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a little humor and some

 
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dkad



Joined: 08 Apr 2005
Posts: 315
Location: TX (panhandle)

PostPosted: Thu Oct 20, 2005 10:38 am    Post subject: a little humor and some Reply with quote

I was laughing this morning as I was reading this mornings topics. Part of me was thinking how pitiful we CD's are. Where else do you go and tell strangers how much gas you are passing. How you have diarrhea 25 times a day. How stinky and pussy it can look. You get my point. At the same time I look at all the other things that could be worse than being a CD and can only thank God that this can be controlled by a strict GF diet, which I guess I am not there yet, but boy am I trying. Biggest challenge of my life. I did something this morning I was stubborn about not doing, guess God finally gave me a good kick. I bought new butter and other things that my well meaning husband might dip his knife into and contaminate and put MINE on it, don't use. In the past I have just gone to an edge that wasn't used. I have other health problems and don't mean to make lite of CD but for me it was good to find something to laugh about and know there are others out there who understand. When I read the daily comments I stop a few min. and pray for you. I know others of you do the same. Thanks again for being there for me. Wouldn't it be neat to meet? I have yet to meet anyone personally. Sorry if I am so long winded but wanted to share what was on my mind.
Have a great day
dkad
Daughter #2 is getting married next summer and yeah so what if I have CD. For those of you who might not remember my oldest daughter boyfriend was more or less forced to break up with her because they didn't want their grandchildren to possible get CD. God has bless us with 2 wonderful Christian son-in -loves.
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Judy



Joined: 01 Aug 2005
Posts: 235
Location: Massachusetts

PostPosted: Thu Oct 20, 2005 10:54 am    Post subject: Reply with quote

I can't tell you how much I look forward to the posts on this site. I'm not celiac, but my husband is and this has given me so much new information. There wasn't any information when he was diagnosed 24+ years ago, so I feel as though I've hit a gold mine here. Even the talk about gas, etc is good to read - I know my husband isn't alone. Your daughter is much better off without the family who is paranoid of celiac disease. My daughter is about to give birth to a baby girl who not only has a chance of having celiac, but type 1 diabetes (my dh has that, too). While we pray she will never have either illness, neither illness kept my daughter and son in law from having a family. I'm glad your daughter found a loving, caring family to marry into.
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isto



Joined: 30 Sep 2005
Posts: 1650
Location: State of Exhaustion

PostPosted: Thu Oct 20, 2005 12:40 pm    Post subject: Reply with quote

I really am glad that we have this forum to share our experiences and knowledge. And thank God for Al - the man knows how to do research!! I really felt so alone in all this GF stuff! There is no support group near me and when I emailed the nearest support group president, I got NO response. Nothing like sticking together! Crying or Very sad The dr. just said Tuesday that I needed to try the GF diet for my 8 year old son because of his health complaints. He is not happy, but isn't a complainer. I'm trying to make it fun for him! My sweet husband said yesterday we need to have a totally GF home so that the members with CD aren't getting contaminated. It will be a challenge! Many times I don't have GF bread or buns in the house. What do we put a hamburger on, then?!!!

Anyway, the support I get here is great. And I decided to start a local support group and people are slowly trickling in! Just because we are GF doesn't mean we can't stick together! Pun very much intended!

I am really enjoying the special kind of humor I find here!!!

Danita
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Padams



Joined: 21 Jun 2005
Posts: 66
Location: Nebraska

PostPosted: Thu Oct 20, 2005 1:28 pm    Post subject: Reply with quote

I work at a grocery store, Wild Oats Natural Marketplace.

I am a cashier and the "person to go to" for gluten free knowledge.

We have to ask the "How are you? Did you find everything OK?" Well, when I am asked how I am .. I say fine or well. You know the drill.

I ran into an *** yesterday who said that I just ask it because I was brainwashed and they are stupid rhetorical questions. I agree .. that's another rant for some other day.

He then asked how I was .. and I said I was fine .. then he had the nerve to say he didn't care because he was just asking a rhetorical question like us. Then I added, "I crapped 7 times today and my abdomen is killing me. I still manage to smile, though."

My managers were caught off guard; but found my comment to be rather funny. I wasn't rude; I was just like I am on the board .. honest Wink

Take care!

Oh, and yes. I, too, love how we can all discuss our bowel movements and our gassing with ease. That's why I love it here. Everyone relates to these topics so well.

