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aklap
Joined: 02 Oct 2004
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Location: WI, USA
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jeant
Joined: 06 Apr 2008
Posts: 290
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 Posted: Mon May 11, 2009 9:46 pm Post subject: |
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| aklap wrote: | | According to her website, she figured it out on her own at first - then official dx'ed by Dr. G [since we're being all hip now and abbreviating all G words...]. |
Apparently she had the gene test. She did not do a gluten challenge or have a biopsy, but I suppose the gene along with the response to the diet was enough for her doctor.
She also says she will have her kids tested "down the road", and that for now the treats she gives them are gluten-free because she thinks "they’re better for them."
| The Edifying Conscience wrote: | | Can the facts be given to her in 140 characters or less? |
Someone could ask her if she is going to respond to the open letter from the Celiac Disease Foundation.
| aklap wrote: | | I really don't understand the reasoning behind this. Who cares if it looks like you've eaten half of your dinner? If you've done the work ahead of time, you maybe could've had a GF meal - specially at the White House. |
That's what I was thinking -- that the White House chefs of all people should be able to manage a GF meal. Even the worry of cross contamination is better than eating a whole GF meal on purpose.
Last edited by jeant on Mon May 11, 2009 9:48 pm; edited 1 time in total |
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The Edifying Conscience
Joined: 29 Aug 2005
Posts: 3000
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| Posted: Mon May 11, 2009 9:46 pm Post subject: |
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I don't think that's her Facebook page but rather a fan page. The email address is a school address.
I could be wrong though. |
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aklap
Joined: 02 Oct 2004
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Location: WI, USA
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| Posted: Mon May 11, 2009 9:47 pm Post subject: |
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Probably...you could get away with posting links probably. I have not ventured into twitterland yet. Facebook is enough for me.
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Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa
Last edited by aklap on Mon May 11, 2009 9:50 pm; edited 1 time in total |
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aklap
Joined: 02 Oct 2004
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Location: WI, USA
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| Posted: Mon May 11, 2009 9:48 pm Post subject: |
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| The Edifying Conscience wrote: | I don't think that's her Facebook page but rather a fan page. The email address is a school address.
I could be wrong though. |
You are correct - I reworded my post. It's just a fan page. I didn't see an actual FB page for her. Her Hubby has one however
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Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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aklap
Joined: 02 Oct 2004
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Location: WI, USA
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| Posted: Mon May 11, 2009 10:02 pm Post subject: |
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| jeant wrote: | | Apparently she had the gene test. She did not do a gluten challenge or have a biopsy, but I suppose the gene along with the response to the diet was enough for her doctor. |
So...will it require a gold std dx for anyone disseminating info about CD/GF? If that's the case...I better stop posting on the discussion boards and turn over my support group to highest ranking "goldie" 
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Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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The Edifying Conscience
Joined: 29 Aug 2005
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| Posted: Mon May 11, 2009 10:06 pm Post subject: |
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| aklap wrote: | | I have not ventured into twitterland yet. Facebook is enough for me. |
I LOVE Twitter! Use it as my personal, 140 character diary several times per day. Textwit myself! |
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The Edifying Conscience
Joined: 29 Aug 2005
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| Posted: Mon May 11, 2009 10:10 pm Post subject: |
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| aklap wrote: | | So...will it require a gold std dx for anyone disseminating info about CD/GF? If that's the case...I better stop posting on the discussion boards and turn over my support group to highest ranking "goldie" |
That concept is really tired. |
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jeant
Joined: 06 Apr 2008
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| Posted: Mon May 11, 2009 10:26 pm Post subject: |
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| aklap wrote: | | So...will it require a gold std dx for anyone disseminating info about CD/GF? If that's the case...I better stop posting on the discussion boards and turn over my support group to highest ranking "goldie" |
I didn't mean it like that at all! I was just pointing out that she had the gene test and not a biopsy and that that was enough for her doctor. As I understand it, some doctors will diagnose on response to the diet only, she had that and the gene test. |
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aklap
Joined: 02 Oct 2004
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Location: WI, USA
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| Posted: Mon May 11, 2009 11:50 pm Post subject: |
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| jeant wrote: | | aklap wrote: | | So...will it require a gold std dx for anyone disseminating info about CD/GF? If that's the case...I better stop posting on the discussion boards and turn over my support group to highest ranking "goldie" |
I didn't mean it like that at all! I was just pointing out that she had the gene test and not a biopsy and that that was enough for her doctor. As I understand it, some doctors will diagnose on response to the diet only, she had that and the gene test. |
I know Jean - it was not directed at you. Thanks for clearing up her diagnostic method. It's good to see that people are getting a dx based on resolution of symptoms [yeah and the gene thing].
