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celiac58
Joined: 19 Oct 2009
Posts: 2
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 Posted: Mon Oct 19, 2009 7:38 am Post subject: moderate to severe fatigue only symptom? |
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Has anyone had CD without the GI symptoms? My physician just heard about a presentation that was largely fatigue, like undiagnosed mono.
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cruelshoes
Joined: 23 Sep 2005
Posts: 3555
Location: Washington State
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| Posted: Mon Oct 19, 2009 7:52 am Post subject: |
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Doctors are now learning that celiac patients that present with the classic GI symptoms are actually the minority. It is very, very common for people to be diagnosed without the diarrhea and wasting that used to be considered the top symptoms. Some people have no symptoms at all.
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-Colleen
Where are we going, and what am I doing in this handcart? |
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aklap
Joined: 02 Oct 2004
Posts: 10962
Location: WI, USA
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| Posted: Mon Oct 19, 2009 8:26 am Post subject: |
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Hi Celiac58,
Welcome to the board.
Colleen's right - the percentage is high [I believe around 50%] of diagnosed celiacs that present with classic [gastro issues] symptoms. This leaves many people suffering because their docs are still thinking that you CAN'T have celiac disease if you have "normal" bowels/stomach. This is not the case! Sometimes it's as "simple" as unexplained anemia, sometimes it can be constipation - yes constipation.
The symptoms of CD are long and often seem unrelated to those not familiar with CD. In fact there are over 250 documented symptoms! To make matters worse - people don't present with the same symptoms - like Colleen said, there can be NO OUTWARD symptoms.
Our Thread on CD Symptoms
Have you been tested for CD? You might check out a few of our threads:
Our Thread on Celiac Blood Tests & More Diagnostic Info
Our Thread on Info aimed at Medical Professionals
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Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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nancw
Joined: 04 Oct 2006
Posts: 1278
Location: Denver, CO
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| Posted: Mon Oct 19, 2009 10:38 am Post subject: |
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I didn't have gastro issues until I was well along in my symptom collection. My first symptoms were fatigue, neuropathy, and anxiety.
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Nance
gluten, dairy, soy, rice, yeast and 99% grain-free |
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teacherpat
Joined: 02 Aug 2009
Posts: 165
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| Posted: Mon Oct 19, 2009 1:58 pm Post subject: |
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Doctors ignored my symptoms because I am mixed race-I got tested for sickle cell trait before I got tested for celiac. Guess what, Black people get celiac too!  I'm glad doctors are starting to understand the full range of symptoms celiac presents with.
http://www.charlotte-celiac-connection.org/files/International_Face_of_Celiac_Disease.pdf
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Pat
Last edited by teacherpat on Mon Oct 19, 2009 9:31 pm; edited 1 time in total |
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celiac58
Joined: 19 Oct 2009
Posts: 2
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| Posted: Mon Oct 19, 2009 5:32 pm Post subject: |
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Thanks so much for the info. I'm debating doing the blood test (out of pocket expenses) but I'm thinking it might be worthwhile after all.
I really appreciate your info. |
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aklap
Joined: 02 Oct 2004
Posts: 10962
Location: WI, USA
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| Posted: Mon Oct 19, 2009 6:54 pm Post subject: |
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| teacherpat wrote: | | Guess what, Black people get celiac too! |
Yes indeed they do!!
http://www.springerlink.com/content/1606363j26414429/
| Quote: | Pardeep Brar1, Ann R. Lee1, Suzanne K. Lewis1, Govind Bhagat1 and Peter H. R. Green1, 2
(1) Department of Medicine, Columbia University College of Physicians and Surgeons, New York, New York, USA
(2) Herbert Irving Pavilion, Room 645, 161 Fort Washington Avenue, New York, New York 10032, USA
Received: 11 August 2005 Accepted: 17 August 2005 Published online: 27 April 2006
Abstract Celiac disease is generally under diagnosed in the United States and it is unclear whether the disease is encountered in ethnic minorities.
Our purpose is to describe a case series of African-American patients with celiac disease. Nine (1.3%) African-American patients with celiac disease were identified from a prospectively generated database of 700 patients with biopsy proven celiac disease and seen between 1981 and 2004.
Females predominated, with seven, compared to two males. Diarrhea was the presentation in only two patients, while three presented with iron deficiency anemia.
One third had at least one autoimmune disease. Compliance with a gluten-free diet, the only medical therapy of this disease, was poor.
Only four patients adhered strictly to the diet. Celiac disease occurs in African-Americans and may well be underdiagnosed. Special attention needs to be given to methods that encourage adherence to the diet in minority groups.
