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ACDA's Students with Celiac Disease

 
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aklap



Joined: 02 Oct 2004
Posts: 10611
Location: WI, USA

PostPosted: Mon Sep 15, 2008 8:24 am    Post subject: ACDA's Students with Celiac Disease Reply with quote

www.americanceliac.org/studentscd.htm

Quote:
For most children, school is a place of learning and socializing. It is important for them to feel safe and welcome in this environment. Parents face a number of adjustments when the kids go off to school. Having a student with celiac disease presents another set of challenges. Not having control over the food or food products that the child may be exposed to can be uncomfortable. While your child may be ‘out of sight’ you can still survey the landscape and remove, or limit, the opportunities for cross-contamination.

In this section, our goal is two-fold. The first is to ensure that the information on these pages is researched and accurate. Next, is to provide parents and other family members with guidelines for navigating the school setting. Unlike the gluten-free diet which must be followed, ‘one size’ does not fit all when it comes to working with teachers, principals, or food service staff. Only you can decide the best approach based on the needs of your child and your family.




Quote:
The American Celiac Disease Alliance (ACDA) has developed and compiled the most accurate and detailed resources to assist parents with school-age celiac students. The information was thoroughly researched and reviewed by experts working in federal nutrition programs, school food service, and disability rights. We learned some very interesting things in the process, such as the South Dakota's Wellness Plan for Schools references the need to accommodate special diets and celiac sprue and Connecticut's manual 'Accommodating Special Dietary Needs' states that food service must accommodate for severe medical conditions and lists celiac disease.

The new ACDA webpage responds to the most common questions, directly. For instance, 'Does the Americans with Disabilities Act define celiac disease as a disability? Answer: No, it never mentions celiac disease. It also seeks to dispel myths - "a 504 plan is necessary for a child with celiac disease to obtain GF lunches." No, it is not. A school may require a 504 plan, not all of them do.

The new school page also includes detailed resources, including:

- a Model 504 plan developed in conjunction with the Disability Rights Educational Defense Fund (DREDF);

- a Sample physician statement, prepared with assistance from a leading celiac specialist;

- State specific physician forms;

- State specific information about special diets at school;

- a Sample GF Lunch Menu; and

- Much more!

All materials are now online at www.americanceliac.org/studentscd.htm .

The information is designed to assist parents, teachers, administrators and food service personnel. We know that you will find the information extremely helpful.

As always if you have any questions or need assistance in working with your child's school please contact the ACDA. Thank you.

Beth Hillson
President
American Celiac Disease Alliance


Found this on ListServe from Beth. For those that may not know, Beth Hillson is the person that started Gluten Free Pantry. GFP is part of the Glutino family which is the company that provides us this lovely home Smile

Thanks Beth
Thanks GFP
Thanks Glutino
Thanks ACDA
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Al

“We cannot all do great things, but we can do small things with great love.” Mother Teresa
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