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Sheralyn

Joined: 23 Oct 2006 Posts: 162 Location: Utah
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Posted: Sun May 06, 2007 5:04 pm Post subject: Gall baddder disease |
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Has any one had any problems with thier gall badder? Or already had it removed?
I was wondering if there is a connection with CD. |
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momof6incfl
Joined: 15 Sep 2007 Posts: 15 Location: central florida
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Posted: Fri Sep 28, 2007 11:25 pm Post subject: gallbladder.... |
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Yes, I did have mine out last October. I also had lymphnodes removed from neck the previous Feb. I was diagnosed with celiac 5 years ago and have been l00%gf, my 6 kids too. You can read more about other medical stuff Ive encountered in my posts on the general discussion board and in answering others questions on the multiple food allergies one too. Ive now got Refractory Sprue and am being sent to Boston to Beth Israel, they've got a Celiac Center there. Im in Central Florida. I had gb trouble before I knew I had Celiac too by the way. Take care. Lynne _________________ Mom of 6 with Refractory Sprue,DH, asthma,many autoimmune diseases, mcs, latex and environmental & respiratory allergiies, Kids too & trying to use all these trials to show how faithful and true God really is and that nothing is impossible with Him. |
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aklap

Joined: 02 Oct 2004 Posts: 8607 Location: WI, USA
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Posted: Fri Sep 28, 2007 11:41 pm Post subject: |
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Hi Lynne,
This is where you're going?? Will you be seeing Ciaran Kelly? He's published many many articles on CD. I think you'll be in good hands.
Are you being treated with steroids for your RS?
Good luck with your appt. Please, let us know how it goes!
Etiologies and predictors of diagnosis in nonresponsive celiac disease.
| Quote: | Clin Gastroenterol Hepatol. 2007 Apr;5(4):445-50. Epub 2007 Mar 26.
Leffler DA, Dennis M, Hyett B, Kelly E, Schuppan D, Kelly CP.
Department of Gastroenterology, Beth Israel Deaconess Medical Center, Boston, Massachusetts 02215, USA. dleffler@caregroup.harvard.edu
BACKGROUND & AIMS: Nonresponsive celiac disease (NRCD) is a common problem affecting from 7% to 30% of celiac patients. Because NRCD comprises varied and potentially morbid entities, efficient and cost-effective patient care requires knowledge of the specific causes of this disorder. The aim of this study was to determine the common etiologies of NRCD in a tertiary referral center.
METHODS: All cases of biopsy examination-proven celiac disease (CD) seen at our institution over the preceding 5 years were included in this study. NRCD was defined as a failure to respond to at least 6 months of treatment with a gluten-free diet or the re-emergence of symptoms or laboratory abnormalities typical of CD while still on treatment with a gluten-free diet.
RESULTS: A total of 113 patients with NRCD meeting the earlier-described criteria were seen from a total of 603 patients with CD (19%), however, among patients for whom we provided primary specialist care the incidence of NRCD was 10% (P < .001). Gluten exposure was the most common cause of NRCD (36%), followed by irritable bowel syndrome (22%), refractory CD (10%), lactose intolerance (8%), and microscopic colitis (6%). The mean immunoglobulin A tissue transglutaminase level in the gluten-exposed group was 67 vs 17 U/mL (normal, <20) for other diagnoses (P < .05). Weight loss and male sex were highly predictive of refractory CD (P < .05 and < .001, respectively).
CONCLUSIONS: NRCD is a common phenomenon affecting 10%-19% of celiac patients. A limited number of etiologies account for the majority of cases. Clinical factors may be used to guide evaluation.
PMID: 17382600 [PubMed - indexed for MEDLINE]
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_________________ Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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momof6incfl
Joined: 15 Sep 2007 Posts: 15 Location: central florida
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Posted: Fri Sep 28, 2007 11:47 pm Post subject: Boston/steroids... |
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Yes, thats where Im being sent to. I will find out more next week about the results from the Capsule Endoscopy. Im on many meds, but one is prednisolone, the liquid kind is gf. Funny, the pill form made me really crazy,grumpy bigtime and would even see shadow people. This one makes me wired and happy! I have now completed washing every single wall,baseboard,crown molding,and window on the first floor today. Ive got a 3000 sf house we rent and over 30 windows! Im using this energy wisely but I should would like to sleep sometime! Im still trying to find someone else who has gone through the Refractory Sprue, any ideas? How are you doing? Hope you get some good sleep tonight! Take care. Lynne  _________________ Mom of 6 with Refractory Sprue,DH, asthma,many autoimmune diseases, mcs, latex and environmental & respiratory allergiies, Kids too & trying to use all these trials to show how faithful and true God really is and that nothing is impossible with Him. |
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aklap

Joined: 02 Oct 2004 Posts: 8607 Location: WI, USA
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Posted: Sat Sep 29, 2007 12:11 am Post subject: |
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OMGOSH - 30 windows?!?!?! You must look like Mrs Howell after eating radio active sugar beets on Gilligan's Island.
Of all the people that that I've come in contact with, I think there's only be 1 other one that had supected RS. There are other factors,diseases and issues that can cause villous atrophy. Are they sending you to BIMDC for a 2nd opinion?
I'm doing quite well. I'll get more sleep when I finish a class I'm taking Thank goodness I don't have 30 windows to clean too LOL!! _________________ Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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ostrich

Joined: 30 Mar 2006 Posts: 4164 Location: Nebraska
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Posted: Sat Sep 29, 2007 1:33 pm Post subject: |
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I had mine removed when I was 16. My dad had his removed in his 40s. Both were due to stones, and there's a long history of "tummy troubles" on both sides of my family. _________________ Ostrich :>--O==={
I lie below, you float above
In the pretty white ships that I am dreaming of |
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makeitstop
Joined: 09 Oct 2007 Posts: 1
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Posted: Thu Oct 18, 2007 11:36 pm Post subject: |
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I haven't been CD diagnosed but I have had my gall bladder removed. About two years ago, and it was the year before that when the chronic D started. The weird thing about the gall bladder is that they said the ultrasound showed gallstones, but after they took it out they said it looked healthy. Anyway, the surgery helped for a while but the D came back, and it's only gotten worse.
I'm working on getting diagnosed, I live in Cleveland, I've seen two GIs at the Cleveland Clinic and they've both been so rude, one even made inappropriate comments to me. I know it's not a glamorous job, but are there any good GIs? |
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ostrich

Joined: 30 Mar 2006 Posts: 4164 Location: Nebraska
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Posted: Fri Oct 19, 2007 6:56 am Post subject: |
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| makeitstop wrote: | | Anyway, the surgery helped for a while but the D came back, and it's only gotten worse. |
Your gall bladder is in charge of making extra bile, the acidic stuff that helps break down fatty foods. No extra bile = fatty foods pass right through your system = tummy problems. I found it helps to stick with a semi-healthy diet. _________________ Ostrich :>--O==={
I lie below, you float above
In the pretty white ships that I am dreaming of |
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