Keywords: African-American - Celiac disease - Compliance - Gluten-free diet - HLA DQ typing |
http://celiac-disease.com/african-americans-celiac-disease/
http://www.ncbi.nlm.nih.gov/pubmed/18630046?ordinalpos=7&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum
| Quote: | 1: Med Trop (Mars). 2008 Apr;68(2):144-8.Links
[Celiac disease: special features in Africa. Description of 8 cases in Djibouti (horn of Africa)]
[Article in French]
Coton T, Grassin F, Maslin J, Gidenne S, Sarret D, Petitjeans F, Benois A, Kraemer P, Cloatre G.
Service de Médecine, Groupement Médico-Chirurgical Bouffard, Djibouti. thierrycoton@msn.com
Celiac disease is poorly documented in intertropical Africa. The purpose of this retrospective report was to describe 8 cases observed at the Groupement Medico-Chirurgical of Bouffard Hospital in Djibouti (Horn of Africa) between January 2003 and January 2006. There were 5 females and 3 males ranging in age from 9 months to 17 years old (mean age: 48 months). Six patients were of Somali ethnic origin and two of Yemenite ethnic origin. Six were classified as middle class and 2 as lower class. All forms were symptomatic associating constant loss of weight with digestive manifestations (diarrhoea and vomiting). Diagnosis of celiac disease was based on the presence of anti-gliadin antibodies IgA and IgG associated with anti-endomysium or anti-transglutaminase antibodies that were measured in six and two cases respectively. Gastroduodenal endoscopy performed in three cases including two with duodenal biopsy demonstrated villous atrophy associated with gross of intra-epithelial lymphocytosis. A gluten-free diet initiated in five patients led to clinical improvement in four cases with a follow-up of 8.25 months. The findings of this study in Djibouti show that celiac disease exists in intertropical Africa. Its presentation is quite similar to elsewhere but diagnosis is more difficult due to poor knowledge about the disease and limited diagnostic facilities. Favourable response to presumptive treatment by a gluten-free diet is an alternative for diagnosis especially in Djibouti where eating habits differ from those in industrialized countries and this type of diet is easier to follow.
PMID: 18630046 [PubMed - indexed for MEDLINE] |
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Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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Gillie
Joined: 11 May 2009
Posts: 14
Location: South Wales, UK
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| Posted: Wed Oct 21, 2009 1:48 pm Post subject: Moderate to Severe Fatigue |
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Hi Celiac58
I was diagnosed in August of this year after about 15 years of many many symptoms - fatigue, constipation, wind, diarrhoea, brain fog, joint pain and confirmed diagnosis of hiatus hernia and diverticulitis - oh dear this list is endless! However some symptoms presented on their own, whilst others came in ones or twos. I had negative home blood test and three negative GP blood tests. However, I persuaded my GP to refer me to a Specialist Coeliac Consultant after suffering from severe fatigue and 'brain fog'. My GP thought it was 'viral', but after six weeks of no improvement I then gently persuaded her to refer me. Once again my blood test proved negative, however my biopsy came back as positive. Since going GF my symptoms are reducing day by day, I am still struggling with fatigue and joint pain (not half as bad at it was ) however my tummy problems have all but disappeared - thankfully. I am so glad that I perservered and got a diagnosis, now I am looking forward to a more active life once again. 
Regards
Gillie
(Coffee should be black as Hell, strong as death, and sweet as love)
Turkish Proverb |
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STZ
Joined: 21 Apr 2009
Posts: 163
Location: Corpus Christi, TX
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| Posted: Wed Oct 21, 2009 7:45 pm Post subject: |
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Hey I am Greek and we get Celiac too.... LOL
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STZ
DX = Celiac
High ttg 3/2009
Biopsy positive 10/2009
GF since 3/2009
DX = Osteopenia
Bone Density Test 9/2009 |
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teacherpat
Joined: 02 Aug 2009
Posts: 165
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| Posted: Wed Oct 21, 2009 7:56 pm Post subject: |
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| STZ wrote: | | Hey I am Greek and we get Celiac too.... LOL |
Shhhh-don't tell one of my former gastros, he thinks you have to be red headed Irish. He said that, in those words "Only red headed Irish get Celiac" 
I think he has "Gaelic" and "Celiac" confused...
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Pat |
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aklap
Joined: 02 Oct 2004
Posts: 10962
Location: WI, USA
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| Posted: Wed Oct 21, 2009 7:58 pm Post subject: |
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| teacherpat wrote: |
I think he has "Gaelic" and "Celiac" confused... |
Well, there are several of the same letters in both words. That's gotta count for sumthin' 
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Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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Kathie
Joined: 27 Jan 2006
Posts: 1062
Location: Florida
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| Posted: Thu Oct 22, 2009 12:24 pm Post subject: |
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| teacherpat wrote: | "Only red headed Irish get Celiac"
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Well I got the red head part down and probably there's some Irish in their as well. No wonder they diagnosed me back in 88.
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CD by Biopsy 3/25/88 |
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