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NEWLY DIAGNOSED
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aklap



Joined: 02 Oct 2004
Posts: 8603
Location: WI, USA

PostPosted: Tue Dec 07, 2004 8:22 pm    Post subject: Reply with quote

No question about that!!! If you're not comfortable with...best to leave it alone!!!

Kelloggs deliberately put wheat in Corn Pops starting 1/1/04 because there were getting too many complaints from celiacs due to x-contamination!!

I have not heard heard any complaints about fruity or coco pebbles -but then again - I haven't looked for awhile. They don't bother me - fortunately!!
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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
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KJ2004
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PostPosted: Wed Dec 08, 2004 2:39 pm    Post subject: One Week Later Reply with quote

First I want to thank everyone for your understanding and your super ideas! My head is still spinning, and I still have bad swings of feeling sorry for myself, but in all I am really feeling so much better. I can't explain how much it helps to hear from the myriad other voices out there who have been here before me and who have made it possible for my own transition to be so manageable. Thank you so much! I'm touched by your concern and every single "there there" really does make me feel better.

Finally I wanted to get some impressions about the plain quaker oats in that red/blue paper jar. Most medical journals out of northern scandinavia (ie where 99.9% of my ancestors are from) explain that oats are usually okay to eat and are often encouraged - for people with CD and/or DH. This from a place where the CD diagnosis rate goes up to 1 in 200. I realize that the oats here are hard to confirm as GF because of cross contamination, but is there any similar "guarantee" stuck on an oats product that people have toyed with and discovered to be okay? (hmm, that was convoluted... in other words, are there ANY plain plain plain oats that I can eat or will I have to just go cold turkey?) (and yes, I promise to take it up with the doc. before I do any experimenting of my own)

thanks again for all your help. I'm sticking to the simple foods routine just now, but every day yeilds delicious surprises (Nutella!, Dr. Pepper!, Fritos!, Pepperoni!...) and every post makes me realize what an awesome group I suddenly share a path with.

kj
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Cynmis



Joined: 04 Nov 2004
Posts: 36
Location: Ma

PostPosted: Wed Dec 08, 2004 6:31 pm    Post subject: Reply with quote

KJ,

I'm glad you are feeling better. It takes some time to get used to the idea and we or I should say I have had a harder time than my 13 year old daughter. I get more frustrated than she does.

As far as the oats go, I don't know about that. In Europe, they consider oats safe but not in here in the US.

I think this board is great too, I've learned alot and hope to learn even more.

I went to the grocery store tonight and looked at the ingredients in Rice Chex cereal and there is barley malt flavoring in it, so I believe it is NOT safe to eat too. Which is too bad because we like those too.
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aklap



Joined: 02 Oct 2004
Posts: 8603
Location: WI, USA

PostPosted: Wed Dec 08, 2004 8:25 pm    Post subject: Re: One Week Later Reply with quote

KJ2004 wrote:
First I want to thank everyone for your understanding and your super ideas! My head is still spinning, and I still have bad swings of feeling sorry for myself, but in all I am really feeling so much better. I can't explain how much it helps to hear from the myriad other voices out there who have been here before me and who have made it possible for my own transition to be so manageable. Thank you so much! I'm touched by your concern and every single "there there" really does make me feel better.

Finally I wanted to get some impressions about the plain quaker oats in that red/blue paper jar. Most medical journals out of northern scandinavia (ie where 99.9% of my ancestors are from) explain that oats are usually okay to eat and are often encouraged - for people with CD and/or DH. This from a place where the CD diagnosis rate goes up to 1 in 200. I realize that the oats here are hard to confirm as GF because of cross contamination, but is there any similar "guarantee" stuck on an oats product that people have toyed with and discovered to be okay? (hmm, that was convoluted... in other words, are there ANY plain plain plain oats that I can eat or will I have to just go cold turkey?) (and yes, I promise to take it up with the doc. before I do any experimenting of my own)

thanks again for all your help. I'm sticking to the simple foods routine just now, but every day yeilds delicious surprises (Nutella!, Dr. Pepper!, Fritos!, Pepperoni!...) and every post makes me realize what an awesome group I suddenly share a path with.

kj


KJ,

Glad to hear you are feeling better already!!! Keep at it. In another a month or 2 (maybe 3), it'll be second nature to you. Soon your nonGF lifestyle will seem like a lifetime ago. I've only be doing this 1.5 years - and it seems like I've always been doing it. It's kinda strange...

