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aklap
Joined: 02 Oct 2004
Posts: 8602
Location: WI, USA
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 Posted: Fri Aug 31, 2007 10:16 am Post subject: |
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bump for Chocolate Jenn [not Coffee Jenn] 
_________________
Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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Fidissimus
Joined: 17 Mar 2006
Posts: 1560
Location: Portland, OR.
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| Posted: Fri Aug 31, 2007 7:14 pm Post subject: |
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I'm "Coffee Jenn" then?...
Awesome! 
_________________
Cheers!
Jenn
GF BD: Feb. 2001
Free of wheat, barley, rye, oats, dairy, eggs, almonds, pineapple and brewers yeast.
http://graindamaged.blogspot.com/ |
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aklap
Joined: 02 Oct 2004
Posts: 8602
Location: WI, USA
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| Posted: Sun Apr 20, 2008 8:26 pm Post subject: |
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bump
_________________
Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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melissa82
Joined: 08 Mar 2008
Posts: 7
Location: Montreal, Canada
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| Posted: Mon Apr 21, 2008 3:07 pm Post subject: |
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| My frustration with my family is different. A few months ago my mother was diagnosed with celiacs, and a few weeks ago my sister and I found out that we also have celiacs. My mother and sister both have many symptoms, but I don’t, not the usual profile anyway. I’m frustrated because I’m the one with no symptoms and I’m the most careful about eating gluten-free. My mother and sister basically don’t “believe” in cross-contamination. My sister made pizzas over the weekend (both GF and non-GF) and the two kinds were touching! She’ll also use a toaster at work that everyone uses and sees no problem with this. It frustrates me because I can’t force her to be more careful, but I don’t like her risking her health like that! My mom is the same, she makes GF and non-GF bread in the same bread maker! I don’t understand them. What’s the point of going through all the trouble of eating GF if you’re going to keep ingesting small amounts of gluten all the time… Also, I’m going to have a hard time explaining to them that I’m worried about being contaminated when they’re supposedly serving all GF meals! Hopefully they’ll figure it out or start listening to me! |
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ostrich
Joined: 30 Mar 2006
Posts: 4162
Location: Nebraska
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| Posted: Tue Apr 22, 2008 7:48 am Post subject: |
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| melissa82 wrote: | | What’s the point of going through all the trouble of eating GF if you’re going to keep ingesting small amounts of gluten all the time… |
Did you ask them that? I highly suggest using Colleen's trick to explain CC to them.
_________________
Ostrich :>--O==={
I lie below, you float above
In the pretty white ships that I am dreaming of |
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melissa82
Joined: 08 Mar 2008
Posts: 7
Location: Montreal, Canada
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| Posted: Wed Apr 23, 2008 9:16 am Post subject: |
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Thanks Ostrich,
To be honest I was so shocked I didn't insist. I want to make sure I understand everything perfectly myself before I present my argument so that I don't loose credibility.
Thank you for the tips. Once I'm satisfied with my own understanding I'll tackle my family!
Melissa |
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ostrich
Joined: 30 Mar 2006
Posts: 4162
Location: Nebraska
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| Posted: Wed Apr 23, 2008 9:48 am Post subject: |
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Just remember: you can only do so much. Once you reach a certain point you go from concerned to nagging/annoying, and you're not accomplishing anything. Just do what you can. 
_________________
Ostrich :>--O==={
I lie below, you float above
In the pretty white ships that I am dreaming of |
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cruelshoes
Joined: 23 Sep 2005
Posts: 2541
Location: Washington State
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| Posted: Wed Apr 23, 2008 12:52 pm Post subject: |
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| melissa82 wrote: | | My frustration with my family is different. A few months ago my mother was diagnosed with celiacs, and a few weeks ago my sister and I found out that we also have celiacs. My mother and sister both have many symptoms, but I don’t, not the usual profile anyway. I’m frustrated because I’m the one with no symptoms and I’m the most careful about eating gluten-free. My mother and sister basically don’t “believe” in cross-contamination. My sister made pizzas over the weekend (both GF and non-GF) and the two kinds were touching! She’ll also use a toaster at work that everyone uses and sees no problem with this. It frustrates me because I can’t force her to be more careful, but I don’t like her risking her health like that! My mom is the same, she makes GF and non-GF bread in the same bread maker! I don’t understand them. What’s the point of going through all the trouble of eating GF if you’re going to keep ingesting small amounts of gluten all the time… Also, I’m going to have a hard time explaining to them that I’m worried about being contaminated when they’re supposedly serving all GF meals! Hopefully they’ll figure it out or start listening to me! |
Melissa - here is some information that may be of use to you.
