glutenfree.com - Celiac Disease Forums - Forum Index
glutenfree.com
HomeHome   FAQFAQ   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups   
RegisterRegister   ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 

Several questions...

 
Post new topic   Reply to topic    glutenfree.com - Celiac Disease Forums - Forum Index -> Dermatitis Herpetiformis
View previous topic :: View next topic  
Author Message
isto



Joined: 30 Sep 2005
Posts: 1014
Location: OHIO

PostPosted: Sat Jul 15, 2006 2:32 pm    Post subject: Several questions... Reply with quote

I didn't have any DH symptoms until several months AFTER going GF. Now whenever I ingest hidden gluten, I get sick and I get a rash. It's always in the same area (left foot only). This is how I can tell if I got hidden gluten or if I have a bug. Has anyone else had DH pop up AFTER going GF? What gives?!!!

Also, I have always had a skin problem that I don't think is CD-related, but I'm wondering now if it is. The heals of my feet are SO dry, they have extremely deep fissures in them. They often bleed because they are so deep, and sometimes actually become infected. I use a metal file to keep the skin filed down so that the cracks aren't so deep, or the cracked skin tears holes in my socks - no joke! Has anyone else experienced this? Is it CD or DH related?

Danita
_________________
Back to top
View user's profile Send private message
sarahjo



Joined: 29 Apr 2006
Posts: 119

PostPosted: Sat Jul 15, 2006 4:14 pm    Post subject: Reply with quote

that is funny, my feet do the same thing...i wonder
Back to top
View user's profile Send private message
Fidissimus



Joined: 17 Mar 2006
Posts: 1411
Location: Portland, OR.

PostPosted: Sat Jul 15, 2006 10:13 pm    Post subject: Reply with quote

I've noticed that my feet are getting drier as I'm getting older. I know this sounds kinda funny, but I've actually done the Mary Kay "Hands so soft" to my feet... it's a great treatment and keeps them from drying out too much... plus occasionally adding lotion to them just after a shower and before bed helps to keep them from getting too dry as well. I hope I don't get to the "so-dry-they-bleed" stage. I'm sorry I wish I could offer up something more helpful... Have you seen a doctor about it?
_________________
Cheers!
Jenn

GF BD: Feb. 2001
Free of wheat, barley, rye, oats, rice, dairy, eggs, almonds, pineapple and brewers yeast.
http://graindamaged.blogspot.com/
Back to top
View user's profile Send private message Visit poster's website
isto



Joined: 30 Sep 2005
Posts: 1014
Location: OHIO

PostPosted: Wed Jul 19, 2006 10:57 am    Post subject: Reply with quote

Yes, and his only advice was to always wear shoes. I used to ALWAYS go barefoot and now I NEVER do, but it never changed the condition of my feet. Time to find a different doctor!

I have even slopped vaseline all over the dry skin, wrapped my feet in plastic and put on socks before going to bed, but that doesn't hydrate the skin at all! Mad It can be quite painful. Others in my family have it, too. They are the same people with dx'ed and un-dx'ed CD. That is why I wondered if there might be a correlation btn the two.

Thanks for your input!

Danita
_________________
Back to top
View user's profile Send private message
MaryK



Joined: 13 Jul 2006
Posts: 66

PostPosted: Sat Aug 26, 2006 3:58 pm    Post subject: Reply with quote

Oh my goodness..........I just looked at my feet. They have been very dry and cracked for years. I had noticed deep cracks in the last year that didn't seem to get better with lotions, etc. I also had dry patches of skin on my cheeks that kept coming back. Since I've been GF 100% (about 5 weeks now) my dry patches have vanished on my cheeks and my skin is soooo soft!! I keep feeling my face Laughing
Anyway, I just looked at my feet, and the dry skin and cracks have almost completely vanished!!!! I can't believe it. It has to be CD related!!
I also have these raised bumps on my forehead that look a little like pimples, but they are not red. They don't itch. They are just like a tiny hard bump under the skin. I'm still waiting for those to go away, but they seem to be getting better.
I remember years ago (maybe 10 years ago when I had a lot of CD symptoms, but didn't realize it) I had dry cracked skin between my fingers. It would hurt and sometimes bleed. I guess that was also CD related. Amazing how much damage CD can do!!
_________________
Mary (37) GFCF/dye free
DH-Paul (44)
Peter 2-28-00 Asperger's Syndrome GFCF/dye free
Adam 3-29-06 GFCF/dye free/sugar free
miscarried twins 3-26-05
Jonah 4-18-06 (4 weeks early) BF
Back to top
View user's profile Send private message Visit poster's website
M. Shac



