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Deb
Joined: 23 Oct 2004
Posts: 394
Location: Long Island, New York
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 Posted: Fri Nov 14, 2008 6:53 am Post subject: Is there a connection between iodine and DH? |
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Does anyone here have a problem with iodine/betadine?
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rpf1007
Joined: 13 Feb 2008
Posts: 708
Location: Chicago
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| Posted: Fri Nov 14, 2008 7:26 am Post subject: |
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I get blisters when I ingest iodine containing things- shrimp, regular salt. I haven't had to use topical iodine/betadine though so I'm not sure about that.
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cruelshoes
Joined: 23 Sep 2005
Posts: 3380
Location: Washington State
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| Posted: Fri Nov 14, 2008 8:29 am Post subject: |
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Iodine can definitely be an issue for those with DH.
http://www.aocd.org/skin/dermatologic_diseases/dermatitis_herpeti.html
| Quote: | | The rash is caused when gluten in the diet combines with IgA, and together they enter the blood stream and circulate. They eventually clog up the small blood vessels in the skin. This attracts white blood cells (neutrophils), and releases powerful chemicals called complements. They actually create the rash. Iodine is required for the reaction, so people with DH should avoid using Iodized salt. |
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aklap
Joined: 02 Oct 2004
Posts: 10612
Location: WI, USA
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| Posted: Fri Nov 14, 2008 8:37 am Post subject: |
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Deb,
You're not alone...
http://www.celiac.com/articles/177/1/The-Gluten-Intolerance-Group-of-North-America-on-Iodine-and-Dermatitis-Herpetiformis/Page1.html
http://www.enabling.org/ia/celiac/sn/spnk9808.html
| Quote: | DH is not an allergic reaction; a different mechanism is involved. It
is caused by antibodies to the gluten found in wheat, rye, and barley.
The causes of DH flares include large quantities of iodides (some
iodine is needed in the diet), kelp, shellfish, non-steroidal
anti-inflammatory agents (such as aspirin), gluten, stress, and some
cleansers.
What else looks like DH?
* DH can be misdiagnosed as psoriasis, or the patient may have both
conditions.
* Linear IgA disease--the immunofluorescence pattern is different,
but it looks and feels the same as DH to the patient.
* Allergic contact reactions.
DH is treated by adherence to a gluten-free (GF) diet. The skin
lesions can be treated with either a sulfone (Dapsone) or sulfonamide
(Sulfapyradine) drug. In about 85% of the cases, at least a year on a
strict GF diet is needed before DH is resolved. In rare cases DH
lesions clear up after only a few weeks on the GF diet.
Dapsone can have side effects, though these are not common. It can
alter blood chemistry, causing anemia. Those of Mediterranean or
African ancestry can have sudden red blood cell count drops [known as
G6PD Deficiency--Dr. Alexander]. Other complications include
tingling fingers and neurological problems.
Ideally, if the patient is on medication there would be monthly lab
tests to monitor the dosage and effect on the patient. This almost
never happens.
The GF diet takes a long time to bring DH under control because it
requires time to clear the IgA and IgG from the blood. So even if one
is on a GF diet and/or taking Dapsone, technically one has DH. Like
an alcoholic, one always has the disease.
Dr. Papp concluded his presentation by answering a few questions from
the audience.
Q: How soon after ingesting gluten or iodine will a flare occur?
A: It varies tremendously. With iodine, it usually takes several
days of consumption before a flare occurs.
Q: What effect does stress have on a DH patient?
A: It intensifies any symptoms the patient is experiencing.
Q: What effect does iodine on the skin have?
A: It really has no effect; it doesn't penetrate enough. Iodine must
be consumed to cause a DH flare.
Q: After several years on a GF diet with no flares, is iodine still a
problem?
A: No.
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http://autoimmune-skin-disorders.suite101.com/article.cfm/dermatitis_herpetiformis
| Quote: | Environmental Triggers
Environmental triggers include gluten, which is found in wheat, rye, and barley, and other grains that are contaminated with wheat during harvest. Gluten is also found in hydrolyzed vegetable protein, artificial colorings, malts, malt ales, hydrolyzed plant protein, monosodium glutamate, preservatives, modified food starches, vegetable gum, beer, and vinegar. Iodide in iodized salt and foods high in iodine and halide are suspected of causing disease flares. |
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Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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Deb
Joined: 23 Oct 2004
Posts: 394
Location: Long Island, New York
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| Posted: Fri Nov 14, 2008 7:53 pm Post subject: |
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| Quote: | Q: What effect does iodine on the skin have?