http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/
| Quote: | | In order to stay well, people with celiac disease must avoid gluten for the rest of their lives. Eating any gluten, no matter how small an amount, can damage the small intestine. The damage will occur in anyone with the disease, including people without noticeable symptoms. |
http://www.mayoclinic.com/print/celiac-disease/DS00319/DSECTION=all&METHOD=print
| Quote: | Cross-contamination may occur anywhere ingredients come together, such as on a cutting board. You may also be exposed to gluten by using the same utensils as others, such as a bread knife, or by sharing the same condiment containers.
What if you eat gluten?
If you accidentally eat a product that contains gluten, you may experience abdominal pain and diarrhea. Some people experience no signs or symptoms after eating gluten, but this doesn't mean it's not hurting them. Even trace amounts of gluten in your diet can be damaging, whether or not they cause signs or symptoms. Going on and off a gluten-free diet can lead to serious complications. |
http://www.celiac.com/articles/636/1/Long-Term-Follow-Up-of-Celiac-Adults-on-Gluten-Free-Diet-Prevalence-and-Correlates-of-Intestinal-Damage/Page1.html
| Quote: | | Conclusions: Celiac disease is often poorly controlled in the majority of patients on long-term treatment with a gluten-free diet as demonstrated by intestinal biopsy. Lack of adherence to strict gluten-free diet is the main reason of poorly controlled disease in adults. |
Are your mom and sis planning to get repeat bloodwork at 6 months? That is what is recommended. The proof will be in the pudding if their numbers are still elevated because they are ingesting small amounts of gluten.
_________________
-Colleen
Dx 8/05 via bloodwork/biopsy
10-YO son Dx 11/05 via bloodwork/biopsy
Daughters (12 and 2) have neg. bloodwork
A woman is like a tea bag-you never know how strong she is until she gets in hot water. - Eleanor Roosevelt |
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Kanick
Joined: 26 Jan 2007
Posts: 5
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| Posted: Sat Apr 26, 2008 9:56 am Post subject: |
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| Quote: | | I think the Visine is the easiest to slip without being spotted though. Don't ask me how I know...I won't tell. |
I know you are only kidding BUT when my dd was 2, she got the tip off a bottle of visine (I was actually standing next to her and didn't realize it) and took a little sip. I didn't think it was a big deal but called poison control to "reassure" myself. Umm, they told me to drive her to the nearest hospital as quick as I could. We tricked her into ingesting charcol with chocolate syrup but after two hours of observation, she started yelling, running around and hitting doctors and then collapsed, her blood pressure plummeted to next to nothing and she was almost coma-like.
Luckily she came out of it unscathed BUT I was informed that .25 milligrams of visine is enough to kill at 30 lb child and isn't something to mess around with. I'm sorry to sound like I'm lecturing but this is something that I try to inform everyone of when the subject comes up. |
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melissa82
Joined: 08 Mar 2008
Posts: 7
Location: Montreal, Canada
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| Posted: Mon Apr 28, 2008 2:21 pm Post subject: |
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| Thanks Colleen! I hadn't found some of those sites... |
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Tori
Joined: 01 Aug 2008
Posts: 13
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| Posted: Wed Aug 06, 2008 7:29 am Post subject: |
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This is really sad! I am vegan so I always get the typical slew of stupid questions. Especially since I am an ethical vegan everyone is always horribly offended.
I never thought that they would get angry about someone doing something for serious health reasons! That is completely ridiculous. What do they want? Do they want you to on meds that don't work and will just give you side effects that will put you on more meds? Thats why the cost of health care is so freaking expensive. Stupid people who don't want to take care of themselves!!!
Gah! |
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aklap
Joined: 02 Oct 2004
Posts: 8602
Location: WI, USA
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| Posted: Thu Aug 14, 2008 6:45 pm Post subject: |
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bump for Wind
_________________
Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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