Casein, lactose, dairy???

Deb · Posted: Sat May 30, 2009 6:13 am Post subject: Casein, lactose, dairy???

Viox's thread has me thinking. As you all know, I am free of so much now. Dairy was never a problem for me until several months ago. March 08, I gave up ice cream, not so much because I thought it was bothering me, but because I wanted to lose weight. Although, it did seem, when I ate ice cream, I always started coughing. I had been glutened that January by an OTC med, and was sick for months, lost 30#. Then, that wieght came back, very upsetting. In that time though, it became apparent that dairy was now becoming a problem. Occasionally, I would eat an ice cream bar, if I ate 2, one day after the other, problems began...no more ice cream. Then my cottage cheese became a problem, next was yogurt, which I never liked anyways. I still could deal with milk in my coffee, and cheese.

This Jan I decided I had had it with the weight and started exercising. In Feb, I was diagnosed with chronic fatigue, and have not stopped exercising since that day. I know if I stop, I will not start up again. I have lost nearly 30# now, yet am suffering with constipation. I stopped eating peanut butter about 6 weeks ago. In the mean time, we had the Suffolk County Celiac Vendor Fair, and I ate a few things I should not have, and it takes weeks for me to recover. I know, I DO KNOW BETTER!!! Finally, I think I am getting back to some kind of normal, yet the constipation is a problem.

Is it the cheese? I decided to go back to peanut butter, just maybe a tablespoon or so a day with my apple, I'm wondering if the peanut butter aids in my digestion, it's the only oil I get in my diet. I drink 3 bottles of water a day, I thought that would help, yet it doesn't seem to be. I had been eating around 2 ounces of cheese a day. Maybe like one of you told me, I have to give up the cheese. I am down to 1 ounce of cheese..it's hard, I have given up so much, and am dragging my feet on the cheese.

Just remember, I am grain free (except for Glutino Pretzels, which I don't think bother me, they contain rice starch and potato starch, no flour otherwise), nightshade free, cruciferous veggie free, red meat free. I do best with chicken breast, some fish, peas, carrots, green beans, apples, and pears.

Any thoughts?
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You can't discover new oceans unless you have the courage to lose sight of the shore!

sherry · Joined: 28 May 2009 Posts: 6

Hi Deb,

I just read ypur post and I am curious as to how you're doing.
I have terrible constipation myself. Haven't been dx but tested positive for wheat allergy and have a CD daughter. Trying to stay GF and dairy f has been hard as I have many food cravings and seemed to crave the whaet which is poisonous to my body.
Would love to know any new discoveries you've made on your journey.
-sherry

Deb · Posted: Sat May 30, 2009 6:16 pm Post subject:

I have been gluten free for nearly 9 years. I had been so sick, for so long, that giving up gluten was not a problem for me. Anything that would make me feel better was ok with me. I have never craved gluten. Some of the other things I have had to give up, were not so easy. I still want mashed potatoes, and cruciferous veggies. I love cabbage, broccoli, cauliflower, and such, but they do not love me, so I stay away.

Not much help for you, am I? You just have got to set your mind to the fact, gluten is poison. It's normal to crave it, it's something you can't have, so of course, you want it!
_________________
You can't discover new oceans unless you have the courage to lose sight of the shore!

sherry · Joined: 28 May 2009 Posts: 6

You just have got to set your mind to the fact, gluten is poison. It's normal to crave it, it's something you can't have, so of course, you want it!
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Deb,
you're so right that's the simple fact and principle I must adapt in order to heal. My stomach has been sore and painful, shortness of breath and water retention. Its to the point where I am ashamed of myself because I know what's causing my symptoms and yet I haven't been able to totally eliminate it from my diet.
This forum is helping to strengthen my outlook and I think I will be successful this time.
Did the cruciferous veggies cause you gas -Would you mind sharing with me on what do you eat that keeps you healthy and satisfied?
Thank you. _Sherry

Deb · Posted: Sun May 31, 2009 6:52 am Post subject:

celiacmaine-iac · Joined: 19 Dec 2007 Posts: 1353 Location: Maine

Deb · Posted: Sun May 31, 2009 10:40 am Post subject:

My sister told me how good she thinks the Sunsweet Dried Prunes are, so I bought some yesterday. They aren't bad. The only sugar in them is the natural sugar from the plum, nothing added.

