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homemaker
Joined: 06 Oct 2009
Posts: 47
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 Posted: Tue Oct 20, 2009 7:09 am Post subject: Bangor Maine Support Groups? |
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 Just wondering if there are support groups in the Bangor ME area....
Also, wondering if support groups accept those with Gluten sensitivity only or who have not been
formally diagnosed by the "Gold Standard" route.
Thanks |
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celiacmaine-iac
Joined: 19 Dec 2007
Posts: 1354
Location: Maine
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| Posted: Tue Oct 20, 2009 8:12 am Post subject: |
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A fellow Maine-iac! I know there is a group in the Portland area. I'll see if I can find their contact info. They might know if there is one in your area. You could also ask at your local health food store. They are often aware of local groups.
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Steph |
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homemaker
Joined: 06 Oct 2009
Posts: 47
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| Posted: Tue Oct 20, 2009 8:18 am Post subject: |
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| celiacmaine-iac wrote: | | A fellow Maine-iac! I know there is a group in the Portland area. I'll see if I can find their contact info. They might know if there is one in your area. You could also ask at your local health food store. They are often aware of local groups. |
Thanks...that would be helpful....
I had negative bloodwork, but a positive response to gluten free diet.
My sister has Celiac dx by bloodwork and endoscopy....
I am just going through gluten withdrawal...not a fun thing, but I know in the end, it will benefit me, because my tummy is thanking me!
Needed to know as well if I would be welcomed without a gold standard diagnosis of Celiac....Thanks ever so much...
Fellow Maine-iac! LOL |
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aklap
Joined: 02 Oct 2004
Posts: 10612
Location: WI, USA
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| Posted: Tue Oct 20, 2009 8:22 am Post subject: |
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Here's some options...
http://www.celiac.com/articles/227/1/A-List-of-Local-Celiac-Disease-Support-GroupsChapters/Page1.html
Maine
Bangor - Support Group
Contact 1: Ann Delaware
Celiac Sprue Support Group of the Greater Bangor Area
P.O. Box 472, Bradley
ME 04411-0472
Tel: (207) 827-2733
Contact 2: Greg Chappelle
27 Hilliard St.
Old Town, ME 04468
Bangor - Resource:
25 Cushing Drive
Glenburn, ME 04401-1431
Tel: (207)-947-9958.
Bradley - Support Group
Contact: Ann Delaware
Bradley Celiacs
P.O. Box 472
Bradley, ME 04411
E-mail: Anned0472@aol.com
Portland - Support Group
Portland Maine Celiac/DH Support Group (CSA)
Contact 1: Paula Raleigh
130 Kimball Corner Road
Naples, ME 04055
Tel: (207) 787-2279
E-mail: honeybee@pivot.net
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Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa
Last edited by aklap on Tue Oct 20, 2009 8:24 am; edited 1 time in total |
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celiacmaine-iac
Joined: 19 Dec 2007
Posts: 1354
Location: Maine
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| Posted: Tue Oct 20, 2009 8:22 am Post subject: |
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Here is a listing of Maine groups. It doesn't look like the list has been updated recently, so I hope you can get some useful info. There is contact info for a Bangor support group. Good luck!
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Steph |
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aklap
Joined: 02 Oct 2004
Posts: 10612
Location: WI, USA
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| Posted: Tue Oct 20, 2009 8:26 am Post subject: |
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| homemaker wrote: |
Needed to know as well if I would be welcomed without a gold standard diagnosis of Celiac.... |
This will depend on the group. Some groups are very open to those of us that are not "Goldies"...some are not  .
Good luck!!
_________________
Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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homemaker
Joined: 06 Oct 2009
Posts: 47
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| Posted: Tue Oct 20, 2009 8:37 am Post subject: Thanks |
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| I will give those a try! |
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cruelshoes
Joined: 23 Sep 2005
Posts: 3380
Location: Washington State
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| Posted: Tue Oct 20, 2009 8:39 am Post subject: |
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Any support group that would not accept people because they do not have the gold standard diagnosis is not very supportive, IMHO.
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-Colleen
Where are we going, and what am I doing in this handcart? |
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aklap
Joined: 02 Oct 2004
Posts: 10612
Location: WI, USA
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| Posted: Tue Oct 20, 2009 8:50 am Post subject: |
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| cruelshoes wrote: | | Any support group that would not accept people because they do not have the gold standard diagnosis is not very supportive, IMHO. |
Indeedily-doodily good neighbor!
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Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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Fidissimus
Joined: 17 Mar 2006
Posts: 1881
Location: Portland, OR.
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| Posted: Wed Oct 21, 2009 11:59 pm Post subject: |
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| cruelshoes wrote: | | Any support group that would not accept people because they do not have the gold standard diagnosis is not very supportive, IMHO. |
I can't even fathom such a thing. That makes me sad. 
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Cheers!
Jenn
GF BD: Feb. 2001
Free of wheat, barley, rye, oats, dairy, eggs, almonds, pineapple and brewers yeast.
http://graindamaged.blogspot.com/ |
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