Dairy reactions

voix · Joined: 10 Apr 2008 Posts: 160 Location: Colorado

What are the symptoms associated with problems with Dairy?

Anyone who has been GF for a while who accidentally ate dairy (who shouldn't), so would know what can be attributed to dairy alone?

I am having the muscle twitching but don't think that I was glutened, so wondered if I do indeed have a problem with dairy.

Or are dairy symptoms limited to gastrointestinal distress?

cardine45 · Joined: 15 Apr 2008 Posts: 558 Location: Kalamazoo, MI

Before I went gluten-free, if I had too much dairy, I would vomit, and if I had just a little, I would get really gassy and have diarrea. It was definitely all gastrointestinal. Lactaid worked wonders as long as I didn't overdo it.

After going gluten-free, the Lactaid worked less and less, and for a long time I couldn't do even a bite of cheese. (I didn't have to take lactaid to eat a little cheese before). It's been a really long time since I've had enough to cause me to vomit, and even little bits with Lactaid now make me really rumbly, gassy and give me diarrea.

The good news is, I tried a small amount of sour cream and cheese on a baked potato today, and it's been about 6 hours with no symptoms (usually happens within 2 hours). I was also getting affected by milk chocolate and I had a snack size candy bar today, and I was fine after that too.

Do you think you're lactose intolerant also? I've never heard of other issues with it unless it's an actual allergic reaction rather than an intolerance.

nancw · Joined: 04 Oct 2006 Posts: 1172 Location: Denver, CO

I react to casein - the protein in dairy. Very similar to my gluten reactions: anxiety, moodiness, low grade nausea and lack of appetite, sinus pain and weird aches and pains throughout my body. Ick.
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Nance

gluten, dairy, soy, rice, yeast and 99% grain-free

voix · Joined: 10 Apr 2008 Posts: 160 Location: Colorado

Thanks guys for the info. I don't know for sure what is going on. I need to be scientific about this: either take official tests or do a diet elimination test to know for sure.

My symptoms are neurological/muscular, so it could be gluten, but I didn't think that I had been glutened.

I wonder why things got worse for you after you went gf and your digestive tract could heal? Some of this stuff is certainly confusing and counterintuitive.

forinajoy · Joined: 01 Aug 2006 Posts: 277 Location: Texas

Ina has a severe reaction to any casein....she has neurological symptoms, as well as aches and pains and she also gets a mouth full of ulcers within a day or two....her neurological symptoms last for at least 4 days and start within a few hours of casein consumption .....she seriously cannot handle even a tiny little bit...she is just as intolerant to casein as she is gluten...we were told by the GI doc that after being GF for 3 to 5 years that she might be able to handle casein, but so far she cannot
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Connie, mom to Ina, 14 y/o with CD

nancw · Joined: 04 Oct 2006 Posts: 1172 Location: Denver, CO

voix · Joined: 10 Apr 2008 Posts: 160 Location: Colorado

Should one get the official blood testing on this stuff? Or should one do an elimination diet test?

Typically, what is the best course overall for this stuff? I don't know anymore.

I am pretty sure that it is not all dairy that I am reacting to. So it may be something else, all together.

I guess, I should buckle down and be strict about trying to pin point this, with a journal and careful eating to isolate suspected problems and not eat all of them on the same day. lol.

I am getting to the point were, if not eating out, I can feel pretty stable as far as gluten free eating and body is concerned. So, I can look to identifying anything else that there might be problematic.

Lots of work.

Thanks for your comments.

ostrich · Joined: 30 Mar 2006 Posts: 4941 Location: Nebraska

Remember: different dairy products have different levels of casein in them. So you might react to some, but not others.

If you're feeling better by staying away from restaurants, then that's what I'd do. The food journal is also a good idea. As far as diet vs. diagnosis goes...that's up to you. It's more of a personal choice. Would you feel better with an official diagnosis?
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bob02 · Joined: 01 Sep 2008 Posts: 60 Location: Karachi

...we were told by the GI doc that after being GF for 3 to 5 years that she might be able to handle casein, but so far she cannot.

Are you saying that she is allergic to casein due to Gluten? AND if she leaves eating gluten,she will be able to take diary.

forinajoy · Joined: 01 Aug 2006 Posts: 277 Location: Texas

From what I understand...the damaged villi (caused by the celiac disease), prevents her from properly absorbing casein....the tips of the villi is where the casein metabolism begins...so after 3 to 5 years, hopefully, the villi will be completely healed and she can properly absorb/metabolize the casein...so at this time we can try and see what happens...the tests that we had done that showed casein intolerance will not be accurate to redo if she is not consuming casein...we tried casein 2 years ago and within a few hours she was very sick....she is really wanting to try again and we may try this summer...I have to set aside a week when it is ok for her to be sick.... just in case....she has high hopes and I hope that she is right!
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Connie, mom to Ina, 14 y/o with CD