Neuropathy, Deficiency????

[aorta]

I have symptoms of sensory neuropathy, burning feet, arms, tingles, vibrations, muscle twitches, spasms, etc.
I was wondering if anyone had this and at least improved this part of the problem.
How did you re-nutrient yourself? Any particular nutrients or brands?
How long did it take to improve.


thank you

[aklap]

Hi Aorta,

Sorry, I ran out of time on my other post to you and did not cover the PN.

PN can be caused a host of things...Diabetes, heavy metal poisoning, auto-immune problems, B12 deficency,CD, etc etc. I can't even remember all the tests I went thru for my PN. In 70-80% of the cases they find no cause - as in my case. I did not find total resolve of my neuro sx's once gluten was removed. Gone were the "bee stings" and the vibrating. I still have burning, tingling, numbess & twitching. I found a bit greater relief going on a casein reduce diet. I have not pulled the trigger on going casein free. Magnessium helps with the twitching & cold hands/feet. I also take a B-complex & B12 sublingual. There are a whole host of other supps you can take - check out the Braintalk PN board below.

CD or gluten can cause PN. Both because of nutritional def. & because of the neurologic effects of gluten.

Here is some of the best info on PN & Gluten:
Neurological Manifestations Of Gluten Sensitivity

Peripheral Neuropathy and Gluten Sensitivity/Celiac Disease

Here's some info on the nutritional info:
Nutritional Considerations and CD

Braintalk PN board: http://brain.hastypastry.net/forums/forumdisplay.php?f=206
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

[aorta]

Im sorry to hear this didnt resolve. you seem to have done the bloodwork checks, did you also do full spinal mri, eeg and those tests?

I checked out enterolabs, looks like 169 minimum, for the gluten sensitivity and malabsorption test.
Celiac it seems like many other things comes down to a leap of faith. Something im not very good at.
In other words, you cant really prove you have it, or that you have stopped the other damage, much like lyme disease where you cant be sure the test was accurate, or whether the antibiotics cured it, and you pretty much go by symptoms.
I should probably throw the notorious "candidas" in there. Very few medical doctors believe in candidas infection of the intestines except for very extreme cases, yet there are labs that can supposedly detect it in your stool, the doctors say those tests are rip offs. Leaves one in nowhereland.

Ive got everything on the line, i wish i could believe something.

thanks

[Judy]

My husband has neuropathy from diabetes and there is really nothing to make it better. He takes Neurontin to help with the tingling, but beyond that - there's nothing. It seems to be worsening, but we're not sure if its the diabetes or the celiac.
_________________
Judy

[aklap]

Hi Judy,

More than likely it's from his DM. But maybe he'll see an improvement now that he's GF. He really should consider taking the B12 & B-complex supps, probably Alpha Lipoic Acid (this is used in Europe to treat PN) plus others. From what I remember at the time I was researching my PN - B supps were shown to help no matter what the cause.

You might want to poke around the PN site too.
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

[aorta]

Al, so what is your story?
You seem to have celiac and PN, how did this manifest itself?
did you have g.i. problems, then pn, or how did it happen.

thanks
ao

[aorta]

One odd thing about my paresthesia is that it started up in a flash so to speak.
I had the bowel symptoms for a month or more, took the pentasa, (if its related) which increased my bms, then had a pain left shoulder blade, woke up with partially numb arm, then the side of my leg which moved to my feet. It was either painful or very unpleasant from day one, not a gradual tingling that increased. At the time, i thought it must be the drug, but i have the symptoms still a year later after stopping. Then i thought the drug pushed me over the edge, blew out my electrolytes or something, but nothing shows up on blood work, nor do supplements seem to help.

[aklap]

[aklap]

[aorta]

Thanks Al. All that testing and no reason for you neuropathy, ridiculous.
Do you have painful sensations, or is it all numbing loss of feeling?

Dont you think its odd that mine started and remained basically the same for over a year, in one night? I would think that alone would give a doctor a clue, i dont believe ms, or many other neuro diseases start like gangbusters like that.

Then there is the intestines. When i went into the hospital for the colonoscopy, i had been deathly ill, stool with blood, mucous galore, burning pains in different spots of my intestines, belching and nauseous from a drink of water. I was dumbfounded when he told me it all looks perfect.

So now im at your basic nervous breakdown situation. I feel terrible all day every day for over a year. Both the bowels and the buring in my limbs makes me very anxious to the point that i feel like my heart will explode or something. And nothing gives me relief for any of the problems.Taking Pamelor, xanax, unfortunately.

Gluten? i dont know, again the bowel thing started like gangbusters, and a month later all this nerve pain. It hurt to take a shower.
I have no trouble eating gluten free, but ill have to check out my vitamins, toothpaste, medications, and i dont know if i can ever use my own utensils. If i knew it was the cause of all this, i could wear a paper bag on my head and eat nothing but spinach, but i dont know for sure.

Ive had a guy helping with the business ive owned for 15 years. As of today, he quit and i am without answers for a driver. Im incapable of doing that heavy work myself anymore, so yet another ultimatum.
Got a great wife and daughter, and im depressed that iam not able to recover from all of this and save our income.

thanks al.