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Joined: 27 Aug 2004
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PostPosted: Tue Aug 31, 2004 3:50 pm    Post subject: Welcome to Celiac Forums Reply with quote

Welcome to Celiac Forums. Feel free to join in on any of our topics or to suggest new categories.

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CalifCeliac
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PostPosted: Fri Dec 31, 2004 12:15 am    Post subject: Undiagnosed--longtime sufferer Reply with quote

I am finally ready to admit I need help and advise with this disease I have had for about 20 years. As I have gotten older, my reactions to going off the diet are really bad, and take a long time to recover.

I am diagnosed with depression, panic-disorder, and bipolar too. I am starting to believe that the celiac condition is a large part of those problems. Has anyone ever had weight loss after eating wheat and gluten along with shrinking muscle tone? Then sometime after recovering, feels firm muscle tone again, without exercising? I have gone back and forth for years with this issue. Back when I was younger, I could get away with cheating often and eventually found myself a size 2-4 with all my athletic muscle gone. I was never that small, in my life!

I will get intense pain in the abdomen, diahrea (bad), brain fog, tearing eyes, bloating, gas, rash on my face, feel tired, weak, and react more to approved foods for awhile, as well. Reading about all the complications of this disease is frightening. I almost never cheat anymore, and I am determined to stay on course. I also need some information on supplements, and if probiotics are effective. Can someone validate my symptoms, and relate to me is possible. This is my first posting anywhere. Please help! Rolling Eyes
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PostPosted: Fri Dec 31, 2004 12:28 pm    Post subject: Reply with quote

Hi Cali,

Sorry to hear you're feeling bad. BUT - we know how to fix that! Yup, it's really time you get down to business and stay GF for good. As you probably know, there is no cheating when it comes to gluten. It's not like a diabetic diet where you can cheat and balance things out. The sooner you go & stay GF, the sooner you will feel better. You've done this for 20years?? Wow - I felt like crap for only 1.5 years and that was WAY more than I could handle. Yup I had just about every thing you discussed. I had some mild depression due to the fact that no one in the medical field could tell me what was wrong. I fully expected to die. I think thats would be a downer for any one! I did not have the rash or the tearing eyes (I dont think I've heard that before). The brain fog was really bad - there were days I had a hard time functioning.

Take some time and read thru The Gluten File. It's well worth the time to read. There is a HUGE mass of knowledge here. Please don't be overwhelmed by it. Just take it in small chunks.
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aklap



Joined: 02 Oct 2004
Posts: 8512
Location: WI, USA

PostPosted: Fri Dec 31, 2004 12:39 pm    Post subject: Reply with quote

RATS!!! I hate it when I forget to log in. That was me above. Hehehe I guess that'll teach me to do this at work Smile

Here's some more link.

http://brain.hastypastry.net/forums/showthread.php?t=920

www.celiac.com

Delphi boards (requires free registration)


BTW, how where you diagnosed 20 years ago?

Good luck in your journey. I hope you stay on the GF path from here on out. It does take some getting used to, but after awhile it becomes 2nd nature. I've been GF for 1.5 years. At this point - it's feels like I've always been GF. You kind of forget the past days. My advice is read and learn as much as you can about this. Unfortunately the medical field is not up to speed on this as they should be. Unless you have found a good doctor that does keep up. In that case...NEVER let that doc go!!
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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
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maria1223
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PostPosted: Fri Dec 31, 2004 10:08 pm    Post subject: misdiagnosed Reply with quote

califceliac
I was misdiagnosed for yrs. with anxity attacks, bi polar & depression than I was getting the diarreha everyday that is what pushed me to the Dr.'s I was diagnosed with celiac sprue & later with c- diff. I am a borderline diabetic & have hyprothyriodism. It was hard for me to go g/f I loved to eat sweets & breads Crying or Very sad . all along I was really hurting myself & didn't know it. please be very true to a g/f diet or you will have so many problemsin the future. you will not starve just subsitute the bad things for the g/f things.
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