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smalltownslackermom

Joined: 04 May 2009 Posts: 287 Location: mid north american continent
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Posted: Fri Aug 21, 2009 12:02 pm Post subject: Did MD check celiac child for deficiencies? |
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Ours never did - neither the pediatrician nor the pediatric gastroenterologist.
I have a picky eater that I've posted about in the "Kids" area but since that is titled to be about food or faves, I thought I'd post here so I don't miss anyone's great input.
I'm concerned about iron primarily since ds doesn't eat much meat and no beans yet. He takes a multi but it is only 28% of RDA and I find it hard to imagine he is getting quite enough from his diet otherwise. We are supplementing B-12. I could ask about folate levels, right?
Anything else I should think about? _________________ son - high ttg - 4/09, pos. biopsy 5/09
self - negative bloodwork 5/09, pos. biopsy 11/09
sister - gf for ~3 years and is a new person
niece - positive ttg 2/10, foregoing biopsy |
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aklap

Joined: 02 Oct 2004 Posts: 10972 Location: WI, USA
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Posted: Fri Aug 21, 2009 1:13 pm Post subject: |
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Here's some info on Initial Assessment of CD...
Due to the nature of Celiac Disease, it very common to find nutritional deficiencies. It's important to know this information as well.
Dr. Peter Green [world renowned CD expert] suggests this:
http://www.enabling.org/ia/celiac/medcare.html
| Quote: | | Basic blood work is also included in the initial assessment. Such things as anemia and liver function need to be looked for. But it's very important to go further than that, and knowledge of the physiology of the small intestine should lead a physician to measure those nutrients that could be malabsorbed. Celiac Disease involves the small intestine, where iron, folic acid, calcium, fat soluble vitamins (Vitamins K, A, D, and E) and zinc are absorbed. These nutrients should be measured in the initial assessment and also during the course of the illness. Physicians will see patients who present with malabsorption of just one of these nutrients. If they are aware of the consequences of all these nutrient deficiencies, it will help them consider Celiac Disease as a possible diagnosis. |
Initial Assessment and Follow-up Care of Celiac Patients, by Peter Green, MD, summarized by Sue Goldstein
Even though it's not in this list - B12 should be checked as well. _________________ Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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smalltownslackermom

Joined: 04 May 2009 Posts: 287 Location: mid north american continent
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Posted: Fri Aug 21, 2009 3:23 pm Post subject: |
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Thank you Al! _________________ son - high ttg - 4/09, pos. biopsy 5/09
self - negative bloodwork 5/09, pos. biopsy 11/09
sister - gf for ~3 years and is a new person
niece - positive ttg 2/10, foregoing biopsy |
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teacherpat

Joined: 02 Aug 2009 Posts: 165
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Posted: Fri Aug 21, 2009 5:41 pm Post subject: zinc |
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Just a personal aside...Severe zinc deficency was the one which caused the most profound alterations in my sense of taste. If you could taste what food tasted and smelled like to me before I was put on prescription supplimental zinc-well you would not eat it either. Ewww . I had to take the high dose prescription zinc for six months and follow up with a lower daily dose forever. They usually do the zinc and copper tests together. That was just my experience. _________________ Pat |
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