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How Long Until You Are Symptom Free?
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aklap



Joined: 02 Oct 2004
Posts: 10519
Location: WI, USA

PostPosted: Tue Apr 14, 2009 9:45 pm    Post subject: Reply with quote

bump for Stacy
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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
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designsbycm



Joined: 09 Jan 2009
Posts: 24
Location: Sioux Falls, SD

PostPosted: Fri Apr 17, 2009 4:52 pm    Post subject: MSG and Citric Acid Reply with quote

MSG and Citric Acid are gluten? Please someone, explain this Smile Thanks!
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aklap



Joined: 02 Oct 2004
Posts: 10519
Location: WI, USA

PostPosted: Sun Jun 07, 2009 3:22 pm    Post subject: Reply with quote

Beth Israel Deaconess Medical Center's - When will I feel better?"

Quote:
When will I feel better?
Patients should feel better within 1 week to six months of being on a gluten-free diet. Two thirds of them improve after only 2-3 weeks. Often times, patients continue to experience symptoms such as bloating, gas, and diarrhea or loose stool, even while on the gluten-free diet. These symptoms could be caused by lactose intolerance. Individuals with celiac disease often become temporarily lactose intolerant because of the damage to their intestine. By avoiding products made with milk, or reducing the amount of dairy you eat to very minor amounts, you will probably notice that your symptoms go away. Within a few months of starting the gluten-free diet, most people find that they are able to eat dairy products again. If you try avoiding dairy and still do not feel better after six months of being on a gluten-free diet, you should contact your gastroenterologist.

It is important to note that while untreated celiac disease is rarely lethal, it can be life threatening and result in severe complications and morbidity. An earlier study showed that by following the introduction of a gluten-free diet the mortality rate of those with celiac disease decreased 3. Many complications can affect individuals with untreated celiac disease, such as nutritional deficiencies, anemia, autoimmune diseases, electrolyte imbalances, neurological disorders, and osteoporosis. Rarer complications include CD that is not responsive to a gluten free diet (refractory sprue), ulcerative enteritis (formation of small ulcers along the small intestine), malignancies (cancers), and pancreatitis. Many complications can be avoided with the prompt initiation of a gluten-free diet.

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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
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AZKat



Joined: 18 Jun 2009
Posts: 11
Location: Phoenix

PostPosted: Sun Jun 21, 2009 6:28 am    Post subject: Hi, Reply with quote

I am new to the forum but not to the diet.

It also depends on your age and how long you've been in an acitve
state of celiac disease. I am over 50, it's been almost 2 1/2 years and
I only began to feel like I was healed in the last few months.

When you accidentally get gluten it can set you back on healing by a
few weeks as well. Also, other intolerances can cause bloating too.
Yeast can impact me worse than gluten when it comes to bloating and
stomach pain.
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aklap



Joined: 02 Oct 2004
Posts: 10519
Location: WI, USA

PostPosted: Sun Jun 21, 2009 9:38 pm    Post subject: Reply with quote

Hi Kat,

Welcome to the board! Looking forward to hearing more from you.
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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
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STZ



Joined: 21 Apr 2009
Posts: 129
Location: Corpus Christi, TX

PostPosted: Sun Jun 21, 2009 10:58 pm    Post subject: Reply with quote

Stupid question here but when Al replies with BUMP what does this mean???
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DX = Celiac
High ttg 3/2009
Biopsy positive 10/2009
GF since 3/2009
DX = Osteopenia
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aklap



Joined: 02 Oct 2004
Posts: 10519
Location: WI, USA

PostPosted: Mon Jun 22, 2009 7:29 am    Post subject: Reply with quote

STZ wrote:
Stupid question here but when Al replies with BUMP what does this mean???

Not a stupid question at all! Discussion boards can have their own dialect sometimes. Bump = simply means to "bump this topic back up to the top of the stack so others see it" or Bring Up My Post. I bumped up our thread on all of our crazy abbreviations.
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AZKat



Joined: 18 Jun 2009
Posts: 11
Location: Phoenix

PostPosted: Mon Jun 22, 2009 12:55 pm    Post subject: Thanks for the warm welcome Reply with quote

Thank you Aklap for the warm welcome. I hope I can contribute
and help others with the diet.