I am on an extremely lowfat regimen, not necessarily on purpose. I find too much sugar is bad for me, I was even diagnosed pre-diabetic, so I am careful. I do eat the Dole fruit cups, but always in light syrup, have my whole life. My doctors tell me I am in wonderful shape, will live another 50 years. I have my PCP, whom I saw in Feb, my sleep doctor, and my neurologist, whom I will see Tuesday. I had an eye exam a few weeks ago, and he prides himself on finding any thyroid problems, cholesterol, heart, and such...said everything looks good...he's my boss. Everything I have learned, I have learned online, just like many of us do. When my Vit D came back at 25, my doctor told me it's well within the normal range..so, because of people here, and the Vit D council, I take Vit D now. I have been taking B12 for over 4 yrs now, not because of a doctor, but because of others online who know it works, and it does. We have to ask questions of others in our fix, they know what works for them, and advice is always good here.

Avocado's Confused

I have never liked them! Nuts I may beable to handle, olives I think may be pushing it. I do not eat much of anything processed. I'm gonna see what happens without cheese.

Thank you.
_________________
You can't discover new oceans unless you have the courage to lose sight of the shore!

sherry · Joined: 28 May 2009 Posts: 6

Thanks Deb for a nice response.
MY daughter needs to be gluten and lactose free and she's A-okay. She's also a teenager, 18 years old and very slender. I on the other hand am 40 ish, 277 lbs and reacting to multiple things.

I can tolerate rice in a small amount but a regular serving of Rice and cruciferous vegs both cause gas and constipation.
Dairy in any form = sinus congestion, excess phlegm/mucus and dermatitis H.

Keeping a gluten free household is my dream especially now that Im divorced and no longer need to consider the needs of my gluten eating ex.
Definitely staying with wholesome choices (chicken, turkey, fish, lean meats, any fruit and vegs that I know agrees with me) is the safest route.
However, the safest route is the one where I need the most encouragement b/c I get the most cravings and feel like Im getting out of my skin. I read somewhere on the forum that I need to remain consistent for about 2 weeks and then the cravings will go away.

I am dedicated to doing this. My dr. put me on a diet mostly for weight loss and cholesterol, but she is not very knowlegeable about celiac/gluten intolerance or my bowel experiences. My gastro told me to avoid chocolate, coffee, greasy foods, eating late etc. and take Prevacid.

I will stay on this Absolutely Wonderful forum for support, keeping informed and sharing. What's a good multi vitamin to take and what type of B12 do u take?

Deb · Posted: Sun May 31, 2009 4:56 pm Post subject:

I take NatureMade Woman +50...there are other good ones, yet I know this one is safe for me, so I stay with it. My B12 is Jarrow Methylcobalamin Sublingual, from Iherb.com. I would start out with 1000mcg, and build up from there.

When I went gluten free, nearly 9 yrs ago, I probably weighed the same as you. I lost 60# in the beginning. Once you get away from the gluten, away from breads, and such, it will happen for you too. At the time, I had 3 kids at home still, none of them gluten free. It's easier for me now because I live alone, and only keep the things in the house that I can have.

I sent you a private message.
_________________
You can't discover new oceans unless you have the courage to lose sight of the shore!

Kathie · Joined: 27 Jan 2006 Posts: 1018 Location: Florida

Deb are you taking any type of fish oil supplement? Besides the health benefits from the omega's it would also be additional oil. I just switched to Oceans 3, its a lot more expensive than what you can get at regular stores but I haven't had any trouble at all with the fishy burps you usually get, even when I take them in the morning and then don't get to eat anything right away.
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CD by Biopsy 3/25/88

smalltownslackermom · Posted: Mon Jun 01, 2009 1:53 pm Post subject:

This seems like a fine thread to ask about coconut oil - anyone eat it?
I started eating it about the same time I weaned myself off of wheat and it really has recently helped me with my dairy cravings, well, it and coconut milk. I think it made quite a difference - for the first few weeks you eat it a lot of people get a metabolism boost so you feel more energized and it's supposed help with weight loss initially. some of the research available at nat'l instute of health if you're curious:
http://www.ncbi.nlm.nih.gov/pubmed/19437058?ordinalpos=2&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum
http://www.ncbi.nlm.nih.gov/pubmed/18845704?ordinalpos=43&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum
http://www.ncbi.nlm.nih.gov/pubmed/18326600?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpos=1&log$=relatedarticles&logdbfrom=pubmed
I continue to eat it off and on, basically I'll use it in some cooking and some mornings I melt a bit to pour over a mix of nuts and seed to eat as sort of a cereal. Real fanatics attribute a bunch of things to the fatty acids in it not the least of which is pertinent here: helping to heal the intestine. I don't know about that one per se, but if there is research to back it up that could be really cool.
and ditto on the fish oil or omega-3s. I get a big bottle of fish/flax/borage oil capsules at Sam's club - sometimes tho I do get the burps but it's not quite as bad as the pure fish oil caps.
_________________
son - high ttg - 4/09, pos. biopsy 5/09
self - negative blodwork 5/09, pos. biopsy 11/09
sister - gf for 2 years and is a new person

