Ummmm...you're kidding, right??

Gus's Mama · Joined: 29 May 2009 Posts: 175 Location: Boston MA

I had a chat with Gus's play group therapy leader yesterday about his new diet, and she assured me that she knew all about the gluten free diet, as her daughter has autism and was on it for 2 years (as she steered Gus toward the play-dough table Shocked

). I asked her why she's not on it anymore, and she replied that her daughter was doing so well they decided she didn't need it anymore, and they only reinstate it when she's not feeling well! Shocked

Then she looked shocked when I said Gus couldn't play with the play-dough, since it was made with wheat flour. "But he's not going to EAT it, is he??" she replied...and the glue sticks, too? Why can't he use the glue sticks?

Oy. I'm really glad this is a parent/child group, and I can keep an eye on things.

Wow.
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Deb
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SPD Little Boy, Gus: Getting better by the day! Improved digestion, skin issues clearing, able to focus and follow instructions, talking (the boy is TALKING!!!)

cruelshoes · Joined: 23 Sep 2005 Posts: 3555 Location: Washington State

I bumped a thread for you about GF play dough. Maybe you could provide some for your son to play with, provided he had his own space and play dough toys.

I learned from personal experience that play dough can and will make celiac kids sick. We won't be making that mistake again.
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-Colleen

Where are we going, and what am I doing in this handcart?

Gus's Mama · Joined: 29 May 2009 Posts: 175 Location: Boston MA

Thanks! I'll go check that out.
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Deb
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SPD Little Boy, Gus: Getting better by the day! Improved digestion, skin issues clearing, able to focus and follow instructions, talking (the boy is TALKING!!!)

beckyhiker · Joined: 25 Feb 2005 Posts: 88 Location: New York

Hi Gus's Mama, don't be surprised! You just won't believe the things that people say. My son is attending a small progressive school for 1st grade this year and the head of the school, who knows all about children and their education and health (!), said to me, "well, you could put him back on gluten by trying one thing at a time to see which he reacts to". Duh, what's the difference between the gluten in whole wheat bread and gluten in pasta or pretzels?? So much for all the material that I sent to them so they'd have an understanding of celiac disease and the gluten free diet! Oh, and at his IEP meeting we mentioned the gf diet and the woman chairing the meeting said that she knew all about the gf diet becaue her brother had just been diagnosed and was upset about the beer. "Good thing you can still drink beer if it's the type that comes in the clear bottles like Corona. Just so long as you don't over do it!" Am I missing something here? Shocked

aklap · Joined: 02 Oct 2004 Posts: 10968 Location: WI, USA

Gus's Mama · Joined: 29 May 2009 Posts: 175 Location: Boston MA

Wow, it's a good thing about Corona...now your school-aged child can have what he REALLY wants to drink at snack! Laughing

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Deb
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SPD Little Boy, Gus: Getting better by the day! Improved digestion, skin issues clearing, able to focus and follow instructions, talking (the boy is TALKING!!!)

aklap · Joined: 02 Oct 2004 Posts: 10968 Location: WI, USA

Hehehehe Yeah, makes for a quiet nap time!
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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

ostrich · Joined: 30 Mar 2006 Posts: 5100 Location: Nebraska

forinajoy · Joined: 01 Aug 2006 Posts: 277 Location: Texas

what cracks me up is when people learn that Ina has CD and I explain about gluten and mention barley and their eyes get real wide and they say "Oh No! she will never be able to drink beer!"...no mention of bread etc...lol...and not to mention that she is mentally retarded......like it will ever be appropriate for her to drink beer....lol...
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Connie, mom to Ina, 14 y/o with CD

GFPolarBear · Joined: 07 Mar 2007 Posts: 374 Location: WI

*bangs head on desk*

While I'm fortunate to be surrounded by fairly understanding people, I have run into more gluten-clueless people lately (the "a little bit won't hurt, right?" crowd)...must be something in the water. Rolling Eyes

Home-Based-Mom · Joined: 12 Aug 2008 Posts: 400 Location: California

luvscowznh · Joined: 23 Dec 2004 Posts: 421 Location: Groton, MA

beckyhiker · Joined: 25 Feb 2005 Posts: 88 Location: New York

Manda, don't count on them being clued in when the time comes! A good number of people say they know all about it and then their suggestions show...not so much!

Gus's Mama · Joined: 29 May 2009 Posts: 175 Location: Boston MA

Okay, I just read that Elmer's and Ross white glues and sticks are okay...can anyone corroborate that one? Confused

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Deb
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SPD Little Boy, Gus: Getting better by the day! Improved digestion, skin issues clearing, able to focus and follow instructions, talking (the boy is TALKING!!!)

beckyhiker · Joined: 25 Feb 2005 Posts: 88 Location: New York

Yes, I have read that about the Elmers and Ross's glue products. I have a printout right in front of me which I printed out about 5 weeks ago, but I can't remember from where. Also, I just checked and they are listed as gluten free in the Clan Thompson Everything Else 2009 booklet.