My Enterolab results, not quite sure about the gene..

[DonnaD]

Hello everyone
I just got my Enterolab results. I would really appreciate any feedback regarding the actual numbers and the genes, i.e do you have the same and if so what symptoms do you have?

I must say that I projectile-vomited as a baby and my health has been downhill pretty much since, IBS-C, Fibro, Chronic pain syndrome, RSI, irritable bladder, sleep disorder, weight gain - except for the Atkins diet when I suddenly discovered enough energy to get divorced, go back to college and start a business!
I found this wonderful site when my daughter was diagnosed coeliac by biopsy in November. I really cannot say how wonderful you all are sharing your experiences.

I will book an appointment with my doctor and ask to get tested for Osteoporosis (I have a 'dowagers hump' which I understand could be an indication of bone loss) Is there anything else I should as for while he is feeling guilty? I also had Depo P injections for a while and suspect that that did not help.




Gluten Sensitivity Testing
Fecal Antigliadin IgA 38 Units (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 10 Units (Normal Range <10 Units)

Microscopic Fecal Fat Score: 406 Units (Normal Range < 300 Units)

HLA-DQ Gene Molecular analysis: HLA-DQB1*0501, 0501


Food Sensitivity Testing
Fecal anti-casein (cow's milk) IgA antibody 12 Units (Normal Range
<10 Units)

[Professor]

One thing you can do to see if your HLA is compable with celiac disease is to google the word celiac and your HLA ("HLA DQB1 0501" -- in quotes like that so you get what you're looking for) and see what it shows.

(I had complete HLA testing done a few years ago, when I was looking for a bone marrow transplant -- one of the things I did when I was bored and lying in bed was to google each of the 10, and see what they relate to. It's interesting and surprising to say, "Oh yeah, I have that, too! Genes don't slack off, do they?)

LExi

[DonnaD]

Thanks LExi,
I have started my google quest!
Very interesting so far...
D

[Jeannine1]

Hi Donna,
I am not surprised that you have two copies of the DQ1 gene, when I see your address as the UK. I guess you know by now that is one from your mom & one from your dad.

My family has DQ1 genes - I have two copies of DQ1. We are from England & Ireland. Webb/McCann/Philpott

The DQ1 gene is listed as "gluten Intolerant" implying that it is not as bad as "Celiac". Ha,Ha, I think that you will find that having two copies of this gene can cause insidious health issues.

Really, there is no difference in gluten intolerant & CD - they (the medical community? well what do they know anyway?) just have their stubborn little rituals.

The DQ1 genes in our family are associated with constipation, arthritis, eye problems, "seizures", bad teeth, depression, weight gain, failure to thrive, emotional issues, dyslexia, ADHD, stomach aches (before GF), bone pain, bad gall bladder, appendics out at 12, tonsils out, bladder infections, food allergies, other allergies, hives, - well I guess you get the drift I am sure I am missing some more stuff here.

Let us know what you find out & how quickly your symptoms clear up !!!
It is amazing how that works !!!!

[DonnaD]

[aklap]

Hi Donna,

You might be interested in this: Gluten Sensitivity as a neurological illness - http://jnnp.bmjjournals.com/cgi/content/full/72/5/560

Also check here: http://brain.hastypastry.net/forums/showpost.php?p=12836&postcount=3 for more Gluten/Neuro info.

The above is all part of The Gluten File - massive collection of gluten related knowledge.
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

[DonnaD]

Thanks Al
This will give me something to look into during the holidays!
Donna