Not sure whether to laugh or cry but I'm getting there....

[ShellyB]

I guess I'll be spending a lot of time researching these boards from now on.
Got the results of my IGg intolerance testing back and feeling a little shellshocked although the foods on it are in the meals I have stopped eating as they make me feel so bad but I didn't know the cause. Bit of an eyeopener

Intolerant to wheat, eggs, almond, buckwheat, chilli peppers, coconut, garlic, peanuts and some green veggies.
Borderline to gluten, corn, millet, hazelnuts and blackberries

This is going to take some thinking about as I'm veggie too since I realised I feel better when I don't eat meat

I'm still waiting GI referral so I have to keep eating wheat for now, I feel I've come this far. At least I can ditch the eggs aaw and I love a boiled chuky with vegamite soldiers

I've also found out there are at least 6 family members diagnosed wheat intolerant by their docs, 3 of us are currently being tested for coeliac. There's probably a few more too.
The Irish genes must be strong!!!!!!

ShellyB

[ostrich]

Hey Shelly! Welcome to the board. Yikes, that's quite the list you've got going on! Just remember that you're not alone. We're here to help. I think there's even a few of us from England.

At least the rest of your family is getting tested. That's awesome. Most of the time the family is in denial.

Have you tried going through the threads over here? They're really helpful, especially for beginners. Do you need anything? Perhaps some converted recipes?
_________________
Ostrich :>--O==={

I lie below, you float above
In the pretty white ships that I am dreaming of

[ShellyB]

Hi Ostrich

Thank you so much for the links.

I spoke with a nutritionist last week and she asked me about my family history etc. It was a revelation to me even with what I already knew. She said they can never understand how, when there are so many in one family, it gets missed. But if it's 'normal' for you and others it must be for everyone else so you don't bother to ask any more. Or like my DS who thought 'everyone's stomach hurt all the time'

She explained a lot and I have decided to stop eating gluten/wheat now to avoid any more damage (my decision even if it means I cannot get an 'official diagnosis' by biopsy and it will be the 'proof in the pudding' for me when I begin to feel better - I have done this before but only for a short while) I still have the appointment with the GI but I don't know if he will do a biopsy at the first appointment anyway and I may suffer longer for nothing. The family background speaks for itself so I'm going in with a big diagram of it as well as all the symptoms etc. The nutritionist explained that when I start to heal I will start to absorb the nutrients and vitamins again (yeay my hair may stop coming out in big clumps and it was just growing back after the last bout of anaemia)

I feel so cross, with myself for not realising sooner (but it only got really bad 6 months ago) and with the medical profession for missing so much. After DS was diagnosed the consultant GI at the hospital told me someone else in the family would have it, I just presumed it was my Auntie and no-one bothered to ask. I feel hurt for my Mum who suffered rickets at the age of 5 (no-one knew why) and was fed the banana diet which is talked about in the 'discovery of coeliac disease' and which children thrived on until they began to eat gluten again......and has had signs remarked on by the docs throughout her life but which have never been further investigated......Oh how we've talked about everything since. I feel so hurt for her because it looks like this was so unnecessary and she has been left to put up with horrible symptoms without anyone bothering to find out if she is coeliac or wheat intolerant

Still, onwards and upwards. Two days into GF and today one of my friends remarked how clear my skin was starting to look around my eyes. I'm definitely starting to feel better in myself and it's sooooo nice not to feel horribly bloated after eating. Mum is going gluten lite and DD is noticing a pattern from her diary and planning on going GF in the next few weeks as her symptoms seem to have got worse over the last few months although she has always had trouble (GP diagnosed IBS a few weeks ago, no improvement yet though

wonder why )

I may well be asking for help with recipes, spent the afternoon cooking veggie stew etc to freeze, but am beginning to feel a bit overwhelmed with it all just now

ShellyB

[aklap]

Hi Shelly,

Sorry to hear it's taken this long to get things figured out. However, it sounds like you are on the right path now!

Make sure to check out our extensive recipe stash. I'm sure you'll find something you'll like
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

[sarahceliac]

There are many people on the forum that will be able to give great advice about having multiple food allergies. Hang in there, it will become easier with time. It is a bit over whelming at first, but the more we learn about it, the easier it becomes.
_________________
Sarah