It's a great forum, I've been reading a lot and I see a lot of
knowledgable people here.

I'm usually on in the late evening, so look for me then. Nice to meet you.
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aklap



Joined: 02 Oct 2004
Posts: 10519
Location: WI, USA

PostPosted: Thu Oct 15, 2009 8:02 pm    Post subject: Reply with quote

http://www.celiaccentral.org/News/NFCA-Newsletters/Monthly-Newsletter/182/

Quote:
When Will I Feel Better?

By: Lynn Cicero, Registered Dietitian

One of the first questions I am asked when I have seen a newly diagnosed patient is about when they will feel better. This question can take various forms such as:

* From a patient with severe anemia – When will I get my energy back?
* From a patient with neurological symptoms – When will this fog go away?
* From a patient with severe gastrointestinal symptoms – When will I be able to be more than 10ft from the nearest restroom?
* From a patient with lactose intolerance – When can I start drinking dairy again? I miss my hot chocolate.

The answer to these questions is never cut-and-dried. It varies greatly among individuals. Patients may be discouraged when they are following the gluten-free diet to the letter and are still experiencing symptoms. It is at times like these, that I wish I had a little “CD Magic Wand.” I would gladly wave it over every one of my patients! Celiac is unlike an allergic response. An allergic response will diminish and disappear if the allergen is removed. In Celiac, damage has been done to the absorptive surface of the small intestine. This takes time and it is very difficult to predict how long the repair will take.

Some of the more distressing gastrointestinal symptoms seem to resolve within weeks. If the patient is religious about taking a gluten-free multivitamin, the neurological symptoms due to lack of B-vitamins, may resolve quickly. About 3 percent of patients with Celiac present with anemia (Barclay, Vega, South. Med. J, 2004:4:30-34). The anemia whatever cause, can also completely resolve in a year. Even before that year, if the patient is diligent about the iron supplement, the symptoms of fatigue may rapidly improve. (Adams, A, Glutem Intol. Mag., Spring 2008). Gastrointestinal disturbances such as bloating, diarrhea and constipation are due to the lack of smooth contractions of the bowel. Thirty to 60 percent of patients report these symptoms. (Tursi, A, J Clin Gastroen-torol, 2004.Sept.38(Cool:642-5). Restoring the B-vitamins involved in enervation and con-traction of the intestine restore normal function and generally, in a short time.

There is also a distinction to be made between remission of symptoms and gut repair. Researchers have found that blood tests and levels of symptoms do not appear to correlate with the amount of damage done to the small intestine (Aliment Pharmacol Ther, 28.2009:1042-1066). This makes it a real challenge to determine when complete healing may occur. A high level of antibodies for gluten or significant damage in the small intestine does not translate into more severe symptoms and vice versa. We have much yet to learn on this relationship. In one study the researcher reported that 70 percent of patients report symptomatic improvement within weeks (New England J. Med. 3/19/02 – as reported on www.celiac.com).

What if you are among those 30 percent not feeling better? Just as one size does not fit all in shoes, the typical pattern may not apply to you. This should not dissuade anyone from continuing efforts to follow the gluten-free diet. I also cannot emphasize enough taking that daily gluten-free multi-vitamin and iron, if needed. Patients tend to diminish the importance of any over the counter remedy as inconsequential. It is very necessary. Vitamin supplements are concentrated mixtures of vitamins. Many of the “extra-intestinal symptoms” in Celiac are actually symptoms of vitamin deficiencies. Even if the gut is still healing, exposing it to a big concentrated dose of nutrition in the form of a supple-ment will mean more is absorbed. Throw enough of anything at a wall and some of it will surely stick! The plethora of lactose-free products on the market make it easier to deal with this side effect as well. Be assured that if you follow the gluten-free diet and take supplements as recommended, healing will occur. Follow the tortoise of the fairy tale and you will get to good health for sure. It just may take a little longer.
Lynn Cicero, M.S., R.D.

www.celiacdietitian.com

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