my blood tests have come back negative for coeliac

emilyallsz · Joined: 18 May 2006 Posts: 34

everyone here-- i can't thank this forum enough. when you feel like your symptoms are all connected and you just have to keep researching on your own, it can be a long trip. but all the info & support here is so great.

i just posted on another thread about feeling like i don't need the DX anymore. i really felt i did, previously, one big reason was to deal with people (i.e. family!) who just don't get it- what gluten is, what it can be in etc. but, now i am just so tired out from all these various issues, tests, doc visits, not the least of which is the vulvadynia, that i don't care anymore.

i feel i have enough information, other people's similar stories, and personal experiences with gluten that i won't eat it anymore. i have been off gluten for about six months now and just recently had regular old pizza. my gut felt fine after that. but i woke up in the middle of the night/morning with intense burning pain sensation deep in my vagina. i KNOW what causes me pain and that is all i need to know at this point! Smile

aklap · Joined: 02 Oct 2004 Posts: 8602 Location: WI, USA

forinajoy · Joined: 01 Aug 2006 Posts: 203 Location: Texas

my daughter had many of those symptoms prior to going gf.....but don't forget to go milk free as a trial also...especially with the mouth sores....my daughters mouth sores healed up when she went milk free....for her she has to be as diligent with the milk as she is with the gluten, meaning you must read every label and even a drop of any milk product is too much..no milk, butter, whey, lactic acid, cheese, casienate (often in products that say that are dairy free, but it is a milk protein), lactose, check your meds because many have lactose, continue to be a detective Very Happy

..the up side to the milk intolerance is that she noticed the "results" of being off milk within a week, whereas with the gluten it took longer.
Her joint aches did not stop until she had been gf for a while (I don't remember exactly how long)

I sure hope you get to feeling better soon

connie, mom to Ina 11y/o with CD, who is gf/cf/sf

Fidissimus · Joined: 17 Mar 2006 Posts: 1560 Location: Portland, OR.

ostrich · Joined: 30 Mar 2006 Posts: 4162 Location: Nebraska

I second what Fid said, except I only use that on strangers. My family's too good at figuring out the truth.
_________________
Ostrich :>--O==={

I lie below, you float above
In the pretty white ships that I am dreaming of

Fidissimus · Joined: 17 Mar 2006 Posts: 1560 Location: Portland, OR.

My family didn't care if I was officially dx'd or not, they saw what gluten would do to me when I ate it - they're totally supportive and on board w/ my GF lifestyle. Very Happy

But for difficult family members who think "a little" won't hurt, it might be best to insist the dr. dx'd CD and it's a no-no for life.
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Cheers!
Jenn

GF BD: Feb. 2001
Free of wheat, barley, rye, oats, dairy, eggs, almonds, pineapple and brewers yeast.
http://graindamaged.blogspot.com/

jherara · Joined: 27 Jul 2006 Posts: 47

Aklap,

Thanks for the information on B12, but I'm sticking with my dosage for now.

With the added systemic candidasis, I don't want to tax my body any further while on high dose fluconazole and I already know how I react to the higher doses. I'm still finding articles and forum threads regarding the damage that too much B12 can cause:

There's a great debate on the issue at: http://www.veganforum.com/forums/showthread.php?t=169

Hope this helps!
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J.