2 many drs bad opinions?

[Ciddings]

I am sorry you aren't feeling well. I have been there too! I am still trying to get the hang of this thing and am learning something new everytime I come to this forum. My doctor has been zero help to me, simply because I believe she doesn't know enough to help. I too had mood swings, back pain (especially lower), migraines, rash among other fun stuff.

A gluten free diet has to be just that, GLUTEN FREE! Anything less and you will not have good results. I was doing really good and then I ate some corn meal that I believe had cross contamination issues. I also realized through the help of people right here, some mistakes I was making in sharing my kitchen with others who eat gluten, and causing more potential for cross contamination. I am in the process of fixing that issue too. I know there are some threads regarding that issue here as well. Does anyone remember where those are?

Also, have you considered that you may have multiple allergies? There are also some threads about that and about doing a cleansing or eliminating diet. They are great for calming down a hyperactive system that is reacting to everything and then to determine which items you are allergic to. Don't give up.

It is a process which definately has a learning curve. This is a great place to get information and to pick people's brains for information and tips. They are absolutely wonderful and I do not know what I would have done with out them!
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Connie
March 8

[rinne]

I'm sorry to hear that you are feeling so ill, I can completely relate. The people at this site and the links I have found from here are have been so helpful. I believe I have unlocked, or begun to unluck the secret to my family's "dis-ease" patterns.

I would say trust your gut but if you are in the kind of situation I am in it is difficult. I realize now that for years my body was giving me clear messages about what to do and what not to do and that I ignored them. It was easier, and I was a good girl, to accept that piece of cake (and so often to add 'insult to injury' it was bad cake) easier to go with the flow than to say no. Then one day the pain started and soon everything I ate caused me pain and I couldn't tell what was good and what was not. I've tried to retrieve those messages that I ignored and first and foremost and for 30 some years a NO feeling about bread. Well, not only a no feeling but bloating and constipation too.

I realize now that the great trap we fall into with diagnosis is that they do not seem to diagnose many of us until we are disabled. One medical journal article, written by a doctor, said that the average age of diagnosis is 60 and with that comes a high degree of morbidity.

I have lost about 30 pounds since Christmas and continue to be in distress. I went on the gluten-free diet and had an initial improvement but then relapsed. I believe now that I have Ankylosing Spondylitis, my mother has it and two of my sisters, a characteristic is curling up in the fetal position and in the past three months I have noticed myself doing it and my husband says I have been doing it in my sleep. Intense burning lower back pain radiating up spine and .... So CD can trigger other auto-immune disorders.

Trust yourself.

[sari]

Definitely go to another Doctor!

Studies have shown that Coeliac Disease can affect any part of the body. It attacks the small intestine, but because your body isn't getting the nutrients it needs because of damaged villi then any other bodily function can be affected too.

http://72.14.235.104/search?q=cache:_L2eZXdBMNUJ:sa.coeliac.org.au/docs/what_is_it_coeliac.pdf+Coeliac+Disease+can+effect+any+organ&hl=en&ct=clnk&cd=11

or if you want the info in pdf form:

http://sa.coeliac.org.au/docs/what_is_it_coeliac.pdf

Your Doctor obviously has limited knowledge on Coeliac Disease.
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~*~Sari~*~

[rinne]