Check-In June 2008

[Torrey]

Congratulations, Had! And welcome, little JD!
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~Torrey

August 24, 1975
GF BD July 12, 2004

[ostrich]

Congrats Had! And happy birthday JD!
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Ostrich :>--O==={

Time falls away, but these small hours
These little wonders still remain

[Fifi]

Congrats Had!!!

[Luv2Dance]

Congrats to the new baby!!!

And I'm sorry to hear of yoru troubles Fifi!

As for me, I did not repsond in May because I was not doing so well. Welp, here is June, and I'm still struggling.

I joined the board back when I started feeling so exhausted and horrible, and attirubuted it to my lack of properly following the gluten free diet. Unfortunatley, I did not recovery as quickly as hoped, and it turns out there is more going on health wise and psychology wise than meets the eye.

I left my main job in the middle of May, hoping to have the rest of May to clean out the house and get rid of all gluten, and recover. I was absolutely THRILLED that I was accepted to the nursing school of my dreams, and was to start June 2nd. My husband and I figured, if I had the last half of May to sleep and clean the house, I could start school with a fresh and healthy new being.

But, things did not proceed as planned. It turns out I have had horrible side effects from some prescriptions they had me on after my reconstructive surgery, mono, a cold on top of that, and adrenal fatigue. I had to drop my classes. I was so sad!!! I have cried. But I don't think there was a way I could do it. I would fall asleep after classes. Couldn't focus, or get my homework done, and the slightest bit of anxiety sent me crying again. I'm wondering if I have PTSD or something from the accidents and horrible surgical recovery.

On the positive side of things, I have the next 6 months to heal. I have 3 doctors appointments this week, and a call into a trauma specialist. I'm reading a trauma book, hoping to work through some issues, eating well, and well, hoping for the best.

Money is scary, not working, and multiple doctor appointments a week. The co-payments keep going on the credit card. But hey, without work or school, my kitchen is getting clean, and the bathrooms are getting de-glutenized, in between naps and reading.

I had originally planned to do school Summer and Fall semesters, and have another surgery in Spring. But now I am supposed to re-start school in Spring. If necessary, I can push it back one more semester, but that's it. I'm a bit scared. No money, no job, and where is that darn health? The staple of health?

But I am trying to think positive. Enjoy this six months off, rest, get well, heal, spend time with my family, and maybe pick up a few hours of work when I can. I certainly don't want thousands of dollars of credit card debt from medical bills.

That's all for me! I wish you all the best! Please keep me in your prayers as well!

[Fifi]

WOW! I know exactly how you feel! It seems like just when you think you have your life under control your medication gets you. I am so tired of all the dr appts I have one every single day this week and have for a while. too many prescriptions with too many scary side effects. no doctors are talking to each other and I have to do the research. In the meantime I am eating raw bean flour yuck which is toxic. I just want to stand on the roof and yell Enough is Enough. But we just have to take it one day at a time and do the best we can and hope we can survive all these different doctors. Thank heavens for this forum, or I would think I was the only person in the world going through this.

[Luv2Dance]

You're not alone Fifi. And yes, thank God for this forum. Too bad I tend to withdraw when I'm really not doing well. It sounds like we need to support each other.
Have you ever gone to a certified naturopath/licensed md? They run all kinds of tests and might be able to get you on more natural stuff with less side effects. I have weaned myself off all medications, except for two. It scares me to think they want you to take anti-seizure medicine instead of changing the meds that are causing the seizures! Please be careful! I think you need one good doc that can oversee everything. That's what I'm trying to find. Wish me luck! I wish you luck too!

[Linda]

Congratulations Hadassh!
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I've been keeping pretty busy so far this June. I wish the rain would stop soon! We started soccer 2x a week in the middle of April and I think we've only gone about 7 times. Seems like it rains 6 out 7 days of the week lately. Thankfully it's supposed to stop and be sunny on Friday, but I don't think the fields will be dry enough for the school's sports day. It stops raining long enough to cut the grass, even though it's still a bit wet to cut.

My older son came home with a permission slip to join the patrollers (crosswalk patrols). I don't know if he has to be chosen or if anyone with a permission slip can join, but I think they start training right away. School will be out on the 25th, and then they'll have a refresher next fall.

Last weekend I made a lemon pound cake. I'd never had pound cake before. It was good! We had some leftover buttermilk, so I made a vanilla pound cake also. It was all right, but had no "pizzazz". DH's GF friend at work loved the vanilla cake, and didn't believe him when he told her it wasn't as good as the other one.

