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WizardTom
Joined: 15 Jul 2006
Posts: 26
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 Posted: Mon Sep 04, 2006 2:05 am Post subject: |
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| WestWalker wrote: | I definitely was not overweight.
I was always very thin and able to eat anything I wanted (I thought). I ate alot all the time and never gained any weight. Great for the taste buds but bad otherwise. I never really was hungry and could go with out food with no problem. Everyone always made comments on how skinny I was and that I looked like death (I thought the comments were kinda cruel myself  )
Since dx I have gained 40 lbs and now I feel really over weight. Plus I never really felt hungry before but since last Feb I am starving all the time!! All I want to do is eat and that is all new to me. It seems nothing satisfies this need for food. Once I find something that tastes good and is GF I will eat the whole package or the whole CHICKEN! I found this GF salsa I liked at Safeway (no less) www.greenmountaingringo.com and couldn't stop eating the stuff. I'm trying not to eat processed foods right now but I give in now and then to make life bearable.
Anybody up for a snack?  |
Same for me. Everyone is constantly telling me how skinny I am. I can eat all I want without gaining. I weighed 143 last year this time but it was during the last year that my symptoms increased heavily up until about two months ago when I went GF... at that time I had already lost 13 lbs (I'm 6'1"). My ideal weight is 145-150. I'm hoping that healing my intestines through GF diet will help me to absorb more and gain weight. |
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skyeofblue
Joined: 09 Nov 2007
Posts: 33
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| Posted: Sun Dec 23, 2007 5:14 am Post subject: Weight Gain - when glutened |
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I am a diagnosed celiac and react to gluten in a very different way than "the typical" celiac or gluten intolerant person.
I gain a significant amount of water weight and look like I am suffering from edema. My face, arms, legs, middle, feet and hands all swell. When I get glutened I can not wear my wedding rings with in a matter of 40 - 60 minutes. I am 5'5" female, and before I got really sick I was 140 lbs. I started to have abdominal distention and water retention anytime I ate gluten. I would go from 140 pounds to 148 pounds in 48 hours. I seriously looked 6-7 months pregnant and would go from a size 6/8 to a 12/14 in just a few days. As the symptoms got worse the more weight I gained. I ended up around 171. I went gluten free before and lost all of the weight in about 6 weeks, and kept it off until I started accidentally glutening myself, and went in for a gluten challenge inorder to test for Celiac Disease. In 5 weeks I gained all 31 pounds back. I have been GF after my diagnosis 2 and a half weeks ago and I have already lost 12 pounds.
The doctor told me it was because I was retaining water, and it was easier to loose than fat, so it packs on faster and comes off faster. I do not think that this is a typical reaction, but it is my MAIN symptom of Celiac disease. - Dont know if this helps? |
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soutram
Joined: 02 May 2008
Posts: 46
Location: Montreal, Quebec
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| Posted: Thu Jul 31, 2008 7:37 pm Post subject: |
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I gained weight I think because of not eating properly and listening to my body. I also craved the carbs which my body was rejecting. Strange as it sounds. I have been trying to live gluten free, but I am learning about many of my mistakes and poisonings from this site therefore correcting myself. I lost thirty pounds in less than two months, but since I have had a few mistakes happen recently on vacation (cross-contamination I am sure of it), I have gained ten pounds in a couple of days and look 7 months pregnant from being so distended. I think as I stay gluten free I will continue to lose weight as my body was/is reacting well to the gf diet.
I am waiting for the kit to do the at home stool test from Dr. Fine. I am anxious to know what the results will be.
I live in Canada and have had a very hard time getting an appointment with a GI. I finally got an appointment for Oct 22. I am so excited.
What I find hard is that I wonder at times if I am crazy. The pain gets so intense it doesn't seem like it can be from a crumb... Yikes....
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Sue
Gluten free since May 2008 |
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GlutenFreeFeroni
Joined: 28 May 2009
Posts: 12
Location: Syracuse, NY
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| Posted: Tue Jun 02, 2009 12:15 pm Post subject: Re: Weight Gain - when glutened |
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| skyeofblue wrote: | I am a diagnosed celiac and react to gluten in a very different way than "the typical" celiac or gluten intolerant person.
I gain a significant amount of water weight and look like I am suffering from edema. My face, arms, legs, middle, feet and hands all swell. When I get glutened I can not wear my wedding rings with in a matter of 40 - 60 minutes. I am 5'5" female, and before I got really sick I was 140 lbs. I started to have abdominal distention and water retention anytime I ate gluten. I would go from 140 pounds to 148 pounds in 48 hours. I seriously looked 6-7 months pregnant and would go from a size 6/8 to a 12/14 in just a few days. As the symptoms got worse the more weight I gained. I ended up around 171. I went gluten free before and lost all of the weight in about 6 weeks, and kept it off until I started accidentally glutening myself, and went in for a gluten challenge inorder to test for Celiac Disease. In 5 weeks I gained all 31 pounds back. I have been GF after my diagnosis 2 and a half weeks ago and I have already lost 12 pounds.
