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LucyGoose
Joined: 14 Sep 2009
Posts: 111
Location: N.W. Indiana
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 Posted: Tue Sep 15, 2009 7:09 am Post subject: Hello! |
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Hi!
I wanted to pop up and say hi, as I was just told that I have celiac yesterday when the nurse called back on my blood work...I was at the doc's last week getting my annual pap and mamo, and just point blank asked the doc to test me.....my mom has it, and she is always telling me to get tested for my gas.....so I did.....now I go back to the doc next week.....Just because my mom has it doesn't mean I know all about it....  .....I know some stuff.....I am 54 years old.....have been soooo tired, aches and pains..... ........Thanks for listening.....I have a lot to read here and will......Have a great day!! 
Last edited by LucyGoose on Fri Sep 25, 2009 8:26 pm; edited 1 time in total |
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aklap
Joined: 02 Oct 2004
Posts: 10612
Location: WI, USA
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| Posted: Tue Sep 15, 2009 7:51 am Post subject: |
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Hi Lucy,
Welcome to the board! Sorry to hear of your news, but, once you've been GF for a while you'll wonder why you didn't get tested sooner.
The tiredness, the aches, the pains - hopefully all will subside once you successfully remove gluten from your diet.
I have a friend that I suggested she get tested. She didn't didn't feel all that bad, but her niece was just dx'ed. She did confess to unexplained anemia. She had all sorts of blood work done. The blood work for her liver said she had Hep C [not uncommon in CD to have whacky liver panels]. After being GF, her liver, celiac panel, anemia tests returned normal results.
If you have any kids, they should be tested - just like you were tested. CD is genetic. Just like your Mom and/or Dad passed the genes on to you, you have passed it on to your kids. Please get them tested - symptoms or not. Often times celiac disease has no outward symptoms. The sooner this disease is caught, the better off a person is. Early detection is the key!
Make yourself at home, don't be afraid to ask questions. Good luck in your GF Journey.
_________________
Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa
Last edited by aklap on Fri Sep 25, 2009 9:30 pm; edited 4 times in total |
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LucyGoose
Joined: 14 Sep 2009
Posts: 111
Location: N.W. Indiana
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| Posted: Tue Sep 15, 2009 8:34 am Post subject: |
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Thanks for the nice welcome!!
One quick question before I go out the door for work.....your friend with the hep...did she for real have it then? My AST & ALT numbers are under 100.....which is good....they diagnosed me with the hep from all these symptoms that the celiac also have.....sheesh....lots of questions for my doc next week......thanks again..... |
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LucyGoose
Joined: 14 Sep 2009
Posts: 111
Location: N.W. Indiana
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| Posted: Tue Sep 15, 2009 4:56 pm Post subject: |
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Oh, okay......Didn't mean to imply.....I will be asking about this for sure!  |
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teacherpat
Joined: 02 Aug 2009
Posts: 165
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| Posted: Tue Sep 15, 2009 6:44 pm Post subject: |
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I had serious liver issues before going GF too. They have finally resolved after several years. Had the liver biopsy-and they were never able to determine what the problem was. That biopsy went all over the US.
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Pat |
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LucyGoose
Joined: 14 Sep 2009
Posts: 111
Location: N.W. Indiana
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| Posted: Tue Sep 15, 2009 6:47 pm Post subject: |
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| teacherpat wrote: | | I had serious liver issues before going GF too. They have finally resolved after several years. Had the liver biopsy-and they were never able to determine what the problem was. That biopsy went all over the US. |
Wow! |
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teacherpat
Joined: 02 Aug 2009
Posts: 165
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cruelshoes
Joined: 23 Sep 2005
Posts: 3380
Location: Washington State
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| Posted: Tue Sep 15, 2009 10:46 pm Post subject: |
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Hep C is caused by a virus. While liver tests may improve with the GF diet, it won't eliminate the virus. Just throwing that out there for reference.
Welcome to the board!
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-Colleen
Where are we going, and what am I doing in this handcart? |
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teacherpat
Joined: 02 Aug 2009
Posts: 165
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| Posted: Wed Sep 16, 2009 3:22 am Post subject: |
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This is interesting...The interferon treatment for Hep C can trigger Celiac
http://cat.inist.fr/?aModele=afficheN&cpsidt=16244664
| Quote: | | Goals: To assess the impact of interferon treatment on celiac disease onset in hepatitis C patients and to clarify its clinical relevance and outcome. Background: Hepatitis C is associated with autoimmunity, which can be exacerbated by interferon treatment. Cases of celiac disease activation during interferon treatment have been reported. Study: Retrospective evaluation of 534 hepatitis C patients with or without symptoms compatible with celiac disease onset during interferon treatment and 225 controls. Anti-transglutaminase antibodies were assayed. HLA-DQA1 and -B1 loci were typed. Upper gastrointestinal endoscopy was applied to confirm the diagnosis in antibody-positive patients. Results: Anti-transglutaminase antibodies were detected before treatment in 1.3% of hepatitis C patients and in 0.4% of controls (not significant). Eighty-six percent of patients with anti-transglutaminase antibodies showed activation of celiac disease while on interferon. Symptoms ranged from mild to severe, and interferon had to be discontinued in 2 of 7 (29%) patients. Symptoms disappeared in 6 of 7 patients after interferon withdrawal. Onset of symptoms compatible with celiac disease during interferon therapy was significantly associated with the presence of anti-transglutaminase antibodies (OR 53). Conclusions: In hepatitis C patients, the activation of silent celiac disease during interferon treatment is almost universal and should be suspected, but it uncommonly requires interferon treatment discontinuation. Symptoms subside after interferon withdrawal. |
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Pat |
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LucyGoose
Joined: 14 Sep 2009
Posts: 111
Location: N.W. Indiana
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| Posted: Wed Sep 16, 2009 7:12 am Post subject: |
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Pat, thank-you very much for all the research!! I did pass it on...........I need to go clean and play with my dogs.....LOL....can we post pictures here? I would be glad to share.....
Thank-you again......I have a lot of reading to do on and off, don't I?.....  |
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