A: It really has no effect; it doesn't penetrate enough. Iodine must
be consumed to cause a DH flare. |
Well Al, I guess you answered my question, well your link did. I was talking about topical iodine/betadine, I should have made myself clear. I read about iodine and DH and was just wondering.
Thanks.
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aklap
Joined: 02 Oct 2004
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Location: WI, USA
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Deb
Joined: 23 Oct 2004
Posts: 394
Location: Long Island, New York
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| Posted: Sat Nov 15, 2008 7:39 am Post subject: |
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Love you Al, thank you.
When I had surgery last year, I went home from the hospital with the nastiest rash I have ever had. The itching was terrible, and it was a couple of months before it entirely went away. The doctor told me, "It's just from stress, it will go away, get some Benedryl!" The itching was unbearable at times. The rash was on the area where the betadine had been. It's taken me this long to make the connection. I honestly think the betadine was the cause. I never plan to have surgery again, which most of us plan on. Yet, I want to be prepared.
Thank you!
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isto
Joined: 30 Sep 2005
Posts: 1650
Location: State of Exhaustion
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| Posted: Sat Nov 15, 2008 9:57 am Post subject: |
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| I have problems with iodine. When I ingest it, I get a horrible DH rash. In September when I gave birth I had an epidural. The anesthesiologist wiped my back with iodine. Later when all the tape was being removed, the nurse commented that my back was broken out in a rash. So, apparently topical iodine is a problem for me now, also. |
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rpf1007
Joined: 13 Feb 2008
Posts: 708
Location: Chicago
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| Posted: Sat Nov 15, 2008 10:31 am Post subject: |
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This is really good to know. Thanks for bringing it up! Given how badly I react to ingesting iodine- I'll be super careful about the topical stuff.
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Rachel |
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aklap
Joined: 02 Oct 2004
Posts: 10612
Location: WI, USA
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| Posted: Sat Nov 15, 2008 3:11 pm Post subject: |
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| isto wrote: | | I have problems with iodine. When I ingest it, I get a horrible DH rash. In September when I gave birth I had an epidural. The anesthesiologist wiped my back with iodine. Later when all the tape was being removed, the nurse commented that my back was broken out in a rash. So, apparently topical iodine is a problem for me now, also. |
Was it from the tape or iodine? Peg breaks out from the surgical tape they use.
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Al
“We cannot all do great things, but we can do small things with great love.” Mother Teresa |
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Deb
Joined: 23 Oct 2004
Posts: 394
Location: Long Island, New York
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| Posted: Sat Nov 15, 2008 3:20 pm Post subject: |
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| Quote: | | Was it from the tape or iodine? |
Well, mine was definitely the iodine, there was no tape on me. I react to tape too!  This rash was the most horrible itching I have ever experienced, and the rash was terrible. My daughter even felt sorry for me. 
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isto
Joined: 30 Sep 2005
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Location: State of Exhaustion
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| Posted: Sat Nov 15, 2008 7:12 pm Post subject: |
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| aklap wrote: |
Was it from the tape or iodine? |
I had the same tape on my back that they used for the IV in my hand and that I used all week to S&S with the feeding tube to feed BenjaBee. I only broke out where the Dr used the iodine on my back. |
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Deb
Joined: 23 Oct 2004
Posts: 394
Location: Long Island, New York
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| Posted: Sat Nov 15, 2008 10:13 pm Post subject: |
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Well guys, I tried the iodine test. Someone told me to soak a bandaid pad in iodine and put it on my skin. The bandaid has been on my leg for maybe 30 mins, and the itching has already begun. I can't stand it, the bandaid is off. I guess I have my answer. I can't tolerate iodine on my skin. 
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Deb
Joined: 23 Oct 2004
Posts: 394
Location: Long Island, New York
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| Posted: Fri Nov 21, 2008 7:40 am Post subject: |
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Well, just in case this topic may help another one day, I wanted to add this. It has been one week tomorrow since I did the iodine patch test. The iodine can still be seen on my leg, and the area has a huge dry spot. Iodine used to be absorbed quickly on me, within a couple of hours. This time, that didn't happen. The spot is somewhat scaly. Weird huh?
If nothing else, this experiment has shown me I do have a problem with iodine.
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