Joined: 23 Oct 2005
Posts: 84

PostPosted: Sat Aug 26, 2006 7:40 pm    Post subject: Several questions/ DH Reply with quote

I have had the same thing happened. I had been on the gluten free diet for about two years, and this past winter I developed a very itchy rash on the sides of both of my legs. It is very bumpy and red and never go quite goes away. I thought that it might be DH, so I went to a dermatologist and he said that it was excema. I thought that what he said I had, had to be dry and flaky. This is not. If I even touch it, it itches worse. I went and got a second opinion and that Dr. also said the same thing as the first Dr. What they prescribed that I do, has not helped. I also thought that I should not have DH, since I have been on a very strict diet and to the best of my knowledge and not been exposed to any gluten that I am aware of. I also have cracks on the bottoms of both of my feet. I use Pau D'Arco lotion by Nature's Sunshine and Miracle 2 skin moisturizer by Tedco. Using both of these products every day helps control the itching. Also, if you use alot of salt, be aware that the iodine in the salt sets off the DH worse! I hope that this info helps you. Smile
Back to top
View user's profile Send private message
Topher28



Joined: 20 Aug 2006
Posts: 30
Location: NJ

PostPosted: Sat Sep 02, 2006 3:18 am    Post subject: Reply with quote

If you think it's DH, ask your doctor to prescribe Dapsone. I have found that the feet and hands are common places for DH. Apparently, DH lasts MUCH longer than regular CD symptoms. It can take many months for DH to go away, even on a perfect GF diet. Dapsone is a simple, cheap pill, that shouldn't cause problems on a low dose (<100mg/day)(I take 25mg as needed), yet, for some, it is a miracle pill! DH is an interesting subject that doesn't get too much attention, and is often misunderstood around here. If you have any questions, I have found that I know most of what there is to know about DH, so ask your questions away!!
Good luck with your skin,

Chris
_________________
Somebody told me that this is the place
where everything's better, everything's safe
Back to top
View user's profile Send private message
D horne



Joined: 23 Jul 2007
Posts: 21

PostPosted: Wed Jul 25, 2007 8:13 am    Post subject: ANOTHER HELPFUL DRUG Reply with quote

Before I suspected DH my dermatologist gave me a steroid shot and sent me home with a prescription for prednisone... it gave me relief for awhile than the symptom started coming back - of course because I wasn't following a GF diet-

Do you know - I just read that they use gluten in the glue in stamps and envelopes!! No wonder I keep accidently glutening myself... it's everywhere!!
Back to top
View user's profile Send private message Visit poster's website AIM Address
aklap



Joined: 02 Oct 2004
Posts: 7818
Location: WI, USA

PostPosted: Wed Jul 25, 2007 8:26 am    Post subject: Re: ANOTHER HELPFUL DRUG Reply with quote

D horne wrote:
Do you know - I just read that they use gluten in the glue in stamps and envelopes!! No wonder I keep accidently glutening myself... it's everywhere!!


Ahhh Yes, it' is everywhere...

You might checkout our thread on Envelope Glue. I think most stamps now are self stick aren't they? At least the ones we get are Cool
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
Back to top
View user's profile Send private message AIM Address
Display posts from previous:   
Post new topic   Reply to topic    glutenfree.com - Celiac Disease Forums - Forum Index -> Dermatitis Herpetiformis All times are GMT - 5 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

forums.glutenfree.com is graciously sponsored by:

glutenfree.com



Home

© 2008 glutenfree.com


Powered by phpBB © 2001, 2002 phpBB Group