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CF diet - I'm not sure how much longer I can do this
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ostrich



Joined: 30 Mar 2006
Posts: 3783
Location: Nebraska

PostPosted: Wed Mar 05, 2008 2:50 pm    Post subject: Reply with quote

Let Sean choose! It can be his reward for putting up with all that crap. Very Happy
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jsb



Joined: 02 Jan 2008
Posts: 13
Location: Florida

PostPosted: Wed Mar 05, 2008 4:03 pm    Post subject: Reply with quote

Ice cream sundae over here, too, please!
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celiacmaine-iac



Joined: 19 Dec 2007
Posts: 447
Location: Maine

PostPosted: Wed Apr 02, 2008 5:04 pm    Post subject: Reply with quote

Colleen- How's Sean doing?

Steph
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cruelshoes



Joined: 23 Sep 2005
Posts: 2182
Location: Washington State

PostPosted: Wed Apr 02, 2008 5:25 pm    Post subject: Reply with quote

celiacmaine-iac wrote:
Colleen- How's Sean doing?

Steph


Thanks for asking, Steph! Sean is exactly the same. We have had no changes since introducing dairy back into his diet. His writing skills are neither better nor worse. We finally got his 504 plan squared away last week. He will have a scribe for math, an AlphaSmart keyboard to carry around with him at school and free access to the word processor for writing assignments. We can't get in to the OT until early May, so that's kind of a bummer. We are trying to find things around the house to strengthen his hands in the meantime.

Overall, it seemd that dairy makes no difference at all. I'm glad we gave it a fair try, but I never want to go CF again! Smile
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Dx 8/05 via bloodwork/biopsy
9-YO son Dx 11/05 via bloodwork/biopsy
Daughters have negative bloodwork - so far!

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celiacmaine-iac



Joined: 19 Dec 2007
Posts: 447
Location: Maine

PostPosted: Wed Apr 02, 2008 7:44 pm    Post subject: Reply with quote

Quote:
Overall, it seemd that dairy makes no difference at all. I'm glad we gave it a fair try, but I never want to go CF again!

Well, you never would have known if you hadn't tried. I can only imagine how hard it was.

I'm glad to see they're getting some services in place, and that he's going to get OT. Only a few weeks to go.... The Alpha Smart looks very cool. I hope it helps him.

Steph
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mrsppmrxky



Joined: 09 Oct 2004
Posts: 1403
Location: GF Kitchen

PostPosted: Wed Apr 02, 2008 10:21 pm    Post subject: Reply with quote

Colleen, when my MIL was in PT last year, they had a big rubbermaid bin filled with rice. (I am sure you have some of that around the house. LOL) they then dropped small objects in the rice and she had to fish them out 1 at a time until she had recovered a certain number and then she had to do the other hand with the objects mixed back in the rice.
(a jack, penny, marble, paper clip, a plastic ring, plastic bugs........anything small.)

If you son does this, he gets little resistance from the rice and the finger action to pick up builds strength in the finger muscles. (It is no fair to scoop or corner the object. You have to pinch together your fingers to pick it up.)

I do not know how old your son it, but you might be able to pick up a stress ball (you might even be able to buy one from a PT place) While watching tv or listening to music, he can play with the ball squeezing it to strengthen his hands and wrists. (the balls from the PT come in different numbered strengths. You could get the least resistant and be working your way up until you could get in to see the OT.

I would not think that any of this activity would do anything to harm your son at all.

You might even try playing with chopsticks to eat snacks such as GF Cheerios or berries if he can eat them.

You might could get ahold of a Mavis Beacon teaches typing. It plays with certain letters practicing so that he has to move two or three of the same fingers time after time.

Maybe playing jacks?

Painting sun cathers.............or those marker velvet pictures from the craft store.

Scissors to cut things out.

Just suggestions on playful things to help until you can get him into OT.
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