The doctor told me it was because I was retaining water, and it was easier to loose than fat, so it packs on faster and comes off faster. I do not think that this is a typical reaction, but it is my MAIN symptom of Celiac disease. - Dont know if this helps? |
HA! This is almost me to a "T".
Everyone who knows me always knew when I had eaten gluten. I swelled up like a balloon and definitely looked pregnant. I looked more pregnant with Gluten than I did when I was ACTUALLY 5 months pregnant! It's so incredible to me that - as someone else said - "a crumb" - could be responsible for that. I remember way before diagnosis thinking that food in general just did not work for me. Because every time I ate - even a salad - I would bloat beyond belief. Unbeknownst to me, those salads all had Croutons on them! LOL
But yes, when I first went GF I lost a lot of weight without trying or thinking about it, and I wasn't really overweight to begin with. I was a borderline size 8 at diagnosis and I remember one day, many months later, shopping for clothes and going... "HOLY CRAP! I AM A 4? When did THIS happen?!?"
Crazy disease, I tell ya'. CRAZY.
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~ Nikki Feroni
Syracuse, New York
Diagnosed March 2005 |
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ErinElberson
Joined: 04 Sep 2009
Posts: 34
Location: Fort Lauderdale FL
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| Posted: Sat Sep 05, 2009 5:19 pm Post subject: |
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Whether celiac or not, losing fat is dependent on expending more energy when you take in. Unfortunately there still is no magic bullet. I have found trying to keep my diet to naturally gluten free foods is a big help. Unprocessed foods are wonderful, and can be very flavorful. There are many choices that are naturally gluten free without succumbing to the ever-widening variety of gluten free pastas and baked goods!
Be well,
Erin
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smalltownslackermom
Joined: 04 May 2009
Posts: 171
Location: mid north american continent
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| Posted: Sun Sep 06, 2009 8:29 am Post subject: |
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| ErinElberson wrote: | | Whether celiac or not, losing fat is dependent on expending more energy when you take in. Unfortunately there still is no magic bullet. I have found trying to keep my diet to naturally gluten free foods is a big help. Unprocessed foods are wonderful, and can be very flavorful. There are many choices that are naturally gluten free without succumbing to the ever-widening variety of gluten free pastas and baked goods! |
I agree that being naturally GF is a big help too. But I agree partially because losing fat is somewhat dependent on what and how you eat because of hormonal response - it is not always a simple "calories in calories out" equation. That old equation is a good rule of thumb but if calories-in are high-glycemic (refined carbs and high carb foods, many GF carb products), they will trigger a greater output of insulin and therefore more of a storage response rather than a usage response. Some of this is going to vary from person to person but I think it's worthy to keep in mind that higher quality of food can be a BIG help in weight loss AND health outcome. So if you replace those high carb GF foods with good veggies, root veggies, whole quinoa, buckwheat, etc... you are also changing the endocrine response inside your body.
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son - high ttg - 4/09, pos. biopsy 5/09
self - was GF about a year, tried gluten challenging as of 5/09, too sick, stopped... so I'm "intolerant"
sister - gf for 2 years and is a new person |
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ErinElberson
Joined: 04 Sep 2009
Posts: 34
Location: Fort Lauderdale FL
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| Posted: Sun Sep 06, 2009 12:29 pm Post subject: |
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| smalltownslackermom wrote: | | ErinElberson wrote: | | Whether celiac or not, losing fat is dependent on expending more energy when you take in. Unfortunately there still is no magic bullet. I have found trying to keep my diet to naturally gluten free foods is a big help. Unprocessed foods are wonderful, and can be very flavorful. There are many choices that are naturally gluten free without succumbing to the ever-widening variety of gluten free pastas and baked goods! |
I agree that being naturally GF is a big help too. But I agree partially because losing fat is somewhat dependent on what and how you eat because of hormonal response - it is not always a simple "calories in calories out" equation. That old equation is a good rule of thumb but if calories-in are high-glycemic (refined carbs and high carb foods, many GF carb products), they will trigger a greater output of insulin and therefore more of a storage response rather than a usage response. Some of this is going to vary from person to person but I think it's worthy to keep in mind that higher quality of food can be a BIG help in weight loss AND health outcome. So if you replace those high carb GF foods with good veggies, root veggies, whole quinoa, buckwheat, etc... you are also changing the endocrine response inside your body. |
Agreed that the hormonal milieu depends-to an extent. Again, as in everything, your mileage may vary dependent on the individual in question. Someone who is active, does weight training etc may be able to handle those higher carb foods, and would even be beneficial. The glycemic index also is based upon a flawed premise, that these particular foods are eaten by themselves, not as a mixed macronutrient meal. Bottom line is that you cannot get away from thermodynamics, regardless of endocrine response. But I absolutely agree that root vegetables, quinoa, higher quality choices etc are good choices-in fact that was the point of my post. Naturally gluten free foods in general are superior to processed and created to be gluten free foods.
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smalltownslackermom
Joined: 04 May 2009
Posts: 171
Location: mid north american continent
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| Posted: Fri Sep 11, 2009 3:04 pm Post subject: |
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"Bottom line is that you cannot get away from thermodynamics, regardless of endocrine response."