Deb · Posted: Mon Jun 01, 2009 6:56 pm Post subject:

I do not use fish oil..I tried it and it made me sick. I can't have shellfish, nor soy...most brands have one or the other. Flax makes me feel ill too. Too much oil isn't good for me, yet maybe like many have said, I have too little now. That happy medium is trying to evade me! Wink

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You can't discover new oceans unless you have the courage to lose sight of the shore!

smalltownslackermom · Posted: Tue Jun 02, 2009 8:23 am Post subject:

There are small capsules of omega-3s available and also gummies for kids and people who can't swallow pills. The gummies are pretty good! That's what I give my son. Maybe those wouldn't upset your tummy so much? also you could take just a little bit then with a meal and maybe it would sneak through? those fish-oil burps from the mega-giant capsules are so disgusting. I also sneak walnut oil into ds's pancakes and sometimes a squirt of flaxseed oil. It's not a lot but I figure since his celiac has been active for a couple of years at the least, he needs whatever he can get.

How is your fish consumption, do you get the same effect? sardines? salmon? How about walnuts? walnut oil in salad dressing? or actually sprinkling a little ground flaxseed onto foods? You can toast the raw ones, they pop in the pan kind of like popcorn. and then mix that with hot water and a bit of honey for a tasty drink tho the texture is a bit weird. Maybe the happy medium is sneaking little bits into yourself thru the day?

I gotta say that getting enough fatty acids incl. omega-3s was a HUGE health changer for me so I am a bit fanatic. Pardon me if it's overbearing. Oils were the start of how I figured out I was gluten-intolerant - it was like "why are these oils doing me so much good? Am I not absorbing fats from my diet?" etc...

I also do oil-pulling which might be a possible way to get fatty acids without swallowing them in case that would help. It's an ayurvedic practice, basically an oil mouthwash first thing when you get up in the morning. There's a little official research that it kills plaque which is of course a good thing. but the weird thing is it did a lot of other stuff for me. It seems to me that there must be some sublingual absorption going on. There are enzymes in our saliva that start breaking down starches and fats before they hit the stomach and sublingual delivery is a very efficient means of getting stuff straight into us, bypassing the digestive process - that's why we see more medicines being developed into "melt in your mouth" mediums. Med research is trying hard to get opioids delivered sublingually because it would be so much faster than pills and safer than needles or IVs in the proper does of course. (then there's the whole chewing tobacco, nitro pills for heart attacks and vit B-12 cases)

The thing is just to try it for a few days and see if you get improvements in joint pains, skin tone or energy levels. Those are I think some of the obvious benefits that happen early on. If it doesn't work, then you still have a bottle of good sunflower or sesame or walnut oil (organics, cold pressed preferred for the lack of unwanted chemicals) in your kitchen to cook with, kwim? when I first tried it I was skeptical but it's sort of a WTHeck thing - nothing to lose. a couple teaspoons in your mouth before breakfast for as long as you can up to 20 minutes and then spit it out, in the kitchen trash so as not to clog your drains.
:::now waiting for the expected "you're a wacko" comments:::
_________________
son - high ttg - 4/09, pos. biopsy 5/09
self - negative blodwork 5/09, pos. biopsy 11/09
sister - gf for 2 years and is a new person

Deb · Posted: Wed Jun 03, 2009 6:01 am Post subject:

I guess I need to give in and try fish oil again. Maybe a kids dose would be easier on me. I just don't know anymore. I am tired of dealing with it all, can I take a break? Wink

I can say though, I stopped eating cheese about 5 days ago, and I do think I am doing better. I haven't given up milk in my coffee yet, maybe in a few weeks. I go on vacation next week, driving to Michigan (800 miles) and I don't want to be experimenting during that time.
_________________
You can't discover new oceans unless you have the courage to lose sight of the shore!

smalltownslackermom · Posted: Wed Jun 03, 2009 7:50 am Post subject:

Let me know if you ever happen across a good non-dairy creamer that's GF. I've been using soy milk which is ok but, you know, it's not cream. I figure someone ought to be making a really rich yummy one that's not full of evil ingredients, I just haven't found it yet. the holy grail of creamers...

google /nutrition now rhino gummy omega\ for the ones my son is currently taking
or /nordic naturals children's omega\ for a non-gummy type that is small and as defishified as they could with lemony flavoring.
hth
_________________
son - high ttg - 4/09, pos. biopsy 5/09
self - negative blodwork 5/09, pos. biopsy 11/09
sister - gf for 2 years and is a new person