I must say Ms. Monarch's overall tone in her communique was back-seat driving my comment. Then again, maybe I still have a bad taste in my mouth from UCCDC's talk at Thrive...
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Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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aklap
Joined: 02 Oct 2004
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| Posted: Mon May 11, 2009 11:53 pm Post subject: |
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| The Edifying Conscience wrote: | | aklap wrote: | | So...will it require a gold std dx for anyone disseminating info about CD/GF? If that's the case...I better stop posting on the discussion boards and turn over my support group to highest ranking "goldie" |
That concept is really tired. |
As am I, in many ways and on many levels.
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Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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rpf1007
Joined: 13 Feb 2008
Posts: 832
Location: Chicago
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| Posted: Tue May 12, 2009 1:42 am Post subject: |
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I can't believe I missed so much in this thread in one day!
I think it would be good to contact her. I obviously haven't read the book either, but from the quotes that Colleen gave (nice post Colleen!), I feel like she is really playing down the seriousness. It worries me that she is seems like she is advocating cheating in certain situations. I just feel since she is so public, she can do a lot of damage. People already think that I am "overly cautious"...that I must be ridiculous to be scared to eat out. This type of thing from someone so well known is going to re-inforce those beliefs. Maybe restaurants won't feel the need to be overly cautious...I mean if EH can eat a completely unsafe meal and feel fine then why would they have to be so cautious?
If she wanted to write a bio type of thing in which she talks about the benefits she has had to her health by adhering to a gf diet...then great. But putting all this "info" in....well, it is just frightening.
I guess I'll have to wait until it hits the libraries to read it because I don't want to support it and buy it...and I agree with Caroline, I would have to read it all myself before I contacted her.
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cardine45
Joined: 15 Apr 2008
Posts: 586
Location: Kalamazoo, MI
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| Posted: Tue May 12, 2009 7:06 am Post subject: |
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| rpf1007 wrote: | | I guess I'll have to wait until it hits the libraries to read it because I don't want to support it and buy it...and I agree with Caroline, I would have to read it all myself before I contacted her. |
I'll be going to the library tonight, and I doubt if they have it yet, but I'm going to check.
I refuse to support it by buying it if it's full of misinformation, but I also refuse to tear it apart without having the facts. I will tell her as much when I contact her also (in a nice way). |
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ostrich
Joined: 30 Mar 2006
Posts: 5109
Location: Nebraska
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| Posted: Tue May 12, 2009 7:33 am Post subject: |
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Thread exploded liek woah.
| cruelshoes wrote: | | But the kicker for me is on page 113. She has a way of dealing with social dinners if the meal is unsafe. Her husband sits next to her, and starts his meal. Halfway through, she surreptitiously switches plates with him and so it looks like she has eaten half her dinner. OK, so far so good, I actually think that’s a fine idea. Well the problem is when she was supposed to go to the White House to eat. She and her husband were unexpectedy seated at separate tables. So what did she do? She says she ate every bit of that gluten food, and then gloats that she “felt no pain afterward. My adrenaline completely eclipsed my tummy troubles on that once in a lifetime opportunity.” Wha?!?! |
I....don't even know how to respond to this properly. She can't possibly be serious, can she? She's actually advocating this sort of thing to people?!
Not to be a stick in the mud, but the book's already published. Us complaining that it's inaccurate isn't going to change the print (or her opinions). However, if we make a big enough stink about how awful the book is we might catch some noobs before the buy into this junk.
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cardine45
Joined: 15 Apr 2008
Posts: 586
Location: Kalamazoo, MI
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| Posted: Tue May 12, 2009 7:59 am Post subject: |
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| ostrich wrote: | | Not to be a stick in the mud, but the book's already published. Us complaining that it's inaccurate isn't going to change the print (or her opinions). However, if we make a big enough stink about how awful the book is we might catch some noobs before the buy into this junk. |
Many authors have been known to do reprints, or to announce inaccuracies in their work. I agree that catching some noobs is just as important, if not more so considering most people have a hard time admitting they were wrong (especially when they're famous). |
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