-Patrick
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06/14/05
I love Danna Korn
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isto



Joined: 30 Sep 2005
Posts: 1650
Location: State of Exhaustion

PostPosted: Thu Oct 20, 2005 1:35 pm    Post subject: Reply with quote

GO, PATRICK!!!
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Judy



Joined: 01 Aug 2005
Posts: 235
Location: Massachusetts

PostPosted: Thu Oct 20, 2005 2:23 pm    Post subject: Reply with quote

Patrick, you're right - what a a$$ that guy was. What is wrong with some people, that they would rather make a nasty remark to someone than just say "fine thanks". It can be such a mean world! I frequent several other on-line forums and everyone is so nice, its wonderful. However, I just recently started reading posts on a forum for a television show I watch (LOST) and I would NEVER post there. Talk about a bunch of rude, nasty, vicious people. Its awful.... If yoo happen to post something they've already discussed - WHAM! They come down on you with some nasty words - calling people stupid, etc. Thankfully that's not the case here. Nobody gets mad if you ask a question that's already been discussed- they just re-answer the question politely or they direct the person to the post. (Thanks for doing that, Al).
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aztecprincess



Joined: 03 Nov 2004
Posts: 43
Location: Mexico City

PostPosted: Thu Oct 20, 2005 2:28 pm    Post subject: Dearest partners in crime, ha! Reply with quote

A few years ago, my mom called me at the office crying (I was living in the States then). I thought somebody had died for why else would she be crying right off the bat?? Unless she missed me... To make a long story short, she said the doctor had asked her to "cut down" (not STOP) on foods that contained cholesterol because her count was rather high. She then proceeded to tell me that she didnīt know what she was going to do not being able to eat all the (fatty, greasy) stuff that she wanted... Surprised My CD hadnīt been offset by then but I replied (thinking to myself all the stuff that Iīd been prevented from eating for having a hiatal hernia) "Hey, at least youīve had some good 60+ years of eating whatever the hell you wanted. Itīs not like he asked you to starve yourself." But that didnīt seem to bring any relief or comfort to her and she acted like I was not thinking this was a big deal... Shocked
For us being CD, itīs not a matter of cutting down, or become "vegetarian" by choice or religious beliefs, or like a dropping a bad habit regarding food for some of these you can take or leave if the circumstances required us to. It affects everything we do, think and even say! And like Patrick said, itīs not like we are out there waving a red flag announcing how bad we are feeling, or that ignorant SOB that left because of fear of CD inheritance (he mightīve had schizophrenia genes for all we know! Twisted Evil ) If other people only knew how many times I donīt want to get up in the morning and how I go to bed having suicidal thoughts that last throughout the day, the week, the months!!! And then you get on this forum and somebody needs help with a recipe, or a comforting word and everybody is so willing to step up to the plate and provide all the support we are unable to get sometimes; and then if only for a day you put off feeling crabby, gassy, depressed, uncomfortable and useless.
My exhusband made a comment the other day about CD being all in my head or that I was a drama queen (and then he wonders why he is still an "ex" Rolling Eyes ), and I told him I didnīt think the 500 users in this forum could have the same symptoms. But then again, why do I bother? If you guys feel, think, do and say the way I do, so itīs our secret society and they can go s***w themselves, donīt you think? Maybe they are just jealous Laughing
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paw



Joined: 28 Sep 2005
Posts: 355
Location: Michigan

PostPosted: Thu Oct 20, 2005 3:14 pm    Post subject: Reply with quote

Right now all I have is "attitude" and that is a work in progress. I am still being tested, nothing confirmed. I am becoming impatient. I see the gastro again in about 10 days (not that I'm counting or anything) and I want to know one way or another if I have CD or if something else is causing my belly problems.

It does help a lot to come here and read what other people do/have done when they learn about CD and getting on with life. I have learned so much about foods that will be safe and foods to stay away from, and cross contamination. I won't be so afraid to hear my diagnosis. Thanks to you, I am mentally ready to get off gluten and feel better. I have followed your advice and NOT gone GF on my own because I want those blood tests done for my records.

I will ask for those blood tests and a better explanation of the other test results (biopsy). In my case, a diagnosis is important. I have two teens who don't want to give up wheat UNLESS I have to for medical reasons. That means having a doctor write it down for them to read and then telling them to get tested too. (One has IBS, and I think the tests should be done).

Wish me a clear diagnosis one way or another and keep on teaching me!
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b Guest
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PostPosted: Fri Oct 21, 2005 12:29 am    Post subject: testing Reply with quote

Paw, you can also send off to Enterolabs & find out if you have the CD genes. If you have symptoms & you have the genes then...
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aklap



Joined: 02 Oct 2004
Posts: 10608
Location: WI, USA

PostPosted: Fri Oct 21, 2005 8:00 am    Post subject: Reply with quote

Quote:
...I look at all the other things that could be worse than being a CD and can only thank God that this can be controlled by a strict GF diet, which I guess I am not there yet, but boy am I trying. Biggest challenge of my life.


dkad - Just as healing the intestines take time...so does this. There is no question, that this is not just a diet change...it's a lifestyle change! It is hard!! I tend to believe things happen to us for a reason. Maybe we find out why, maybe we don't. But as they say "the Journey is Half the Fun"...no this is not fun...but it's something we must go thru in this life. I know I have come thru the other side of this a changed person - for the better (at least I like to think that Wink.

