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Fibromyalgia

 
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bob02



Joined: 01 Sep 2008
Posts: 148
Location: Karachi

PostPosted: Sat Feb 21, 2009 4:25 pm    Post subject: Fibromyalgia Reply with quote

Is any one with gluten problem suffering from fibromyalgia?
Can gluten be implicated in this disease?
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mrsppmrxky



Joined: 09 Oct 2004
Posts: 1631
Location: GF Kitchen

PostPosted: Sun Feb 22, 2009 12:34 am    Post subject: Reply with quote

My husband and I both have fibro. I know that the studies I have read in the past say that if you have one auto immune problem, it can lead to others cropping up. Fibro is listed as one that you can develope.

How are you doing coping with all of the weird weather changes? Are you making sure that you fibro meds are GF?
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Pattrish



Joined: 21 Feb 2009
Posts: 109
Location: Oklahoma

PostPosted: Sun Feb 22, 2009 7:20 am    Post subject: Reply with quote

Once I got a diagnosis for FM in 2002, I realized I've had it my entire life. And, I've had IBS my entire life (a symptom of FM). It's the process of trying to feel better than lead me to a GF diet.

Other food sensitivities, I believe, play a role. I also have a sensitivity to soy and you'd be surprised what it's in...including plastics. So, I also have an allergy to plastics.

Between going GF, avoiding plastics, and taking extra Vitamin D, I finally feel fairly human. I have other health issues, but FM is the area I've focused on.

So, in answer to BobO2's question...personally, I'd say yes.
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bob02



Joined: 01 Sep 2008
Posts: 148
Location: Karachi

PostPosted: Sun Feb 22, 2009 7:39 am    Post subject: Gluten for all Reply with quote

It seems as if Gluten is responsible for all the ailments or for most of them ranging from G.I to Autoimmunity..do you guys agree??
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Pattrish



Joined: 21 Feb 2009
Posts: 109
Location: Oklahoma

PostPosted: Sun Feb 22, 2009 11:45 pm    Post subject: Reply with quote

BobO2...There are many opinions on the cause of FM, but, for me, I've come to believe it's the result of chemical sensitivities...of all kinds. This includes medications of any and all sorts and chemicals including herbicides and pesticides.

Consider that most wheat that's being grown these days is bombarded with these substances and/or they're genetically modified. IMHO...that's why it's so hard for us to digest or have a severe allergy. Being GF is only a small part of FM.

Most processed foods these days have so many additives, it's ridiculous. Eating "real food" has also made a difference for me (especially avoiding MSG). Do hope you do the same...fibromyalgia is very, very uncomfortable (putting it mildly).

I wish you well...
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bob02



Joined: 01 Sep 2008
Posts: 148
Location: Karachi

PostPosted: Mon Apr 20, 2009 3:58 pm    Post subject: Reply with quote

Patrish..Are you suggesting that going G.F helps in Fibromayalgia??
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bob02



Joined: 01 Sep 2008
Posts: 148
Location: Karachi

PostPosted: Thu Dec 24, 2009 2:21 pm    Post subject: Reply with quote

Pattrish wrote:
Once I got a diagnosis for FM in 2002, I realized I've had it my entire life. And, I've had IBS my entire life (a symptom of FM). It's the process of trying to feel better than lead me to a GF diet.

Other food sensitivities, I believe, play a role. I also have a sensitivity to soy and you'd be surprised what it's in...including plastics. So, I also have an allergy to plastics.

Between going GF, avoiding plastics, and taking extra Vitamin D, I finally feel fairly human. I have other health issues, but FM is the area I've focused on.

So, in answer to BobO2's question...personally, I'd say yes.


Did u check your blood levels for Vit.D before taking it??is it true that you may have normal Vit.D in blood but not in tissue??
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MoniDew



Joined: 15 Apr 2009
Posts: 60

PostPosted: Sun Dec 27, 2009 2:08 pm    Post subject: Reply with quote

yes, yes, yes!

I didn't realize how badly I had fibro until my doc gave me Deplin (methylfolate) to clear the homocysteine from my BRAIN. It just aggravated the hell-o out of the fibro!

It took a while to realize it, but I finally figured out I needed ANOTHER methyl donor to clear the homocysteine from my JOINTS. So now I take MSM for my joints, and Deplin for my brain, and feel MUCH, MUCH better.

Like many celiacs, I have a lot of nutritional deficiencies. Here is my personal daily supplement list. OBVIOUSLY THIS IS NOT INTENDED TO PRESCRIBE FOR EVERYONE. I state it only as what works for me! (EVERYBODY SAY, "OKAY!" We get it!)

