NO CONTROL

moussyluv · Joined: 06 Jul 2005 Posts: 54 Location: New York

Hello all.. I first have to say that I have not been following my diet. Crying or Very sad

When I was first diagnosed w/this disease, it was back in June of 2005. I lost 30lbs in one month and followed my diet up until November. Everything has gone down hill since then. I have been eating what I am NOT suppose to eat and do not know what my consequences are for my future. Yes, I still go to the bathroom, BUT bc I am continuously eating, I am not losing the weight. I have gained if anything.
Please, someone out there, tell me that this is bad for me. I have no self control and its really hard. I have kids at a home and a boyfriend I cook for and cant help but eat what I make for them. Tell me, what will happen if I continue this?

Noatak · Joined: 13 Nov 2005 Posts: 492 Location: Massachusetts

Take a deep breath.....we all have been there at one time or another ourselves! Don't beat yourself up and mire in guilt because it will only make you feel worse. However, you have asked what may happen if you continue to eat gluten so I will tell you.

From what I've read and experienced myself, you will continue to damage your intestinal villi so you most likely will not be absorbing your vital nutrients. That, in turn, could lead to serious illness. Lymphoma, intestinal cancers are just two that stand out big with this. Not to say they are guaranteed to happen but how lucky are you? Shocked

You may reach the point where you become so sick, you will be close to an invalid, unable to live life to it's fullest. As you age, these will only have a more severe impact on you in general.

Is there a support group in your area that could lend a helping hand to you? Talk to your kids and boyfriend and ask for their help in keeping you on track. And, of course, this forum is more than happy to do the same!

aklap · Joined: 02 Oct 2004 Posts: 8602 Location: WI, USA

Hey Mousy,

I'm glad you're back!! I've wondered about ya. It sounds like you're having a rough time of it. Sorry to hear that.

What will happen?

Worst case - you'll die.
Best case - you'll feel so bad that you wish you'd die.

I don't think you want either for yourself or your kids.

One thing new is the GF Diet Boot Camp - that might give you some ideas as to what to make to keep the NGF people happy if they won't go GF with you. http://www.celiacforums.com/forums/viewtopic.php?t=1309 Strip things back to the basics for everyone.

This is not something to mess around with. Like Lisa said - try to find a local support group. It can help greatly!! That's not to say we won't help you - but there's nothing like face to face contact.
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

moussyluv · Joined: 06 Jul 2005 Posts: 54 Location: New York

really? I didnt know all of this.. thank you Noatak.. but i dont have a support group that i know of where i live.. Im in NJ. i'm probably better off through the forum..

moussyluv · Joined: 06 Jul 2005 Posts: 54 Location: New York

Hello.. I forgot what ur name was when i signed on, but hoped somehow you would get this .. MY HEART ALMOST STOPPED when I read ur post.. My heart is still beating really fast and hard now.. You're not kidding about this?

aklap · Joined: 02 Oct 2004 Posts: 8602 Location: WI, USA

How 'bout these? Anything close to you?

New Jersey

Seashore Celiacs (CSA#96) - http://www.geocities.com/seashoreceliacs/
Southern New Jersey (CSA#9) - http://www.home.earthlink.net/~celiac9/index.html

Or

Look thru here. These are support group locators: http://www.celiacforums.com/forums/viewtopic.php?t=578

No, I'm really not kidding about the long term eating gluten. Would they guy that tells you your favorite adult beverage (Capt. Morgan Rum if I recall) is GF, lie to ya? I dont think so Smile

It does nasty things to you. It can be a slow drawn out process too. I hope you try your hardest to stay on your diet!! We'll help however we can!!
_________________
Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

moussyluv · Joined: 06 Jul 2005 Posts: 54 Location: New York

awwww, u remembered my drink.. but i've been drinking Jack.. lol..

im going to check these sites out. Im in Northern nj but checking these out anyways.. tx..
u have been a lot of help in the past.. I just wish i had spoken to u when i went back to the food..

aklap · Joined: 02 Oct 2004 Posts: 8602 Location: WI, USA

ostrich · Joined: 30 Mar 2006 Posts: 4162 Location: Nebraska

moussyluv · Joined: 06 Jul 2005 Posts: 54 Location: New York

thank u.. guess what? I DID FIND SOMETHING.. 16 minutes from me and Im going on the 17th.. 7-9.. never been to one of these. never met anyone w/celiac actually so dont really know what to expect. Im happy i will be meeting w/ppl i have something in common with ya know? so again, AL and Lisa, THANKS A BUNCH..

moussyluv · Joined: 06 Jul 2005 Posts: 54 Location: New York

i wont even tell u what i had for breafast.. i want to throw it up right now. thing is, this is how i feel and i STILL DO IT. i have no self control.. I find myself also sneaking food behind my boyfriend's back like im some drug addict. what is wrong w/me? is it this hard..? was it this hard for any of u?

yellowoctopus · Joined: 19 Sep 2005 Posts: 45 Location: Washington, DC USA

moussyluv · Joined: 06 Jul 2005 Posts: 54 Location: New York

Hello Yellow.. u just said something that caught my eye, that has been happening ALOT.. one of many things.. *CRAMPING.. I cant begin to tell u how much this happens to me, along w/my teeth hurting, inside mouth sores .. My boyfriend tends to like to 'hand play' alot, and dont know if being a Celiac has anything to do w/it, but when he does, IM ALWAYS IN PAIN and sorta bruise easily. To him, he is tapping me, but to me, OMG.. it hurts ALOT and burns for a bit. is this also part of it. .I mean, yes, I get all of this, but not all at once. Every now and then, one or another occurs. But the cramping on my calves especially, has been the WORST. I've collapsed a few times and I havent told my boyfriend. Afraid to..

Kathie · Joined: 27 Jan 2006 Posts: 752 Location: Florida

You mentioned you have children. You do realize that your kids have a 1 in 20 chance of developing CD also. If one of them had it would you feed them food they weren't supposed to eat? Food that was poison to their bodies? If one of them were to develop the disease how could you expect them to follow the diet if you don't? Hopefully you will be lucky and your children won't get this but what if??

Edited for niceness, you wanted somethings to get you kick started back on your CD lifestyle, I hate to be mean. On a nicer note, you can do this, we can help. We have all been there. Everyone has to find their own thing, whatever it is, that keeps us gluten free, for me its a combination of the fear of cancer and not wanting to ever have another accident again because I couldn't get to the restroom in time after being glutened. Embarassed

_________________
CD by Biopsy 3/25/88

Torrey · Joined: 11 Apr 2005 Posts: 922 Location: Hawthorne, NJ

Mousy,

If you don't mind me asking, where in NNJ are you?
I am just curious because that's where I am, so if I can suggest some places, etc. to you, I'd be more than happy to help you out if I can.

Let me know.

Keep smiling!
_________________
~Torrey Smile

August 24, 1975
GF BD July 12, 2004