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daszycat



Joined: 14 Oct 2007
Posts: 9

PostPosted: Tue Oct 23, 2007 7:16 am    Post subject: New here....... Reply with quote

My dd is 5 1/2 and was just diagnosed with Celiac (via bloodwork and endoscopy) in Sept. 2007. She was also diagnosed with type 1 diabetes in Aug of 2005.

She only complained of stomach pains occasionally, but we associated with diabetes. Her doctor ran her yearly bloodwork which is how we discovered Celiac.
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aklap



Joined: 02 Oct 2004
Posts: 8338
Location: WI, USA

PostPosted: Tue Oct 23, 2007 7:32 am    Post subject: Reply with quote

Hi Daszy,

Welcome to the board!

Kudos to her Doc for being "with it" enough to test her for CD!! While the connection between the two is great - it's still often missed. It's good that it was caught yearly. It's very very common for Celiac to be silent [no outward symptoms]. Only 50% of diagnosed celiacs have gastro issues. Sadly, many will only test for CD when gastro issues present themselves [even then it's often miss diagnosed as IBD, IBS, stress, etc]

The rest of your family should be checked since it is genetic. Also, be aware that 1 negative test does not clear you for life - it can appear at any age.

Make yourself at home, browse around...there's lots of info here. I'm sure you'll have lots of question. One thing to check out if you haven't done so already is Our Thread on GF Diet Boot Camp. Lots of info there for people just starting out their GF Journey.

Don't be afraid to ask questions. Smile
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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
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cruelshoes



Joined: 23 Sep 2005
Posts: 2420
Location: Washington State

PostPosted: Tue Oct 23, 2007 8:45 am    Post subject: Reply with quote

Hi, daszycat. My son is 8, and he was diagnosed when he was 6. He was largely asymptomatic when he was diagnosed. I would second Al's recommendation that all her first degree relatives (parents and siblings) be tested. CD is a genetic condition.

Let us know how we can help. Especially if you are looking for substitutes for gluteny childhood favorite foods! I definitely know a lot about that one. Very Happy
_________________
-Colleen
Dx 8/05 via bloodwork/biopsy
9-YO son Dx 11/05 via bloodwork/biopsy
Daughters have negative bloodwork - so far!

A woman is like a tea bag-you never know how strong she is until she gets in hot water. - Eleanor Roosevelt
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ostrich



Joined: 30 Mar 2006
Posts: 4047
Location: Nebraska

PostPosted: Tue Oct 23, 2007 9:43 am    Post subject: Reply with quote

Just wanted to say hello as well. *waves* Please make yourself at home, and let us know if there's something we can do to help.
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Ostrich :>--O==={

I lie below, you float above
In the pretty white ships that I am dreaming of
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daszycat



Joined: 14 Oct 2007
Posts: 9

PostPosted: Tue Oct 23, 2007 10:54 am    Post subject: Reply with quote

I was able to talk my parents and my husband into being tested Wink

We went to the University of Chicago Hospital annual Celiac screen a couple of weeks ago. We are still waiting to hear back.......
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aklap



Joined: 02 Oct 2004
Posts: 8338
Location: WI, USA

PostPosted: Tue Oct 23, 2007 3:41 pm    Post subject: Reply with quote

Alright Cat - way to go!! Alright Cat's Mom, Dad and Hubby for going along with it Cool
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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
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daszycat



Joined: 14 Oct 2007
Posts: 9

PostPosted: Wed Oct 31, 2007 8:54 am    Post subject: Reply with quote

Well we have all received our test results back, and they are all negative.
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