glutenfree.com - Celiac Disease Forums - Forum Index
glutenfree.com
HomeHome   FAQFAQ   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups   
RegisterRegister   ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 

Support Group Topics - got any good ones?

 
Post new topic   Reply to topic    glutenfree.com - Celiac Disease Forums - Forum Index -> Support Groups & Support Group Leaders
View previous topic :: View next topic  
Author Message
cruelshoes



Joined: 23 Sep 2005
Posts: 3380
Location: Washington State

PostPosted: Mon Mar 23, 2009 11:51 am    Post subject: Support Group Topics - got any good ones? Reply with quote

Can you tell me what topics your support group has talked about recently? Maybe some that worked well and some that didn't? I always like to have lots of topic ideas for meetings. So far the discussion from one month's meeting usually brings up a topic that I use for the next months's meeting discussion. That way I can do some prep, get some handouts, etc. I am in awe of how much prep Al does. Shocked

Thanks!
_________________
-Colleen

Where are we going, and what am I doing in this handcart?
Back to top
View user's profile Send private message Visit poster's website
aklap



Joined: 02 Oct 2004
Posts: 10606
Location: WI, USA

PostPosted: Mon Mar 23, 2009 1:47 pm    Post subject: Re: Support Group Topics - got any good ones? Reply with quote

cruelshoes wrote:
I am in awe of how much prep Al does. Shocked

I do probably tend to over-prep. That's the perfectionist coming out. I used to have 2 or 3 topics per meeting, that just wasn't working. We could never get to the other topics.

One left over topic we have to do is Support for the Support System. We have 3 spouses that show to the meetings [this includes Peg]. They go thru just like we do - just a bit differently. I think it's very helpful to address their needs as well.
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
Back to top
View user's profile Send private message AIM Address
Kathie



Joined: 27 Jan 2006
Posts: 1018
Location: Florida

PostPosted: Mon Mar 23, 2009 3:25 pm    Post subject: Re: Support Group Topics - got any good ones? Reply with quote

aklap wrote:
One left over topic we have to do is Support for the Support System. We have 3 spouses that show to the meetings [this includes Peg]. They go thru just like we do - just a bit differently. I think it's very helpful to address their needs as well.


I think this is a great idea, when we can't eat out they most often don't either. DH usually eats lunch out and so he gets his restaurant fix and doesn't have to feel bad because I can't go.
_________________
CD by Biopsy 3/25/88
Back to top
View user's profile Send private message
mrsppmrxky



Joined: 09 Oct 2004
Posts: 1612
Location: GF Kitchen

PostPosted: Mon Mar 23, 2009 4:04 pm    Post subject: Reply with quote

We have had 2 different gastro. drs. come and speak to our group. One addressed pediatric diagnosis and outcomes. Last month, we had a dr. to address the adults. (I had a little bit of an axe to grind with him.....he kept saying how difficult it was to do the gf diet and how he makes very sure before he puts someone through that to cover all the basis of diagnosis..... I of course brought up that it was not that difficult, just having to read labels and change your thought process. To me is is much easier that being ill all the time.)

We have had cooking demonstrations. Going through a basic 101 for the newbies.

Going out to eat together. Helping each other to find GF products at good prices.
_________________
Back to top
View user's profile Send private message Visit poster's website
Fidissimus



Joined: 17 Mar 2006
Posts: 1881
Location: Portland, OR.

PostPosted: Fri Mar 27, 2009 12:27 am    Post subject: Reply with quote

We've had naturopaths come in to talk, fire and rescue personnel on how to set up an emergency kit and what that means for celiacs specifically, food venders (last month we all went for a tea tasting and biscuits!), open discussions are always popular, had a pharmacist come to talk once, etc...
_________________
Cheers!
Jenn

GF BD: Feb. 2001
Free of wheat, barley, rye, oats, dairy, eggs, almonds, pineapple and brewers yeast.
http://graindamaged.blogspot.com/
Back to top
View user's profile Send private message Visit poster's website
Kathie



Joined: 27 Jan 2006
Posts: 1018
Location: Florida

PostPosted: Fri Mar 27, 2009 9:38 am    Post subject: Reply with quote

Fidissimus wrote:
fire and rescue personnel on how to set up an emergency kit and what that means for celiacs specifically,


Living in one of those nifty hurricane areas this is something that makes me cringe every time there is a big storm and I see people in line to get a PB&J from the Red Cross (or whoever). We are really self sufficient due to the amount of camping equipment and the generator we can use but having been through a storm where all the stores were closed due to no power for a couple of days I can tell you its kind of scary. Gas stations were also closed so you couldn't get out of town to get stuff either. (Thank God, most of the businesses around here learned their lesson and got generators after the first storm).

Anyone with medical issues needs to really have a good plan for environmental emergencies. We are so used to being able to jump in the car and get whatever we want we just don't realize what its like when you can't. Our home in KY does not have electricity and is in a Very rural area, but its easier to stay up there then it was to be here in town in FL after a hurricane, because up there you could drive to town and get what you needed. You never want to have to go to a shelter and depend on them to feed you. Sad Sad
_________________
CD by Biopsy 3/25/88
Back to top
View user's profile Send private message
Display posts from previous:   
Post new topic   Reply to topic    glutenfree.com - Celiac Disease Forums - Forum Index -> Support Groups & Support Group Leaders All times are GMT - 5 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

forums.glutenfree.com is graciously sponsored by:

glutenfree.com



Home

© 2008 glutenfree.com


Powered by phpBB © 2001, 2002 phpBB Group