Laughter is ALWAYS good! That was one of the things I missed when I was sick. Peg forced me to be with my friends even when I didn't want to be around anyone. I would always feel better after hanging out with them and laughing. One of my favorite quotes is a from a Jimmy Buffet Song: "If we couldn't laugh, we would all go insane" from Changes in Latitude, Changes in Attitude.

It would be fun to meet. I have met several others from the Braintalk board. It's always fun to see these people that you talk to just about everyday. It's neat to see bonds starting to form on this board. Again...that is something that takes time. While this is not a replacement for face to face support groups - I think there is a definite value of their existance. It would also help to see pictures of everyone. I have asked the owners of the board to enable the avatar function here...but got no response. There are some hoops you have to jump thru to get a graphic to appear like my signature graphic. The picture must live somewhere on the internet first. I'll have to see about setting up a Yahoo group - you can post pictures there.

OMGosh - I DO remember your other daughter!!! I am glad she is not involved with those people any more!

Thanks for the prayers! Keep 'em coming! Smile
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“We cannot all do great things, but we can do small things with great love.” Mother Teresa
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aklap



Joined: 02 Oct 2004
Posts: 10608
Location: WI, USA

PostPosted: Fri Oct 21, 2005 8:46 am    Post subject: Reply with quote

isto wrote:
I really am glad that we have this forum to share our experiences and knowledge. And thank God for Al - the man knows how to do research!!

Thanks Danita, I too am glad this places exists!!

isto wrote:
I really felt so alone in all this GF stuff! There is no support group near me and when I emailed the nearest support group president, I got NO response. Nothing like sticking together! Crying or Very sad

I think we all felt that way at first. Sorry to hear you got no response from the local support group Sad The closest group to me is 45 min away. I have never been to it.


isto wrote:
The dr. just said Tuesday that I needed to try the GF diet for my 8 year old son because of his health complaints. He is not happy, but isn't a complainer. I'm trying to make it fun for him! My sweet husband said yesterday we need to have a totally GF home so that the members with CD aren't getting contaminated. It will be a challenge! Many times I don't have GF bread or buns in the house. What do we put a hamburger on, then?!!!

Wow - I am impressed with your hubby!! Usually unaffected spouses are very resistant to change and unsupportive - males more so than females. Go figure Wink I would agree, if you have kids a 100% GF household would be the best way to go. I wish you and DS (dear son) well in your GF Journeys.

isto wrote:
Anyway, the support I get here is great. And I decided to start a local support group and people are slowly trickling in! Just because we are GF doesn't mean we can't stick together! Pun very much intended!

THAT IS SO GREAT!! Way to go!! I hope within the next 2 years to do that. Right now I am the Vice Pres of our Church's council...when that's done (2 years)...my I can focus my energies there. Very clever pun- LOL!!!

isto wrote:
I am really enjoying the special kind of humor I find here!!!


LOL We are "special" aren't we Very Happy
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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
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isto



Joined: 30 Sep 2005
Posts: 1650
Location: State of Exhaustion

PostPosted: Sat Oct 22, 2005 9:21 am    Post subject: Reply with quote

Al,

My husband always asks other married men, "How do you put your love into action?" He does it for me by the GF home, by bringing me flowers every week, by working hard for our family. Very Happy I am impressed with him, too!

Danita
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Professor



Joined: 19 Oct 2005
Posts: 757

PostPosted: Sat Oct 22, 2005 4:32 pm    Post subject: Reply with quote

isto wrote:
My sweet husband said yesterday we need to have a totally GF home so that the members with CD aren't getting contaminated. It will be a challenge! Many times I don't have GF bread or buns in the house. What do we put a hamburger on, then?!!!



You have a great hubby to suggest that willingly -- many people won't do it for their families even when asked (begged, pleaded with)!

We are a totally GF household, and it's quite easy, really. The example you give -- what if you don't have any GF buns in the house? Well, have you ever grilled a burger and not had a wheat bun in the house? Probably not, right, because you stock them and buy them whenever you shop? So, instead of buying regular buns, buy the GF, and just stock the same stuff but all GF -- pancake mixes, bread and rolls, cookies, cereals, etc. And never again a worry about contamination or just plain grabbing the wrong tub of margarine out of the fridge. It's really quite nice once it's done . . . trust me.

Lexi
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