Very new here

shelashere · Joined: 25 Mar 2008 Posts: 5

I am new here and wanting to meet people with CD... I was hopein to meet people who will chat with me and help me with my concerns since Doctors dont seem to know much, well around here..I have a 12 year old daughter who has had problems all her life . Since she was born she has had problem and at times she has sperts of when she gets real sick...She has gone to many Docs and its been a nightmare,and with no answers...The symtoms very to many different things and wasnt sure if this is what she has but I have a sinkin feeling it is...

adminhelper · Joined: 19 Apr 2007 Posts: 16

Moved this to the General Discussion area so it'd get more attention.

aklap · Joined: 02 Oct 2004 Posts: 8602 Location: WI, USA

Thanks Adminhelper! I was going to do that Smile

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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa

Lyonspam · Joined: 30 Mar 2008 Posts: 8 Location: sheffield, england

Hi Shelashere
I'm new to this too. Recently diagnosed CD via a blood test. Now waitin for biopsies. It sure takes the medics a long time to gettin round to doin things. I've had the symtoms for 23 years now. Dermatologists say if i stop scratchin my skin it will get better!! Yeah, sure it will. Recent posts on this site have given me more of an insight and maybe once the biopsies are done i can start to get better.
Sorry to hear of your problems. All i can say is keep being insistent that there is some kind of 'cure' to your medics and hang in there.
You have my sympathy for all the pain this is causing you and yours.
My youngest son thought my skin problem was caused by him as he'd overheard me say it started after my pregnancy with him. Took me a long time to convince him it's NOT his fault. My family don't know what to do to help, once it starts to itch, i can't stop for hours on end. It affects so many others that are close to you,it's unreal.
Keep your spirits up and know others understand. Smile

shelashere · Joined: 25 Mar 2008 Posts: 5

Im just learning about this..We just went for tests yesterday and I had to take my 3 year old for tubes in his ears today ..if it isnt one child its another for something or another...Now just waiting for results..i hope this is all we have to do for the tests..She hasnt gone to the bathroom in over 3 weeks now and will end up sick soon Im sure.She has no energy what so ever..
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Im Sheila a Mother of a daughter with CD

cruelshoes · Joined: 23 Sep 2005 Posts: 2542 Location: Washington State

Hi, Sheila. Let us know how we can help you. We're all on this journey together. Very Happy

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-Colleen
Dx 8/05 via bloodwork/biopsy
10-YO son Dx 11/05 via bloodwork/biopsy
Daughters (12 and 2) have neg. bloodwork

A woman is like a tea bag-you never know how strong she is until she gets in hot water. - Eleanor Roosevelt

Lyonspam · Joined: 30 Mar 2008 Posts: 8 Location: sheffield, england

Sheila, Pam here again,

Don't despair, just keep pushing the doctors. Everyone is here for you to ask any questions and there are plenty on here that have been dealing with this for a long time. I've read a lot of feed back on these pages and got a lot of info from them.
I too feel exhausted quite easily. If your daughter hasn't had biopsies or blood tests for positive diagnosis then push for them, the sooner she is diagnosed the quicker you can learn how to deal with it.
Wish you luck. Smile

shelashere · Joined: 25 Mar 2008 Posts: 5

sHE HAS BEEN LIKE THIS SINCE THE DAY SHE WAS BORN..i GET SO WORRIED ABOUT HER FALLING DOWN OR IF i HIT THE BREAKS SUDDENLY AND DONT SLEEP MUCH ,JUST HAVE TO KEEP IT UP AND KEEP TRING.sHE IS MY WORLD AND DONT WANT ANYTHING TO HAPPEN TO HER ,AM i WORRIED TO MUCH?
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Im Sheila a Mother of a daughter with CD

Fifi · Joined: 01 Feb 2008 Posts: 229 Location: Wauconda, IL

Welcome Shela,

I am new here as well. 3 mths GF. This is a very overwhelming undertaking. I can't believe where all the hidden gluten is. I am amazed at how much better I feel now. I had diarrhea for 4 months and completely fatigued. I didn't have the energy to do anything. Depression, weight gain.... Doctors could not find the answer. They tested me for everything except CD until I begged them to find a reason for my distress. Stay on this forum, these people have been amazing for me. I trust them with my life. And everyday we can only do the best we can. mistakes will happen we just learn by them.

It does get better! Very Happy

shelashere · Joined: 25 Mar 2008 Posts: 5

I have had alot of help here and just a waiting game for now and see what happens with the tests...Thanks for the support it does make a difference..
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Im Sheila a Mother of a daughter with CD