are so ill informed, where did you get your information? Is there some secret source that we haven't heard of? Is there a book that tells you that Celiacs should never eat out? Cause I haven't found it. Everything I read says to be careful, talk to the manager and then decide if it is safe.
No, I don't go out every day. But when vacation time comes, I will. I do not want to spend my life locked up in my house. There comes a time where quality of life is an issue. |
|
| Back to top |
|
|
aklap
Joined: 02 Oct 2004
Posts: 8605
Location: WI, USA
|
| Posted: Mon Mar 05, 2007 4:02 pm Post subject: |
|
|
Mary,
GIG might very well put on a seminar about eating out. It's good that they do, so people know how to lessen the risks of eating out. I bet they don't guaranty that you won't get glutened. 
GIG's response about getting glutened:
http://www.gluten.net/downloads/infopackets/QuickStartDietGuide-2005.pdf
| Quote: | If In Doubt Go Without!
If unable to verify ingredients or the ingredient list is unavailable – DO NOT EAT IT. Regardless of the amount eaten, it is not worth triggering your immune system and the damage to the small intestine that occurs every time gluten is consumed, whether symptoms are present or not. Individuals may have sensitivity reactions to foods other than gluten. |
Going solely by symptoms is never a good idea when dealing with CD. That's why I posted about the annual followup.
_________________
Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa
Last edited by aklap on Mon Mar 05, 2007 4:06 pm; edited 2 times in total |
|
| Back to top |
|
|
The Edifying Conscience
Joined: 29 Aug 2005
Posts: 2438
|
| Posted: Mon Mar 05, 2007 4:02 pm Post subject: |
|
|
| maryjk wrote: |
When I said that eating out was the norm, it was in response to the comment that eating out safely is not the norm.
There are books published, classes held and gluten free/celiac groups that go out to eat. To say that having a gluten free dining experience is not the norm is irresponsible. The statement is designed to frighten new people. It is the opinion of one or two on this board, not the opinion of GIG, Celiac Disease Foundation or the Celiac Sprue Association. As I also stated, GIG is holding a seminar about eating out.
Yes, we should leave new people with the impression that it takes time and effort to eat out safely. But if every time someone states that they have eaten out safely, and the response is, "no, you did not, you just don't know it, your body is having a reaction right now" or something like that, we are not bringing up the caveats of dining out. We are making statements designed to frighten. |
Eating out safely every meal for a week is not the norm, and that is what I was commenting on. In fact the OP doesn't know for fact that she did eat out safely because she said something like she is not as sensitive as some of us. Did you read the OP? Or are you simply taking this opportunity to try to slam me? GIG, CDF and CSA all claim it is possible for a celiac to safely eat a weeks worth of gluten-free meals at low level chain restaurants?
It's a balancing act Mary. I might be far right on the dining out issues and you might be far left. But, the right and left both should be able to state their positions. It's up to everyone else to decide where the fit. It's not up to you to sensor me and vice versa. In addition it would be irresponsible to not have both sides respresented.
Frightening statements? Dying a slow and painful death of cancer as a result of not clearly been given both sides of the eating out issue which led a celiac to spend 20 years eating out 7 times a week seems far more frightening to me that hearing an opposing view point. |
|
| Back to top |
|
|
|
|
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum
|
forums.glutenfree.com is graciously sponsored by:
Home
© 2008 glutenfree.com
Powered by phpBB
© 2001, 2002 phpBB Group
|
Home
FAQ
Search
Memberlist
Usergroups
Register
Profile
Log in to check your private messages
Log in