Saturday we are going to my in-law's 50th anniversary party. The hotel is making 2 GF meals for the party, one for Ty and one for my MIL's friend. She actually chose the menu with the idea that there would need to be very few modifications. Prime rib, stuffed potatoes, not sure about salad and veg, and chocolate mousse for dessert. Rather than gravy it will be au jus of some kind, I guess.

They keep making changes to the show I was moved to at work, so I wonder how long I'll be working on it, and if it'll be suggested that I take another job within the company that I am qualified for, and that has been open (with NO applicants) for about 2 months. I hope not...I've had my taste of weekends off and I like it. I don't want to go back to working every freakin' weekend again. On the upside, if they keep changing their minds about the show, they can't move me in case it gets changed back.

That's all from here. It's still pouring. Just gotta hang on until Friday.
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Mom of Ty (he's nine) who was diagnosed by bloodwork June 2005, biopsy August 11, 2005, notified on & started GF August 18, 2005

[HadassahSukkot]

Luv2Dance *big hugs* It will get better, given time.

It took me 3 months to detox, and then I got glutened after almost a successful 6 months of GF. I had to start all over, and got into not only gluten, but MSG on my honeymoon.. Then was pregnant with a sinus infection from heck during Thanksgiving and my birthday (the sinus infection that time of year is standard)... I didn't know what to do, other than just do what I could and rest when and where I could.

Keep looking up, it does get easier with time, and as your body repairs, just look back at all the baby steps it took to get where you are. Trust me, each step forward and every slide back -- is valuable down the line. If not for you, definitely for someone else to learn from.

I hope things begin really looking up for you in the next 6 months and that you recover well. *hug*
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[Lil Bit's Mummy]

coming to this late... but better late than never, right?

My name is Sylvia, and my 17 mo old daughter, Lil bit, doesn't have a celiac dx, but is allergic to wheat (and eggs). I'm nursing her, so we're both wheat and egg free. It's easier/safer to just buy the GF products. I'm getting more frustrated by the egg than the wheat, because a LOT of GF recipes use eggs as a substitute for the "body" you lose with GF flours. I've tried Ener-G egg replacer but it's just not cutting it.

We spent a couple of weeks in Denver in May/early June, and I'm reminded of how many wonderful resources we would have if we still lived there, as opposed to central Ohio where we now live. I had 5 natural grocers within 5 10 minutes there. Here, I've got a teeny tiny co-op that has a few GF products, but otherwise I have to drive at least 20 minutes to get to the closest Whole Foods.

Anyway, that's us. We were pointed this direction by Had and MrsP on another forum. Thanks girls!

[bakinghomesteader]

Hello. I'm new here. I was diagnosed Celiac the beginning of the month after eating gluten again for 6 weeks. I was gluten free, or so I thought, for 9 mos prior. My husband wanted to know for sure and part of me did too. So I got tested.
I am having some problems with absorbing nutrients. But, I know that my intestines will heal in time. The doctor said to be extremely careful and now with my positive diagnosis, my husband is more understanding of me not baking with regular flour anymore. I did find Domata flour which is wonderful. My husband actually likes the products I make with it very well. I also was diagnosed with Myasthenia Gravis in 1998.

We have been married 12 years in Oct. We have a 10 year old son who is homeschooled. We live in the country and grow a big garden and I can our produce, sew my clothes, cook from scratch, and live pretty simply. We are a lot like Beachy Amish Mennonite (I wear a headcovering and modest dress), but do not attend a Beachy church right now.

Anyway, I am looking forward to feeling better. I get sooo tired right now and there are chores to be done. lol. I do take breaks. I enjoy sewing on the porch or reading, etc. to take a break. I'm glad this group is here. I have learned a lot from it. I went to a dietician on Monday, and I knew more than she did. lol. She said she felt bad charging me, but did anyway.
Because He lives,
Stephanie in Central Illinois
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dx Myasthenia Gravis 1998

Official Celiac dx 6/2008

Gluten Free since 6/5/07 (with the exception of 6 weeks and any cc)

Positive Enterolab Result 8/23/07

Positive bloodwork 6/2/08 after eating gluten for 6 weeks

[aklap]

[aklap]

[Luv2Dance]

Thanks HadassahSukkot. I'm trying.