Yes, well I wish I could get away from endocrine response and go back to straight thermodynamics. I have fine enough will power to reduce my calorie consumption but my body acts to not be just a machine of straight input and output. And I truly only offer up this info as a possible motivational tool for others since reaching for the "gluten free" cracker on the shelf is often reaching for white rice starch - I find it motivational to stay away from those foods knowing that they don't do my body any favors not only because they are often "empty calories" but also because they will not help my particular metabolic response. There are probably others like me around here.
Maybe it's similar to the documented lack of leptin response following consumption of high fructose corn syrup (good enough reason to me for staying away from that stuff though I generally have), maybe it's my cortisol levels? My thyroid and liver check out fine... whatever, it's what works for me and thinking about what I eat as more than just input-output helps me.
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son - high ttg - 4/09, pos. biopsy 5/09
self - was GF about a year, tried gluten challenging as of 5/09, too sick, stopped... so I'm "intolerant"
sister - gf for 2 years and is a new person |
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ErinElberson
Joined: 04 Sep 2009
Posts: 34
Location: Fort Lauderdale FL
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| Posted: Fri Sep 11, 2009 7:27 pm Post subject: |
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| smalltownslackermom wrote: | "Bottom line is that you cannot get away from thermodynamics, regardless of endocrine response."
Yes, well I wish I could get away from endocrine response and go back to straight thermodynamics. I have fine enough will power to reduce my calorie consumption but my body acts to not be just a machine of straight input and output. And I truly only offer up this info as a possible motivational tool for others since reaching for the "gluten free" cracker on the shelf is often reaching for white rice starch - I find it motivational to stay away from those foods knowing that they don't do my body any favors not only because they are often "empty calories" but also because they will not help my particular metabolic response. There are probably others like me around here.
Maybe it's similar to the documented lack of leptin response following consumption of high fructose corn syrup (good enough reason to me for staying away from that stuff though I generally have), maybe it's my cortisol levels? My thyroid and liver check out fine... whatever, it's what works for me and thinking about what I eat as more than just input-output helps me. |
Perhaps I wasn't clear. I absolutely agree with you that the white rice cracker may not be the best option. Also, I am not saying that metabolic/endocrine issues are NEVER the reason for lack of weight loss-but they are quite rare. And I certainly was not calling your willpower into question. What I have seen, is that people who may have thought that there was an underlying metabolic/endocrine issue, were in fact unintentionally eating at a maintenance level of calories, thinking they were in a caloric deficit. It's exceedingly easy to do, especially if you are a fairly light female with a generally lower metabolic rate. Water balance issues can confound weight loss to a large extent also. I have seen people who, when they get an idea of caloric expenditure (with a device such as the Bodybugg or Go Wear Fit); and weigh, measure, count and log every item that goes into their mouth so they have an extremely accurate picture of caloric output and intake, are able to lose weight when they never have been before. Sometimes something as innocuous as 2 tablespoons of peanut butter could keep you at a maintenance calorie level.
I hope this helps to clarify a bit-I certainly did not intend any offense. As far as metabolic issues and fat loss, you may want to check out Leigh Peele's website and ebook "The Fat Loss Troubleshoot", it goes into it in a bit of detail.
Be well
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gsygal09
Joined: 11 Sep 2009
Posts: 10
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| Posted: Sat Oct 03, 2009 4:41 am Post subject: |
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Hi there NoahsWife
Well done on the weight loss! We seem to be in a similar position...
Before I knew I was coeliac, I lost loads of weight, just because I didn't want to eat anything and didn't understand b/c I was just a kid. Then I went on the GF diet and gained back the lost weight...and more...
Then I lost it again after developing a lactose intolerance. I was stable then for a few months... until I fell off the bandwagon and started eating gluten (BAD GIRL!) and gained quite a few pounds...
Now I'm back GF and I find it is easier to lose weight. Very slowly I am trying to lose it...
Hope this helps to hear someone elses experiences with their weight. I know it drives me nuts! As for tips...well...I always find if I am going to gym regularly and cut out snacking I'm fine and can lose 2-3lb in a week. I try and stick to naturally GF foods and everytime I want to eat something naughty I think of what I want to look like and how horrible I look at my biggest! But to be honest, it can be a long hard journey...
Please let me know how you are getting on. 
Cheers
Gsygal
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'I arise in the morning torn between a desire to improve the world and a desire to enjoy the world. This makes it hard to plan the day.'
- E.B. White |
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kscolorado
Joined: 04 Nov 2008
Posts: 55
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| Posted: Mon Oct 26, 2009 3:13 pm Post subject: |
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Found this thread very interesting. I met a lady at a dinner a few weeks ago that looked fantastic. She is celiac and sought me out when she heard I would be there. She told me she used to way 150 pounds more but after diagnoses the pounds just kept coming off. Interesting how it all affects us differently. For me, I am a tiny person with stick thin legs. I only gain weight in my tummy area making me look like a bird! Now my tummy looks better because I've been exercising ect but when I get glutened if puffs up like I am 6 months prego!
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