Oats, Oats, Oats...they are quite controversial. Somewhere on this board I have a good post with some links about them (I have a hard time getting used to the way this board is organized - I keep losing things). I think it's wise to stay away from them. I believe, the current research is showing that oats DO cause inflammation. Check out the Home page here on the right side - there is an article on oats.

Glad to hear you finding good things to eat!! Yup - Hormel Pepperonni is great in GF pizza!!!
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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
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maria1223
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PostPosted: Thu Dec 09, 2004 9:17 pm    Post subject: daughter of the king Reply with quote

My GI DR. told me that rice chex was ok because it has very little gluten in it. It has not bothered me nor have I had a problem with it. But thank you for the advise about the hot cereal
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aklap



Joined: 02 Oct 2004
Posts: 8603
Location: WI, USA

PostPosted: Thu Dec 09, 2004 9:54 pm    Post subject: Re: daughter of the king Reply with quote

maria1223 wrote:
My GI DR. told me that rice chex was ok because it has very little gluten in it. It has not bothered me nor have I had a problem with it. But thank you for the advise about the hot cereal

Maria,

You really need to find a new doctor!! As of yesterday. The information he is giving is incorrect. There is no such thing as "a little" gluten in a gluten free diet. There is ZERO tolerence. ANY amount of gluten will keep your body's autoimmune reaction going - all the while causing damage.

Please continue to read and learn about this on your own...you doctor is not helping you - he is hurting you. IMHO - it is malpractice!!!

Just in case you don't believe me. I found a few references for you.

http://www.celiac.com/celiacdisease.html
The only acceptable treatment for celiac disease is strict adherence to a 100% gluten-free diet for life. An adherence to a gluten-free diet can prevent almost all complications caused by the disease3. A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. This site is designed to help people with celiac disease get diagnosed, and make life easier after their diagnosis.

http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm#4
The only treatment for celiac disease is to follow a gluten-free diet--that is, to avoid all foods that contain gluten. For most people, following this diet will stop symptoms, heal existing intestinal damage, and prevent further damage. Improvements begin within days of starting the diet, and the small intestine is usually completely healed--meaning the villi are intact and working--in 3 to 6 months. (It may take up to 2 years for older adults.)

The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage the intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. Depending on a person's age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve.



http://www.celiaccenter.org/Articles/celiacgastro.pdf - See Page 11 under the heading "The Treatment"
The National Food Authority has recently
redefined the term “gluten-free.” Previously, <0.02%
gluten was considered gluten-free, but gluten-free now
means no gluten, and <0.02% is currently labeled “low
gluten.”

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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
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Maggie1956



Joined: 11 Dec 2004
Posts: 95
Location: Queensland, Australia

PostPosted: Sat Dec 11, 2004 6:59 am    Post subject: Re: cereal Reply with quote

maria1223 wrote:
I eat baby rice cereal with Bananas or apple sauce in it for hot cereal It is pretty good. use soy milk with it if you use milk
Very Happy


Smile Thanks for the idea Maria. We (in Australia) don't have a wide range of GF breakfast cereals, and I think I could stomach the taste of baby cereal better than some of the things I've tried lately. Rolling Eyes

I like the thought of it with banana or apple too. Yummm Wink
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Diagnosed by blood test & biopsies Nov 2004
GF since December 1st 2004

Maggie
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