AM Supplements:

Deplin 7.5 (Rx, you get it from your doc!)
SAM-e, 400mg
MSM, 1or2X1000mg
B12 (as methylcobolamine) 1000mcg
Rhodiola (an herb, for chronic fatigue, alternately you can try NAC, an amino acid) I take 2 of the Rhodiola
Fish oil 2X1000mg

PM Supplements:

Deplin 7.5 (Rx, you get it from your doc!)
MSM, 1or2X1000mg
Fish oil 2X1000mg
Valarian Root (an herb, for sleep! I have horrible insomnia! This works!) I take 3 of the Valarian Root

I hope this helps other fibro people have a place to start when looking for some answers!! The homocysteine levels are inflammatory! And the inflammation can be found anywhere - blood, brain, joints, etc. A total approach is what's needed here.
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MoniDew

diagnosed with genetic celiac disease (celiac sprue) 12/2009
daughter & granddaughter carry genetic markers, too
gluten, dairy/casein, peanut, and soy-free
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bob02



Joined: 01 Sep 2008
Posts: 148
Location: Karachi

PostPosted: Sun Dec 27, 2009 4:02 pm    Post subject: Reply with quote

ok ok ok
i'm convinced but are'nt you taking plenty of spplmnts??try to cut few and see..what about vit D??
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MoniDew



Joined: 15 Apr 2009
Posts: 60

PostPosted: Mon Dec 28, 2009 2:31 pm    Post subject: Reply with quote

bob02 wrote:
ok ok ok
i'm convinced but are'nt you taking plenty of spplmnts??try to cut few and see..what about vit D??


Yeah - I agree! I am taking a lot of supplements. And I would love to cut down a few (several). But at this particular moment, I am not well enough to do that!

I've been thinking a lot about Vit D, and whether or not I should be taking it. My calcium levels are right where they should be (last blood test). A miracle, I know! So, for the moment, things are good in that department. But, we still have about 4 more long months of winter ahead of us, and I might reconsider in a little while!
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MoniDew

diagnosed with genetic celiac disease (celiac sprue) 12/2009
daughter & granddaughter carry genetic markers, too
gluten, dairy/casein, peanut, and soy-free
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txplowgirl



Joined: 12 Sep 2009
Posts: 2
Location: Oklahoma

PostPosted: Mon Jan 11, 2010 1:27 pm    Post subject: Fibromyalgia Reply with quote

I have Fibro, and I have found that the nightshades really aggravated my fibro. Once I eliminated those the pain I had in the mornings have all but gone away.
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bob02



Joined: 01 Sep 2008
Posts: 148
Location: Karachi

PostPosted: Tue Jan 12, 2010 1:40 pm    Post subject: Re: Fibromyalgia Reply with quote

txplowgirl wrote:
I have Fibro, and I have found that the nightshades really aggravated my fibro. Once I eliminated those the pain I had in the mornings have all but gone away.

whats night shades...a kind of night mare Question
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cruelshoes



Joined: 23 Sep 2005
Posts: 3561
Location: Washington State

PostPosted: Tue Jan 12, 2010 2:52 pm    Post subject: Re: Fibromyalgia Reply with quote

bob02 wrote:
whats night shades...a kind of night mare Question


http://en.wikipedia.org/wiki/Nightshades

Quote:
Solanaceae is a family of flowering plants that contains a number of important agricultural plants as well as many toxic plants.

.... The family includes Datura (Jimson weed), Mandragora (mandrake), belladonna (deadly nightshade), Capsicum (paprika, chili pepper), Solanum (potato, tomato, aubergine or eggplant), Nicotiana (tobacco), and Petunia (petunia).

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bob02



Joined: 01 Sep 2008
Posts: 148
Location: Karachi

PostPosted: Wed Jan 13, 2010 10:04 am    Post subject: Re: Fibromyalgia Reply with quote

http://en.wikipedia.org/wiki/Nightshades

Quote:
Solanaceae is a family of flowering plants that contains a number of important agricultural plants as well as many toxic plants.

.... The family includes Datura (Jimson weed), Mandragora (mandrake), belladonna (deadly nightshade), Capsicum (paprika, chili pepper), Solanum (potato, tomato, aubergine or eggplant), Nicotiana (tobacco), and Petunia (petunia).
[/quote]

Capsicum is anti cancer,has anti-oxident activity..can be found on Wiki.
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cultureslayer



Joined: 07 Apr 2006
Posts: 998
Location: NC

PostPosted: Wed Jan 13, 2010 10:15 am    Post subject: Re: Fibromyalgia Reply with quote

bob02 wrote:

Capsicum is anti cancer,has anti-oxident activity..can be found on Wiki.

There are MANY other antioxidant options outside of the nightshades. Avoiding them is worth trying, it makes a huge difference for some people.
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Lauren
Pain is inevitable; suffering is optional.
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